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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Lifting The Veil: First Months
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I hope this will be useful to some recently dx. I've been dx on January 7th (biopsy results) but I stopped eating gluten on December 2nd right before my gastro. celiac disease symptoms can be elusive, and it is easy to forget how sick you felt. So this is a list of the things that are goin better after almost two months gluten-free.

During this time, I have had several problems, most of all right after New Year's eve and then again last week: gastro and bowels symptoms but also other problems: extreme fatigue, brain fog, depression, vision problems, and of course intestinal problems. I have not pinpointed why: I'm also lactose intolerant and perhaps an excess of lactose and too many sugary stuff sent my bowels in alarm mode again, but I don't think I had any gluten (not the second time; the first, yes). Anyway, it's useful because it reminds you: "THAT'S what I've been feeling like for months". And then you don't feel anymore like you're pretending and pampering yourself.

My best advice, which I'm picking up from other and more expert people, is to keep to a simple diet as much as possible and to limit processed foods in the first months. Rice, maize, quinoa, meat - cheese if you can - fish, vegetables, raw fruits. Simple stuff. I'm experimenting with what I can get away with (wine? bits of chocolate? homemade muffins? yeast? etc). However, when I am feeling ok, the improvement is very noticeable. Some improvements may come from the fact that I much more rested because I haven't been working these last weeks: I took unpaid leave. But I took it before the dx, because I could not STAND to work any longer. Here it is:

BRAIN FOG: this is to me the most important and the clearest indicator. I am much more alert, I wake up in the morning feeling human (ie: rested, more or less) and capable of thinking clearly. I can study, read, absorb things much more easily. Most of all, I recovered the ability to PLAN and the zest for things: I find I have one million projects of stuff I want to do, and I can see a path to do them. In the last months, planning and organizing things was very tiring and I did it hesitantly; I often did things that I KNEW I liked, but with no great joy and wondering why to put all these huge efforts (so they felt) in enterprises which I did not really enjoy after all, because it was so confusing and tiring (lessons, writing, reading, travelling...)

FATIGUE/ENERGY: I mean physical fatigue. I find myself doing every day a quantity of stuff (in and out, shopping, cooking, doing chores, studying, meeting people), much more than I could do before, and most of all, I reach dinner time and I am still not tired (whereas before I fighted with sleepiness and tiredness and a general feeling of I-can't-make-it all day long).

VISION. I am myopic, something totally apart from celiac disease. However I had been having difficulties in focussing and generally more blurry vision in the last few years, and my eye doctor insisted my vision was the same as before (she said after 40, your brain finds it more difficult to focus). Now - and it is not just wishful thinking - but apart from the episodes I quoted, my vision is clearer. more defined, etc (I can measure it for instance from the ability to read the lettering on posters around the house from the same positions)

JOINTS AND STIFFNESS - I had in November a whole month of headache, every single day. I then understood my jaw muscles were giving me terrible tension headaches. My dentist had given me a bite to wear at night like five years ago but I actually started wearing it only in the last months, and I could not understand why my jaws were suddenly locking up. Again: problem much better (although it's still sore in the morning but nothing like before)

BOWELS: of course. Apart from the episodes, immensely better (I have to be careful of lactose however or gas and gas pains crop up again; If I don't get lactose, I'm ok)

SKIN - I did not have DH. However (or am I dreaming?) my skin feels softer and more compact.

DEPRESSION, ANXIETY have lifted. I am, however, very emotional, often thinking of people I've lost, crying a lot: but it feels ok. I mean, I cry and then I get it over with and do something else. It feels almost as if I'm MORE emotional than before, more open as well. Which brings me to

LIBIDO - has anybody's else libido been perking up after going gluten-free? MIne definitly has. Since I have more energy, it's obvious but I guess also my brain receptors are working better in those areas as well.

I find I do not want to underline too much these things to people. First of all, how can I make them believe me? Secondly, I'm afraid it will all disappear and instead of improving more and more I will start going back. Better not to defy the gods. But here people will believe me - and they will understand.

a.

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I have been off gluten for three months now. I have found in the first month, I had very bad withdrawals, i.e. all my symptoms of fatigue, bloating, etc. got much worse.

I have not found an increase in libido, it is still very low. I no longer have muscle pain; however, I still have bad gas. I have just developed a new kind of low grade bloating (I think I may be allergic to dairy, I will find out today). My fatigue too is better; I would say 70% of a normal person.

I regards to people not believing you, as you said earlier I think too people do not believe it because it is a fad. However, some people, such as people I know (in-laws) do not believe there is such a thing, in fact, they do not really even believe in food intolerances (weird), even though it is scientific; but they claim it is not. People just choose to believe what suits them, but if they truly care about you they will believe you.

I also can focus better, and find I get a lot more done at home, than I did before and no longer am I so tired that I have to stay in bed (nor have as much pain). I no longer get leg pain.

Cheers to your success! Keep up the gluten free life!!!!

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      The following link might be helpful for others experiencing simlar psychosomatic issues with doctors. Although it's only for psychiatrists, I think it should be for all doctors! http://www.psychsearch.net/complaints/ The neuropsychiatrist I saw might fall into this category? I can checkmark:

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    • celiac disease is psychosomatic
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    • celiac disease is psychosomatic
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    • celiac disease is psychosomatic
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