81 replies to this topic

[Deaminated Marcus]

yes, I was saying that it isn't the be all, end all.  it is separate, having to do with the bone growth aspect of D. and is usually followed in someone with kidney disease or parathyroid issues.

Good point and... for sarcoidosis ... 

[powerofpositivethinking]

i have to use LabCorp for my insurance, and I had Vitamin D Hydroxy 25 measured in February, but I just looked on their website and saw Calcitriol 1.25 listed as well.  When I call my ob/gyn in a week or two, I can see if they'd be willing to add that also.

 

my plan is to ask for Vitamin D 25 and 1.25

TPO test

Lipid Panel, so I can get more accurate numbers

 

in the meantime, it's a start of a new month, and my goal is to eat the majority of whole foods.  I've been eating a lot of whole foods, and although they're gluten, dairy free, allergen free, i've been enjoying far too many of the Enjoy Life chocolate bars 

Edited by powerofpositivethinking, 01 May 2013 - 02:15 AM.

[powerofpositivethinking]

so even though they were perfectly nice about it, the ob/gyn would only order the Vitamin D 25 hydroxy.  they said I should really be going to my PCP for the cholesterol tests and to discuss other symptoms.  I moved almost 5 years ago, and got an ob/gyn, dentist and eye doctor, but I never got a PCP close to me because they have walk in clinics, and I've seen the same PCP since I was a child.  He's two hours away now, but he knows my family history because he sees other members of my family, and that is invaluable to me.  When I could not shake myself out of my rough time mentally awhile back, I felt comfortable going to him to get it sorted out.  I wrote out a letter with everything that had been going on because I knew I would not be able to keep it together.  I would cry so easily, which is just not me.  He read the letter, and said, "It sounds like you're depressed," and prescribed me Wellbutrin, which I took for a few months to help level me out.  I would not have wanted my first appointment with a new PCP to be talking about anxiety and depression.  I think I will make an appointment with him in June to go over everything and get my cholesterol tested, but maybe it's time to make the switch to a PCP close to me.  

 

I keep reading about hypothyroid and feeling cold all the time, and I match-up with some of the symptoms, but not the high cholesterol part.  I was hoping to get the TPO antibodies checked, but since my TSH dropped from a 2.49 (April 2012) to a 1.33 (February 2013), to them it doesn't look like I'm trending toward hypo, so maybe I need to just relax, and keep doing what I'm doing by eating gluten-free.

 

the constipation is sooooo much better.  I had done a Jillian Michaels video the other week, and even though I was so happy I made it through and had the energy to finish it for the first time in a looonnnggg time, I think it's too much for me right now.  I'm going to be walking and doing yoga.  I need to be kind to my body...

 

I am still getting pain in my hip joints and leg muscles, not shooting pain, but a dull ache 

 

i got my blood taken for the Vitamin D 25 hydroxy test, so I will post that result when I get it.  My previous level was 25.3, and I've been taking a 2000 iu supplement in addition to the 1000 iu in my daily multi.  

 

happy weekend!

[GottaSki]

Good Morning!

I think making an appointment with the primary that knows you is wise...starting with a new primary closer to you might work...but I would wait a bit. As your time gluten-free increases many of these symptoms may remedy themselves. That being said...get into whichever doctor you decide is best to have as many labs ordered as you need. The TSH is a pituitary hormones, not a thyroid hormones -- although doctors swear by it to diagnose thyroid issues. You need thyroid antibodies run along with Free T3 and Free T4. I cant remember what all you have had tested...but if it has been three months or more gluten-free I would add full celiac antibody panel along with CBC, CMP, B1 B2, B6, B12, D, K, Iron, Ferritin, Copper and Zinc.

[frieze]

Good point and... for sarcoidosis ... 

do you have hypercalciuria?

[powerofpositivethinking]

so in February, I was considered Vitamin D deficient with a level of 25.3 with a reference range of 30-100.  I was told to supplement with 2000 iu a day, which I did, in addition to the 1000 iu that is in my multi-vitamin.  I got my results back from my 3 month follow-up, and I am now at a 35.1, so I am no longer deficient by the labs standards, so that is a plus!  However, in 3 months time I've only climbed 10 points, and I took more than my ob/gyn told me too.  Is this a good gain?  My ob/gyn didn't call with any update, and the only reason I know my results is because Labcorp sends them to your e-mail 48 hours after they've been reported to your doctor.   

 

Lisa, I will be making an appointment with my primary soon to ask for some of the tests.  I have a script from my GI for another Vitamin D, K and celiac panel to be done in June.  June 10th will be my 3-month gluten free mark!!

Good Morning!

I think making an appointment with the primary that knows you is wise...starting with a new primary closer to you might work...but I would wait a bit. As your time gluten-free increases many of these symptoms may remedy themselves. That being said...get into whichever doctor you decide is best to have as many labs ordered as you need. The TSH is a pituitary hormones, not a thyroid hormones -- although doctors swear by it to diagnose thyroid issues. You need thyroid antibodies run along with Free T3 and Free T4. I cant remember what all you have had tested...but if it has been three months or more gluten-free I would add full celiac antibody panel along with CBC, CMP, B1 B2, B6, B12, D, K, Iron, Ferritin, Copper and Zinc.

[GottaSki]

It took me a year for my D to climb from 18 to 30...so 10 points in three months sounds about the same or better...three months is still early days...I would think all numbers will have improved....but may not all be in normal range just yet....took about two and half years for my vitamins and minerals to all improve significantly....celiac antibodies were all significantly lower at three months and have remained very low since my six month mark.

We are all different...so I wouldn't be concerned as long as numbers are improved.

Hang in there and congrats on three months...they really are the toughest as there is so much to learn during transition.