Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Feel Like Cheating
0

22 posts in this topic

I am about to have my year anniversary of being a celiac/ being gluten free. I have never felt like cheating but as this anniversary gets closer part of me wants to just cheat. Please talk me out of it! Give me statistics or articles or anything!

0

Share this post


Link to post
Share on other sites


Ads by Google:

Chances are you'll have a much stronger reaction after being off of it for a year. :( Then you'll be wondering why you just did that temporary sensation for a week of brain fog, nausea, heartburn, & extra bathroom trips.

Long term cheating means that you are at much higher risk of neurological and brain damage... imagine gluten antibodies running around in your brain, and the ensuing chaos.... guarantee you wouldn't want to spend years and years trying to recover slowly from that. :ph34r::(:wacko: Or, then there is the bone loss, and tendon inflammation and damage which messes up your joints, so you can spend decades doing physical therapy every day so you can pass for "normal" and walk without too much discomfort - if you always wear heavy, supportive footwear. High heels ? Fugggetaboutit - balance is permanently off. Don't forget a fresh breakout of acne can hit every time you eat gluten. Or that thyroid disease is always lurking, ready to make your metabolism so slow you are always gaining weight at the sight of a rice cracker.

Don't forget the return of kidney problems from the kidneys filtering extra calcium out of your blood. Stones- what fun! <_<

Really, why don't you just plan to eat something really, really high quality and good that is not gluten.

1

Share this post


Link to post
Share on other sites

After a year, it won't taste the same anyways. Soooo not worth it.

Think icecream or m&m's or caramel popcorn or nachos with salsa, cheese and guacamole. Who needs the wheat!!

0

Share this post


Link to post
Share on other sites

My one year gluten-free anniversary also happens to coincide with my birthday. (Give or take 2 days.) For my birthday before going gluten-free I indulged in red velvet cake. For my birthday this year I found a gluten-free bakery and bought a half dozen red velvet cupcakes. In my defense, I let my husband have one. I have also taken up one of my favorite passions again, baking. I now have a stash of cookies in the freezer leftover from Christmas that I can indulge in any time, one at a time. These things keep me from cheating.

In the year since gluten-free I have not purposely eaten gluten a single time. I have accidentally. Over time my reaction has gone from bad, to worse, to life altering for weeks at time. It isn't the hours in the bathroom that bother me, or the day following that is filled with dread knowing what is coming. It is the following 3 or 4 days or week that I sleep it off for 16 or more hours a day. The weeks following of nearly unbearable all over pain, sometimes so bad I can't tolerate the touch to put lotion on after a shower or even the water from the shower. Stumbling around like a drunk for a month with ataxia. Covered in bruises all over my body, from fresh and purple/black to old and green, sometimes overlapping each other, from bumping into so many things. I stop talking in the middle of sentences because my fog and memory are so bad that I forget that I was having a conversation. This is at its absolute worst for 2-3 weeks, then slowly subsides and after about 6 or so weeks is gone enough that I can function more or less like a human being.

This isn't some sob story about how much life sucks if I get glutened. This is to point out that there is no food on earth, nothing, not even red velvet cake, not even my grammy's cookies, that is worth that. And I'm just talking the immediate effects. That is without the risk of AI diseases or the thought that one day years from now if I happen to get cancer would I look back on the day I willingly ate gluten and forever wonder if that was the straw that broke the camel's back? Was that the one too many? Was that the gluten that gave me a death sentence? I don't want to live with that. Do you?

0

Share this post


Link to post
Share on other sites

Nope. Not going to trot out my list of AI diseases or ramifications of gluten exposure or bring out the doom and gloom flow charts with graphs and such :D I'll save those for another time.

I am sure you know by now why cheating is not a good idea. I presume you are a grown-up and if so, this is totally your decision, hon.

Instead, I'll say this: I take every precaution to avoid CC because of what celiac did to me, so I find cheating to be just plain stupid.

There is nothing worth five or six bites of some delicious goodie I can recreate myself that is gluten free and safe--only to endure weeks of feeling like total sh*t and having burning pain in my joints, bones, muscles nerves, hair loss, insomnia, heart palps, migraines, brain fog and ataxia etc, not to mention the time spent in the loo.

Chances are, you'll feel like crap.

But, if you escape unscathed, promise me you will not brag about it or mistake it for a green light to do it again, okay?.

And I promise that if you feel like crap, just this one time I won't say "I told you so". Most members know how much I am (unapologetically) anti -cheating.

oh..... I am really curious.....what gluteny food is so tempting that it is calling you to the dark side? :ph34r:

0

Share this post


Link to post
Share on other sites




Don't do it. I did in 2007, and ended up with IBS/GERD. Wheat is not worth anything.

