Newbie Here - Dr. Thinks It Is Celiac Disease
Posted 22 January 2013 - 10:13 AM
A year ago I was dx'd with hypothyroid and am on .075mg Levothyroxine for that. It came back in my bloodwork and I was losing weight and had hairloss. Still had tummy troubles but attributed it to stress and eating poorly. I started again with tummy troubles over the summer - more weight loss, I'd get bloated and gassy & constipated after eating pizza, breads or pastas which I love.
I was sick all through the hoidays as I was eating so much stuff - stuffing, breads, pastas, pizzas, etc. And the days I felt very ill, I just drank water and did not eat - I had no appetite.
3 weeks ago I said enough is enough and I started a food diary. I wrote down everything I ate. There were days where I wanted to cut out the breads and pastas and I did. I can tell you on those days I felt much better. The constipation was so bad I had a chronic low back ache but the days I didn't eat this stuff I felt good.
Also to help with the constipation I am taking Magnesium Oxide and it helps me go - I can go every day now but still feel like I can't "finish".
So today was my gasto appointment. She was glad I kept a food diary. She took my weight and I lost 2 more pounds since Christmas. I can't afford to lose anymore as I am now at 96 lbs at 5 feet tall. She said I have a ton of air in my belly and could hear it and feel it. They want to do a colonoscopy to rule out polyps and I am approaching 50 years old. But she also said she wants to do the blood test for the Celiac but I would have to eat and get sick again. We aren't doing that until after the colonoscopy on 2/15. I don't want to be sick for that. I did stop at the store and I bought Align and I also bought some gluten free ensure drinks to put on some weight. She agrees that I have many symptoms of Celiac and to stay off the gluten and report back weekly how I feel.
Guess I am going to be doing a ton of reading in here about foods and reading lots of labels at the stores. How do I tell if gluten is in makeup? I don't wear much but love my lipsticks.
I look forward to learning a lot in here.
Posted 22 January 2013 - 10:37 AM
Your are correct -- reading as much as you can and asking questions is the best way to ease a very tough transition.
Is it possible to add an endoscopy to the colonoscopy? Sometimes doctors don't think of it and it is easier to get both done at the same time -- one sedation is better than two.
Did you have your blood tests?
tTG - both IgA and IgG
DGP - both IgA and IgG
If not, don't remove gluten quite yet -- removing gluten stops the immune reaction that is tested for in the celiac antibody panels. Once the blood tests are complete it is wise to remain on gluten until endoscopy is complete. When ALL testing is complete - then remove ALL gluten.
Hang in there -- oh the lipstick -- I'd start with emailing the manufacturer of your favorites -- you can wait on other products as you don't eat much eye make-up
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE -- probable cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
Celiac.com - Celiac Disease Board Moderator
Posted 22 January 2013 - 02:12 PM
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul
Posted 22 January 2013 - 02:17 PM
There are a bunch of gluten-free lipsticks and lip glosses out there. I'm a fan of Bert's Bees... I like the smells.
Also, you might want to make sure your thyroid llevels (free T4 and T3, TSH) are good for you. As you know, when you go hypo it slows your metabolism and digestion and causes some serious constipation. I know thyroid treatment seemed to help my "C".
Best wishes to you, and welcome to the board.
Oops, editted to add that I posted at the same time as Paul so I repeated a few of his points.
"Acceptance is the key to happiness."
ITP - 1993
Celiac - June, 2012
Hypothyroid - August, 2012
Celiac.com - Celiac Disease Board Moderator
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