Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Headache
0

10 posts in this topic

I was diagnosed with celiac November 15. Earlier that week, my OBGYN tested my iron and it was 5.4. After a few days of going gluten free, I could tell a huge difference. My stomach issues and headaches went away immediately. My energy level slowly started coming up. However right before Christmas I started getting headaches again. I thought my iron was dropping due to some female issues. However when I got it checked it had gone up to 10.5, and less than a week later 11. So that is not the cause of these headaches. I have had a headache for two weeks straight now. Medication only provides temporary relieve. Any ideas, suggestions, or similar experiences?

0

Share this post


Link to post
Share on other sites


Ads by Google:

I was diagnosed with celiac November 15. Earlier that week, my OBGYN tested my iron and it was 5.4. After a few days of going gluten free, I could tell a huge difference. My stomach issues and headaches went away immediately. My energy level slowly started coming up. However right before Christmas I started getting headaches again. I thought my iron was dropping due to some female issues. However when I got it checked it had gone up to 10.5, and less than a week later 11. So that is not the cause of these headaches. I have had a headache for two weeks straight now. Medication only provides temporary relieve. Any ideas, suggestions, or similar experiences?

Are you 100% sure that you've been gluten free? For me the headache is the first sign that I've been glutened. I would suggest taking another look at everything -- your kitchen prep stuff (cutting boards, knives, etc.), toaster, toaster oven, foods you might not have thought of such as regular Rice Crispies which clearly have no wheat in them but are sweetened with barley malt. Stuff like that. Good luck. :)

0

Share this post


Link to post
Share on other sites

Ditto on looking over everything and everywhere you eat for gluten.

I get headaches when I eat too much tyramine. It's high in cured meats, nuts, aged cheese and pickles and probably a few more things. Some people here follow a very strict low tyramine diet; I don't but my headaches have improved a fair bit and I know I should avoid eating all those foods in one day.

Either low zinc or magnesium can be a cause of headaches, (I forget and I learned about this from when I looked up why pms causes headaches and I remember those 2 minerals being involved) and if you're supplementing with iron your body might be absorbing more iron instead of either of those elements because apparently that's how metal absorption works, all of them using the same method of absorption or something.

0

Share this post


Link to post
Share on other sites

Besides stuttering and word slurring, headaches are the first indicator for me that I ate gluten. Tonight, in fact, I came home from the gym with such a headache, I had to lay down. Then the nausea.My husband kept asking me what did you eat? I said, just because I have a headache doesn't mean it's gluten! I ate good today ( I am still fairly newly diagnosed and have a bad day maybe once a month, hopefully never again though) I had yogurt and a banana, and then some gluten free chicken tenders and sweet potato fries. He was like well, maybe the chicken tenders are not really gluten-free. SO, to indulge him, I looked..well, they were certified gluten-free..but...I looked at the bag of sweet potato fries...Ore Ida..and there in the ingredients COntains; WHEAT! DOH!! I really feel stupid. I am so used to eating regular frozen fries with no problem, I just grabbed the sweet ones thinking they would be fine. I am so mad at my stupidity. I threw them right in the trash,because no one else will eat them, and here I sit achy, and sick :( SO, it could be non gluten related, or there could be traces you have not thought about :(

0

Share this post


Link to post
Share on other sites

I don't think it's from gluten. I can think of three occasions where I was glutened and all three times I had tummy troubles from it, not a headache. My husband made gluten free brownies using butter he had double dipped in to.make toast. It took the second time of eating them and getting sick to realize the mistake. The third time I got careless when we had hamburgers and hot dogs. I think some crumbs from everyone else's buns got on my plate somehow. I did eat some tastefully simple garlic 3 weeks ago. I realized after the fact that it was tastefully simple. None of their products are safe. It did not cause tummy troubles, but would it cause a headache to last 3 weeks?

0

Share this post


Link to post
Share on other sites




My headaches were caused by muscle tension due to poor head posture. Chiropractic, massage, and a lot of work re-aligning my posture is the only thing that made them go away on a permanent basis. (These were chronic, debilitating migraines.)

0

Share this post


Link to post
Share on other sites

You live in shared house and eat shared meals. Residual gluten could be more diffuse than you think. From what I've read of people's stories here, many people experience full-out attacks when they've eaten enough gluten beyond some sort of personal threshold, but will feel just a little of before that.

0

Share this post


Link to post
Share on other sites

I don't think it's from gluten. I can think of three occasions where I was glutened and all three times I had tummy troubles from it, not a headache. My husband made gluten free brownies using butter he had double dipped in to.make toast. It took the second time of eating them and getting sick to realize the mistake. The third time I got careless when we had hamburgers and hot dogs. I think some crumbs from everyone else's buns got on my plate somehow. I did eat some tastefully simple garlic 3 weeks ago. I realized after the fact that it was tastefully simple. None of their products are safe. It did not cause tummy troubles, but would it cause a headache to last 3 weeks?

My biggest symptoms of glutening are headaches, which usually turn into full-on migraines. I get dizzy, and I start to stutter and slur my words. Then, I get nauseous, and then have stomach distress usually the next day.

0

Share this post


Link to post
Share on other sites

MyYoung, I don't know if this can help. If drugs don't do much, they might be tension headaches. Tension should ease goin gluten free, but there are relaxation tecniques that can help anyway. I mention this because I was really scared after one continuous month of headaches, and I felt much relieved when my dentist showed me where it was coming from.