Make progress, be well and STAY well. :)

0

Share this post


Link to post
Share on other sites

Stay strong and celebrate your year anniversary with a big pile of gluten free nachoes!! :D

0

Share this post


Link to post
Share on other sites

I am about to have my year anniversary of being a celiac/ being gluten free. I have never felt like cheating but as this anniversary gets closer part of me wants to just cheat. Please talk me out of it! Give me statistics or articles or anything!

For me, I never get far enough to even worry about serious complications because the immediate effects are enough to keep me from ever cheating. I never even have any desire to cheat...not on the radar. But, then again, being up all night, hurling until I think my stomach will come up, does the trick for me! :o

Think of what you are craving and find it's gluten-free counterpart and indulge yourself. :)

0

Share this post


Link to post
Share on other sites

I don't get it.

We don't think that an alcoholic celebrating a year sober is ok to go out and drink. We don't think a serious diabetic is ok to go out and eat sugar their whole birthday long. We don't think it's ok for someone allergic to peanuts to go eat a peanut butter cookie on their birthday because it's their favorite.

I mean "Yay! I want to celebrate doing a super great job by totally screwing it up! Yay!" ???? It doesn't make any sense to me.

Oh, I get the the desire to stop watching every little ingredient. The desire to go back to old comfort foods you once knew and loved. The desire to be "normal" compared to your gluten-eating peers.

But you can't go back in time.

0

Share this post


Link to post
Share on other sites

The best way to celebrate would be to indulge in some really good gluten-free goodies. Bake yourself a cake, make something wonderfully delicious that you wouldn't usually have, or find a good bakery that will do it for you, but keep the gluten out of it. You don't need a hangover for a week.

(Now I have the urge to bake chocolate cake... great...)

Congrats on making it through a year!

0

Share this post


Link to post
Share on other sites

How bad is cheating?

0

Share this post


Link to post
Share on other sites

I am about to have my year anniversary of being a celiac/ being gluten free. I have never felt like cheating but as this anniversary gets closer part of me wants to just cheat. Please talk me out of it! Give me statistics or articles or anything!

I can't believe it's an option for you. I had one small bite of what was supposed to be flour less fudge and I was sick in an hour. I can't imagine what would have happened if I ate a regular piece. I remember when I was first diagnosed my doctor telling me I could cheat for special occasions. NOT an option. If you decide to do it, I wouldn't do it on your special night because it may just ruin it. Good luck!

Order the flourless cake at P.F. Chang's with raspberry sauce and strawberries if you are looking for a special dessert to celebrate your special occasion. It is so goo you can't tell is gluten-free.

0

Share this post


Link to post
Share on other sites

If I were diagnosed with a fatal disease and told I had a week to live, I would fly to New Orleans and pig out on anything I wanted. But until that happens, I will stay home and pig out on as many gluten-free options as I can find and enjoy every bite.

0

Share this post


Link to post
Share on other sites

Did that work? Want more horror stories? We got plenty!

1

Share this post


Link to post
Share on other sites

I did decide not to cheat. Its not a certain food i want, its just all the constant checking. It really gets old. The holidays were really hard, but i got through them. I have never purposely cheated and i don't think i will anytime soon. I have been doing so much better and i would like to keep getting healthier.

1

Share this post


Link to post
Share on other sites

big-party-smiley-emoticon.gif

Good for you!! You put your health first. We're so proud of you!

Hon, I think we all get the "sometimes it gets old" part. We really do.

Personally, I hate the lack of spontaneity of just dining out wherever/whenever I want to, especially

because we like to travel.

But there is nothing like feeling good and not being desperately ill 24/7 for years..

Keep up the good work. And congratulations on your first "rebirth-day"!!

hugs, IH

0

Share this post


Link to post
Share on other sites

Good choice :)

I don't like the thinking and. checking part of either. I have been eating wholefoods the last 3 weeks, and that has cut down the checking a lot. Our spontaneity is a bit different, and we are masters of the picnic now, even in winter, we just have to be creative about venues. We also entertain at our home more, which we enjoy especially

Keep it up :)

0

Share this post


Link to post
Share on other sites

Woohoo! Best decision. It does get old. I had a pity party early in the winter. I whined about everything to my husband, about none of this is fair, about how stupid it is that I can't even eat a freakin mint because it could have who knows what in it. I just want to be able to wake up one day, say hey lets do this, leave the house and go. But no, I have to plan everything or starve to death while I'm gone. <_<

You're right, it is so stupid and unfair! It is okay every once in a while to stamp your food like a petulant toddler and say so too. Then I always go indulge in a cupcake to get over it and I forget what my problem was. :lol: And you should totally get a cupcake to celebrate anyway, since as IH pointed out, it is your rebirth-day! (I got ripped off... my rebirth-day and birthday are at the same time.)

