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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity

Newbie Here - Dr. Thinks It Is Celiac Disease

4 posts in this topic

Hello - this is a great website - I have been reading up a bunch in here. My problems go back 10 years - I was having digestion issues - constipation and indigestion and went to the gastro. I was dx'd with IBS-C and put on Nexium and back then Zelnorm and after 6 months of being treated I felt better. I was not told to stay away from certain foods but pretty much anything with bread or pasta in it bothered me and now it's all starting again.

A year ago I was dx'd with hypothyroid and am on .075mg Levothyroxine for that. It came back in my bloodwork and I was losing weight and had hairloss. Still had tummy troubles but attributed it to stress and eating poorly. I started again with tummy troubles over the summer - more weight loss, I'd get bloated and gassy & constipated after eating pizza, breads or pastas which I love.

I was sick all through the hoidays as I was eating so much stuff - stuffing, breads, pastas, pizzas, etc. And the days I felt very ill, I just drank water and did not eat - I had no appetite.

3 weeks ago I said enough is enough and I started a food diary. I wrote down everything I ate. There were days where I wanted to cut out the breads and pastas and I did. I can tell you on those days I felt much better. The constipation was so bad I had a chronic low back ache but the days I didn't eat this stuff I felt good.

Also to help with the constipation I am taking Magnesium Oxide and it helps me go - I can go every day now but still feel like I can't "finish".

So today was my gasto appointment. She was glad I kept a food diary. She took my weight and I lost 2 more pounds since Christmas. I can't afford to lose anymore as I am now at 96 lbs at 5 feet tall. She said I have a ton of air in my belly and could hear it and feel it. They want to do a colonoscopy to rule out polyps and I am approaching 50 years old. But she also said she wants to do the blood test for the Celiac but I would have to eat and get sick again. We aren't doing that until after the colonoscopy on 2/15. I don't want to be sick for that. I did stop at the store and I bought Align and I also bought some gluten free ensure drinks to put on some weight. She agrees that I have many symptoms of Celiac and to stay off the gluten and report back weekly how I feel.

Guess I am going to be doing a ton of reading in here about foods and reading lots of labels at the stores. How do I tell if gluten is in makeup? I don't wear much but love my lipsticks.

I look forward to learning a lot in here.

Kim :)


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Welcome Kim!!

Your are correct -- reading as much as you can and asking questions is the best way to ease a very tough transition.

Is it possible to add an endoscopy to the colonoscopy? Sometimes doctors don't think of it and it is easier to get both done at the same time -- one sedation is better than two.

Did you have your blood tests?

tTG - both IgA and IgG


DGP - both IgA and IgG

Total IgA

If not, don't remove gluten quite yet -- removing gluten stops the immune reaction that is tested for in the celiac antibody panels. Once the blood tests are complete it is wise to remain on gluten until endoscopy is complete. When ALL testing is complete - then remove ALL gluten.

Hang in there -- oh the lipstick -- I'd start with emailing the manufacturer of your favorites -- you can wait on other products as you don't eat much eye make-up ;)


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Welcome Kim! Don't worry too much about being sick for the colonoscopy. They give you a clean out mixture to take the night before that will get everything clean as a whistle by the next day. Lisa is right, the endoscopy is usually used for celiac testing. they take 5 to 8 small biopsy samples for review at a lab. They check them for villi damage. The blood tests should be done also and they can be done anytime before starting the gluten-free diet. No need to wait for the endoscopy for that. You could also ask for a vitamin and mineral levels test. Celiac can cause malabsorption of vitamins and that is another possible indicator of celiac. Plus it's good to know if you are low on certain vitamins so you can work on getting those levels up.


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Lisa gives great advice. The upper endoscopy is how many celiacs are diagnosed, besides the blood tests she listed. I think a minimum of eight biopsies is recommended for accurate testing. For the blood tests, if you are eating gluten at all, even periodically, I would request getting those labs done this week; the longer you are off gluten, the more likely it is that a false negative result will occur in your lab work, and the harder it will be to get an accurate test. If the gluten is hurting you, try to eat it in the evenings so you can sleep (hopefully) through most of the discomfort.

There are a bunch of gluten-free lipsticks and lip glosses out there. I'm a fan of Bert's Bees... I like the smells.

Also, you might want to make sure your thyroid llevels (free T4 and T3, TSH) are good for you. As you know, when you go hypo it slows your metabolism and digestion and causes some serious constipation. I know thyroid treatment seemed to help my "C".

Best wishes to you, and welcome to the board. :)

Oops, editted to add that I posted at the same time as Paul so I repeated a few of his points.


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    • turkey
      Turkey is gluten-free as long as it is not stuffed. You can make a good gluten-free stuffing using gluten-free bread. Dry the bread first and add what ever spices or veggies you wish, but cook it in a separate baking dish because stuffing the bird with it can cause bacteria to breed. And gravy must be thickened with corn starch or potato starch instead of wheat flour.
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    • Positive & Increasing TTG -- questions re: testing & history
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A biopsy showed no damage, but my gluten intake at the time was limited to 2 cookies a day, or occasionally 2 cookies and a piece of pizza. Would this have been enough to show damage? I trialled going gluten-free for a few months, and didn't find a ton of relief... so assumed I was just FODMAP intolerant... however I was eating lots of oats and lactose that whole time, which I have subsequently identified as major triggers... not to mention just lots of gluten-free junk food. Wheat was obviously a significant gas trigger since this hit, but that seems typical for gut illness in general. Since my major surgery and the continuation and worsening of symptoms, I've connected with an internist who has again and again pushed me towards eating wheat as a method towards weight gain and healthy non-anxious eating. 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Sorry for all the talk & questions, but I'm in an incredibly challenging place right now, my head is just swimming and swimming, and any thoughts would be greatly appreciated!   Bloodwork Current, after six months of a heavy-gluten diet = Tissue Transglutaminase Ab IgA ---18.0 ---- <12.0 U/mL = normal
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      6 months ago = Tissue Transglutaminase Ab IgA ---13.0 ---- <12.0 U/mL = normal
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      2012, prior to negative biopsy = Tissue Transglutaminase Ab IgA ---24.0 ---- <20.0 RU/mL = normal
      Weak positive anti-TTG. Consider the possibility of celiac disease - a small bowel biopsy may be required.  
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