Is your headache mounting up from your neck, or is it around your eyes or one of your eyes, or around the temples or on the forehead? In all these cases it might come from tension in your jaws. Try touching the point on your cheeks where the lower and superior jaws meet, and press with your fingers. Aching?

(I don't have headaches any more now but my jaws are still aching if I press them like this).

alesusy

0

Share this post


Link to post
Share on other sites

MyYoung, I don't know if this can help. If drugs don't do much, they might be tension headaches. Tension should ease goin gluten free, but there are relaxation tecniques that can help anyway. I mention this because I was really scared after one continuous month of headaches, and I felt much relieved when my dentist showed me where it was coming from.

Is your headache mounting up from your neck, or is it around your eyes or one of your eyes, or around the temples or on the forehead? In all these cases it might come from tension in your jaws. Try touching the point on your cheeks where the lower and superior jaws meet, and press with your fingers. Aching?

(I don't have headaches any more now but my jaws are still aching if I press them like this).

alesusy

It is difficult to describe. When I first wake up or when it first starts later in the day, my head feels fuzzy inside. It starts out as a minor annoyance. If I do net take something it gradually turns into a very painful headache. It hurts on top of my head and my forehead. Medicine does give temporary relieve.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,639
    • Total Posts
      918,434
  • Topics

  • Posts

    • How effective is HD skin biopsy after being gluten free for a year
      DH is celiac disease that appears on the skin (gluten triggered).  It does not appear when you are consuming dairy, which sounds like a separate issue for you.   A DH biopsy requires active lesions (new/fresh) from consuming gluten.  So, if you want to be tested via a skin biopsy you must go back on gluten.  Finding a dermatologist who knows exactly how to biopsy for DH is often difficult.  Be sure your Derm is knowledable and has biopsied for DH before. Why no endoscopy for now?  I bet your GI  knows that your insurance will deny the endoscopy.  After all, you tested negative to the blood panel.  Your GI should not even ordered the blood panel knowing that you had been gluten free for months.  You have to be consuming gluten daily for 8 to 12 weeks for the blood test to be accurate.   Did you ever test positive?  Why did your primary diagnose you?  Having the gene just means you can develop celiac disease.  Some 30% of the population carries the genes.  The gene test should only be used to help rule out celiac disease.  
    • How effective is HD skin biopsy after being gluten free for a year
      No one can say exactly how long you might be able to get a positive dh biopsy after having been gluten free as long as you have been. The Chicago Celiac Disease Center says this: http://www.cureceliacdisease.org/faq/im-scheduled-to-have-a-skin-biopsy-to-screen-for-celiac-disease-should-i-maintain-a-gluten-containing-diet-similar-to-those-who-are-being-screened-via-blood-or-intestinal-biopsy/ http://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/ You said you had a flare of the plaque psoriasis -- that is NOT dh so why do you think the dh biopsy will show positive? Testing positive for the celiac genes does not mean you have celiac disease. 30+% of the population have the celiac genes but only very, very small fraction of those people do or will present with celiac disease. The gene tests are only used to rule OUT celiac NOT to diagnose it. Frankly, I can understand why your GI does not put any stock in your Primary doc's thinking you have celiac disease. A positive celiac gene and the boils in your armpits which the GI never saw and were never biopsied for dh but they resolved on a gluten free diet and so did your plaque psoriasis. That's all the GI has to go on. I don't know why you are pushing an endoscopy. If you've been eating strictly gluten free then an endoscopic biopsy for celiac will be negative.  Your PCP should have done a celiac blood panel on you back when you were still eating gluten rather than dx you based on the celiac gene you tested positive for.
    • How effective is HD skin biopsy after being gluten free for a year
      I've been gluten free for a year now and my gastro wants to wait for the endocopy until I'm eligible for the colonoscopy when I turn 50 later this year. I don't think she believes I have celiac, even though I tested positive for one of the genes associated with celiac and my primary has diagnosed me as having celiac. The gluten sensitivity blood tests came back negative, of course, since I was gluten free for 9 months at that time. Why is she waiting? At any rate, My digestive system has improved greatly, but when I reintroduced non fat Greek yogurt in my diet, the plaques psoriasis returned on my elbows. My primary believes it is dermatitis herpetiformis (as well as I, since before going gluten free, I used to get boils in my armpits) and I'm scheduled for a skin biopsy in 3 weeks. However, I eliminated dairy from my diet 4 weeks ago and the plaques psoriasis is healing like it did when I eliminated gluten from my diet a year ago. If the scar is reduced to eczema, does that mean there still are IGA deposits in my skin? I don't want to resume dairy since I experienced a cross reaction to the casein in cheese and found lactose was on that same list. So my question is, how long do the granular IGA deposits remain in the skin in order to have a valid skin biopsy test performed for dermatitis herpetiformis? Since it takes 1-2 years for dermatitis herpetiformis to heal on a gluten free diet and I just had a recent flare up, can I continue on my dairy free diet or should I resume eating non fat Greek yogurt for the next 3 weeks just for this skin biopsy?
    • Celiac Night Vision
      Thanks Cristiana. It was Mistyx7 and night driving. Migraine type is very personal but does not appear to be closely connected to celiac or my peculiar scotomas. If you think going gluten-free has improved it that deserves a separate topic!
    • Burning Sensation
      The last post was from 2011.   if you can eat a regular pizza crust with no issue, then gluten isn't your problem.  You might want to look for something else.  The amount of gluten in a beer or fryer cc is very very small compared to eating a pizza crust.   I am assuming you do not have Celiac disease.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,732
    • Most Online
      1,763

    Newest Member
    SueJ
    Joined