0

Share this post


Link to post
Share on other sites

And you should totally get a cupcake to celebrate anyway, since as IH pointed out, it is your rebirth-day! (I got ripped off... my rebirth-day and birthday are at the same time.)

poor babe. Didn't we celebrate your birthday enough? okay, here's one for your re-birth day too.

happy-birthday-fireworks.gif

0

Share this post


Link to post
Share on other sites

poor babe. Didn't we celebrate your birthday enough? okay, here's one for your re-birth day too.

happy-birthday-fireworks.gif

psh, it was a joke. :P Let the Jackiebear have the happy birthday. If it turns out as an excuse to have 2 a year, that much better!

0

Share this post


Link to post
Share on other sites

Great decision! :)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,640
    • Total Posts
      921,545
  • Topics

  • Posts

    • Hi not diagnosed celiac, Welcome to the forum! Your doctor should be sent to remedial celiac disease training.  Since that probably won't happen, I suggest you find a new doctor.  He doesn't know what he's doing when it comes to diagnosing celiac disease. You should not have gone gluten-free before completing all celiac disease testing.  The testing for celiac disease depends on the immune reaction being active.  Removing gluten before testing removes the antigen that causes the immune system to react, and lowers the chances of getting a correct test result dramatically.  The University of Chicago celiac disease center recommends: ******************************************** http://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/ Prior to blood testing we recommend 12 weeks of eating gluten. Prior to an endoscopic biopsy we recommend 2 weeks of eating gluten. In the case of a severe reaction to gluten, a medical professional may opt to shorten the 12-week challenge and move immediately to an endoscopic biopsy. May, 2013 ******************************************** So you will need to go back to eating gluten before your endoscopy.  That may cause worse symptoms than before when you were eating gluten.  So it would have been better to do all testing before going gluten-free. Can you search for a celiac disease support group in your area?  They exist in many parts of the USA and world.  They can be a good place to get a knowledgeable doctor recommendation.  There is also a doctors subsection of this forum where you can search to see if any doctors in your area were recommended.
    • I get these crazy cravings for some things I can not eat anymore. Not only am I diagnosed with celiac but I also have a allergy to corn, olives, sesame, peanuts, and intolerance to yeast, soy, dairy, and a very low tolerance for carbs/sugars, Top it off with I can not digest meats or egg yolks, they just give me the burps and come up later.
        To deal with these I find myself turning to Republic of Teas (They have a great desert tea line up all certified gluten-free) and sweetening them with monk fruit extract, or stevia. And I find myself making Puddings bases that I use for shakes, dips, and ice-cream for meals. The puddings are normally a blend of cashew, or almond milk with a thickening agent like agar agar, pectin, or knoxx gelatin, blended with a sweetener like xylitol, swerve, stevia, monk fruit or a combination. And flavored with Lor Ann Oils (all gluten-free certified and you can find the kosher ones listed as such) super strength flavors or fountain syrups to match something I can not eat normally a combination of two flavors (Strawberry Cheesecake, Banana and Carmel, Cookies & Cream, etc) Then I add a fat that matches best, like almond butter, cashew butter, hemp butter, ground flax seed, coconut flour, chocolate, Pumpkin seed butter or a combination) These bases are normally blended up and consumed with 1-2 scoops of protein powder and eaten with steamed vegges as a side dip or loaded into a ice cream maker for a desert after my meals.      Also found myself making desert soups....like a pumpkin soup that taste like pumpkin pie. I am sure we all have our little quirks but this is one of mine for getting that sweet craving taken care of. Most premade items are off my list due to the allergies and it seems most companies use the oils, starches I am allergic to as non stick or thickening agents, Even the semi safe ones tend to put way to much sugars in them and I find myself only being able to nibble . There is also my little binge issues with almonds, pumpkin seeds, and, cocoa but that was explained to me as normal And on my most craving for peanuts I have found sancha inchi powder to work great, The Powder itself taste like the girl scout peanut butter cookie sandwich from my childhood, And is great mixed with a bit of almond milk into a butter or used in baking and smoothies. Before this I have been making Artisan blends of almond butter for years and even made a market selling them to pay  for my own consumption. Baked goods wise I have a bunch of recipes I make for others and sell at markets and this allows me to nibble on a sample to check it, as most contain a bean or gluten-free Harvest Oats/Flour in them and the carbs from that and the coconut sugars bother me. Still helps with cravings there, I only have 2 recipes that sell good and are safe for me to eat full servings of but are so expensive as they use almond and coconut flours, low sugars/xylitol and are paleo that I only can afford to make them once a month. Posting to hear about some odd and out there ways others deal with substitutions and cravings. Please do not bash mine as odd as they might be as they keep me from going crazy. (Yes I know DROP THE OATS, fact is I only get them when tasting stuff and they are gluten-free Harvest, the only ones I have never gotten glutend with)  
