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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Does Anyone Feel My Pain?
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6 posts in this topic

I brought a steak with broccoli and cauliflower for lunch today, but all my coworkers are eating Burger King. I'm eating an expensive steak, but I'm craving that juicy greasy gluten and dairy filled cheeseburger!! Does anyone feel my pain? You never appreciate what you have until you loose it. Not that burger king is that great for anyone, but man it'd be nice to just stop at the corner fast food place every once in a while.....

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My husband and I live with his mother. Early in my diagnosis his mother brought home KFC and put it on the kitchen counter and the smell filled up the entire house. I cried like a toddler denied candy in the check out aisle. Not because it is good for me, but because I just wanted to be normal. Mostly now I get by okay. Last month I even drove my husband to KFC one night while we were out, went inside with him and waited with him for his food to be ready. I wasn't the least bit emotional about it. (Although I wouldn't get within a foot of any surface in the store, I wouldn't even touch the doors.)

It isn't healthy, but I do still indulge from time to time. (Although it has been a few months due to this stupid iodine crap.) I trot down to Wendy's, order me up some fries and a Frosty and enjoy. While it is the policy to always use a dedicated fryer, I still always put the cashier and the fry cook through a Spanish Inquisition type interrogation. It is a total double win, I get fast food and I get a fun afternoon of torturing poor innocent souls.

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Maybe order the burger with all the fixings without the bun. I haven't been there since being diagnosed but I go to Five Guys at least every other week and do just fine. : )

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Yep I hear ya. I feel the same way. It's hard but I would rather feel good. And I have some replacements for my faves.

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Just the other night we got chinese food.. I order from a healthier restaurant that has an entire gluten free menu and my husband orders from a regular place getting all his favorite appetizers - including my all time fav crab rangoons.. at my restaurant I can't have any appetizers there, just meals and the rice options.. so we sit across the table from each other eating our separate dinners and the crab rangoons looked SO good .. but I resisted, I felt good at the end of the meal NOT eating gluten but I understand the feeling too! :)

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How many of your co-workers wanted your steak? Monkey see (and smell), monkey WANT!

I always keep some exquistely naughty treat on hand for splurging after the let down of not getting some stupid gluten thing. (I better explain, some food treat like chocolate.)

I do order a bunless burger from Wendy's occasionally to get over junk food cravings too.

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    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
    • High Positive Test Results - Your thoughts please...
      With blood results like these, your husband most definitely has Celiac Disease.  The biopsy is just to check to see how much damage.  Keep in mind that even with high, high test scores like these, damage can still be patchy. Although I would be very surprised if they didn't find enough with numbers like these!  Thank goodness he was able to have a definitive diagnosis and reason for his symptoms!  Good luck!
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