    • After suffering pretty much all year with one illness after another I've finally managed to get a diagnosis and it turns out to be celiac. After my doctors consistently failing to even consider the possibility it might be that (as opposed to "IBS" or "stress") I kept pushing for the Iga TTg test and it was off the charts with a score of >128... may as well fail it in style I guess. So here I am at the start of what feels like the end of my life as I know it. Been doing nothing but reading for the past week and frankly it's terrifying. Here's a few things that are going round in my head and I'd really appreciate your thoughts with. Apologies if it's a bit of an essay  Diagnosis I'm still furious at my doctors for not even entertaining the thought that celiac could be the root cause of all my ills. Given the blood test is so simple it feels almost negligent that they don't run this right at the start to rule it out. Instead I got subjected to poisons like Omeprazole which made me even more ill, whilst being told the physical symptoms were all in my head. Just as well I knew better and kept hitting up Google until my self-diagnosis was proved correct... to think these people get paid highly to be so incompetent makes my blood boil. Does feel good having outwitted the so-called professionals though. Seems 9 months is comparatively quick from symptoms to diagnosis compared to some others that have gone years with the problems so could be worse I guess. Food and diet I'm male vegetarian (non-negotiable) which makes this even harder as so many of my protein sources are now ruled out. Seems many with celiac were having trouble losing weight whereas I'm in the opposite situation. Already lost best part of a stone in the past few weeks and it's becoming noticeable now. The MyFitnessPal app reckons I need 2600 calories a day to maintain \ gain weight - no idea where that's going to come from. On top of that I read sites like Gluten Dude where even the Gluten Free foods are seen as poisons and going on extreme diets like Paleo \ SCD are the only real way forward. Again being veggie makes that practically impossible and if I'm unlucky enough to end up with the dairy issues as well I'm well and truly stuffed. Right now I'm trying the gluten-free Quorn products to see how I go, as well as more eggs etc. Porridge has been my go-to breakfast in the mornings for a while after I cut out bread whilst self-diagnosing but depending on where you read even that's a potential problem (currently using gluten-free porridge oats and seeing how it goes) Seems many gluten-free people have to go right back to basics and cook everything from scratch. That's a problem for me as I'm utterly hopeless on that front and time doesn't permit waiting hours just to prepare one meal. Seems nigh-on impossible to do day-in, day-out. Health Rightly or wrongly right now I see this diagnosis as a death sentence long-term. Looks like it brings other associated illnesses with it and this particular article really scares me: http://scdlifestyle.com/2012/03/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/ I've only really had noticeable symptoms for the past year or so but wonder how long this has been going on for and what damage has already been done. All seems to have started from when I turned 30 (knew I was dreading that age for a reason) and right now I wonder how long I'm going to last before the really bad stuff starts. One of the other illnesses I'd considered as a possibility before getting diagnosed was Hashimoto's Thyroiditis; now it seems that's closely linked with Celiac so may not be out of the woods with that yet either. Just seems to be one big list of illness all triggered from the same point One positive change I've noticed thus far since cutting out gluten is that bloating seems to have gone down and bowel movements are better. Still getting headaches and muscle twitching, which could be as much a withdrawal symptom from gluten as anything else.  Some sites were suggesting stopping exercise whilst withdrawing but I can't face that as it's the only thing keeping me going at present. Again will keep going as-was and see what happens. Then to top it off it sounds like the next step is the biopsy - I'm scared of being put out for the procedure as a member of family went into hospital a few years back for something supposedly routine and never came back out. From what I've been told it's important to have done though as it shows just how broken the villi are so another thing to worry about in the meantime. I've just read on another thread that you have to be on gluten to have the test, that's another kicker after having started to cut it out the diet. With such a high blood test Iga-TTg score isn't it almost certain that celiac is the cause and the endoscopy in this case is just confirming levels of damage? OK means I can have a final blow-out eating all the "bad" foods but no doubt with all the side effects that come with it... Social life Seems like despite there being some gluten free options in certain restaurants (granted better now than years ago) I'm going to be hugely limited in food options. Either sitting on the side looking on or just plain not able to go out much anymore. Already had the first hitting-home moment watching colleagues eating pastries that were brought in while I just have to look on... then it dawns that this is never going to get better... urghhh Family life I'm really struggling to accept this lifelong illness and loss of health and it's taking a toll on the people around me at the moment. They won't be going gluten-free so will have to take my chances with the mixed kitchen environment; already gone with split toasters etc. so can't do much more than that. Dating Basically seems game over on that front, unlike many who are diagnosed with understanding partners \ spouses I'm still in the dating game, which is judgemental enough as it is without all the complications that the gluten issues bring. I'm reading even kissing someone with lipstick \ make-up is apparently a big no-no... once any date hears that they won't be coming back... forever alone status confirmed is how it looks right now. Overall feelings I still can't quite figure out if this illness was in me all along and just hasn't flared up enough to notice until now or whether the extreme stress I've been under for the past year or so has triggered it. If the second scenario is correct I can't stop thinking about the events that all led up to this almost year-long bout of ill health and life-changing diagnosis. Can celiac be brought on by stress alone or realistically was I always a ticking timebomb just waiting to be set off? For every person I see that's had a positive change after cutting out gluten (and getting by with reasonably achievable adjustments) there seems to be 10 others with horrible side-effects and long-term complications. Right now the future feels rather bleak - like all hope just been taken away. Help???
    • It sounds like you're doing great. That's amazing that your anxiety has decreased like that. You're obviously doing something really good for your health. With the other things I'm sure they will get better in time. After I gave up gluten I had a bad year but overall it got better. Things like anxiety and insomnia massively improved over time with being gluten free. However, going Paleo (which you are on your way to with the no dairy too) really helped my anxiety, as did running and self-taught acupressure. In particular I found processed gluten free foods were awful for my mood. I know you have to find your own way but I really want to encourage you to see how you feel without that if you haven't already. I also can't afford therapy but when I did have it, that helped too but just being well, gives you the chance to sort your own thoughts and feelings out even without a therapist. Good luck
    • Thank you so much guys. Reading that last response and those from forum members who seemed to be mind-bogglingly sensitive to gluten at times helps me feel like less of a freak  Perhaps worse than the symptoms themselves was my fear that I'm the only person on earth who has gone through this and that if it continues, I will end up with all of my friends and family washing their hands of me because it would look to them like I'm the only one with this and so I must be crazy. It's really good to hear that the sensitivity can go down too. I've been holding onto this idea through the tough times, reminding myself that I also had really bad hayfever for a few years, and asthma at a different time and they both got better.  It has been a whole month since I had a bad reaction to gluten. It has also been two weeks since I even had a small reaction and I'm feeling SO much better. I'm still going to take every precaution I can but this feels worlds away from how it was. At my most risk averse, I had a day on holiday where I only ate bananas and avocados because I could eat them without them having been touched by human hands, even my own! (This was straight after getting sicker and sicker and hunting down what it was that made me ill. I found the refill bottles of soap in the house where I was staying and read that they had wheat in them - not an airborne reaction I imagine but when I washed my hands to prepare food it was probably contaminating my food. Plus because I didn't speak the language, I couldn't be sure the new soap I bought was gluten free.) Now, I am still avoiding environments with lots of gluten and staying clear of grains, but I have reintroduced rice using the food challenge method as directed by my dietician (since I understand that rice is, according to Dr Fasano, the lowest risk of gluten contamination of all the grains) and I am building my weight back up. My Paleo+Fasano diet has been assessed by a registered dietician to include every nutrient and micronutrient that I need so I guess having a really good diet is helping too. My husband has been able to see also that the last time he cooked gluten in the house was the last time I got ill. So it is reassuring for him to see that the sacrifice he is making is making such a difference to me. I also took the advice about new cooking utensils - thanks! I have my fingers crossed for me. I want this better health to continue but right now I'm happy to know that there is a break in the clouds and to know that I can feel like me again. A lot of the steps I have taken to avoid gluten would be seen by some as over the top but I can say that for me, when I introduced these steps, that's when I stopped getting reactions and it's all worth it. Good luck to everyone, sensitive or not, who gets into a bad place with managing their reactions. Hang on in there!        
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,643
    • Most Online
      3,093

    Newest Member
    moojoo
    Joined