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Does Anyone Feel My Pain?
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6 posts in this topic

I brought a steak with broccoli and cauliflower for lunch today, but all my coworkers are eating Burger King. I'm eating an expensive steak, but I'm craving that juicy greasy gluten and dairy filled cheeseburger!! Does anyone feel my pain? You never appreciate what you have until you loose it. Not that burger king is that great for anyone, but man it'd be nice to just stop at the corner fast food place every once in a while.....

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My husband and I live with his mother. Early in my diagnosis his mother brought home KFC and put it on the kitchen counter and the smell filled up the entire house. I cried like a toddler denied candy in the check out aisle. Not because it is good for me, but because I just wanted to be normal. Mostly now I get by okay. Last month I even drove my husband to KFC one night while we were out, went inside with him and waited with him for his food to be ready. I wasn't the least bit emotional about it. (Although I wouldn't get within a foot of any surface in the store, I wouldn't even touch the doors.)

It isn't healthy, but I do still indulge from time to time. (Although it has been a few months due to this stupid iodine crap.) I trot down to Wendy's, order me up some fries and a Frosty and enjoy. While it is the policy to always use a dedicated fryer, I still always put the cashier and the fry cook through a Spanish Inquisition type interrogation. It is a total double win, I get fast food and I get a fun afternoon of torturing poor innocent souls.

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Maybe order the burger with all the fixings without the bun. I haven't been there since being diagnosed but I go to Five Guys at least every other week and do just fine. : )

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Yep I hear ya. I feel the same way. It's hard but I would rather feel good. And I have some replacements for my faves.

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Just the other night we got chinese food.. I order from a healthier restaurant that has an entire gluten free menu and my husband orders from a regular place getting all his favorite appetizers - including my all time fav crab rangoons.. at my restaurant I can't have any appetizers there, just meals and the rice options.. so we sit across the table from each other eating our separate dinners and the crab rangoons looked SO good .. but I resisted, I felt good at the end of the meal NOT eating gluten but I understand the feeling too! :)

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How many of your co-workers wanted your steak? Monkey see (and smell), monkey WANT!

I always keep some exquistely naughty treat on hand for splurging after the let down of not getting some stupid gluten thing. (I better explain, some food treat like chocolate.)

I do order a bunless burger from Wendy's occasionally to get over junk food cravings too.

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    • Did your doctor check for SIBO, H. pylori, ulcers, etc. when he was obtaining biopsies to check for celiac disease?  
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    • It does sound like a Glutening and you are just a few months into the diet.  It might help if you read our Newbie 101 thread under the "Coping" section.   Here is some information about rice milk: https://www.verywell.com/is-rice-dream-gluten-free-562354 Many, many celiacs are often lactose intolerant temorarily or permanently if you are naturally genetically inclined.  When I am glutened, I lose the ability to digest lactose for a while.   Salad?  Great but it can be rough on a sore gut!  Think soups, stews, easy-to-digest foods that you prepare yourself until you feel better.  Did your folks give you salad after a bout of flu?  Or did you stick with jello and broth?  I am intolerant still after three years to garlic and onions (the lactose resolved, thankfully).  You have a leaky gut (Google zonulin and Dr. Fasano who is a leading celiac researcher to verify that this is true) and that means you can become intolerant to anything (hopefully, just temporarily).   If you are 100% sure that you have had no access to gluten....did you eat out lately?.....then see your doctor.  Remember, celiac disease symptoms can change.  And here is the biggie.....it can take weeks, months or years to heal from celiac disease.  Two months in is nothing, really.  Why?  It takes time to figure out the diet and time for antibodies to come down.  celiac disease is an autoimmune disorder triggerEd by gluten.  once triggered it can go on and on damaging your gut especially with repeated glutenings (accidental or through cross contamination). I hope you feel better soon!  
    • I concur! I literally feel your pain as well. Like, at the moment, lol. Did you have an endo to see inflammation or damage? I am close to begging my GI for carafate or something to coat and protect. How about testing your antibodies to see if they are still rising? I read somewhere here rice milk may not be a good option.  Folks here have also suggested to me to stick with whole foods. Limit processed. Especially stuff that is not certified gluten-free, like chex. I think small amounts of gluten are in processed foids and can add up. I too reacted to lettuce the other day like I was ingesting glass. My sibling  had a food sensitivity panel done and it came back positive for a few things he had been eating a lot of. He can now eat them, but had to cut them out of his diet. Lettuce is probably on mine.  I have been drinking carrot and pomegranate juice,  dandelion root tea with hiney, aloe water, lots of squash, fish. Mild, no garlic, no onions or hot sauce. No coffee. It sucks.  Inflammation can tick off other organs, you mention a "Pain below". Not exactly sure which side, but certainly call your doc Monday. Sooner if the pain increases.
    • You should see a GI specialist before you go gluten free.  They should do a upper endoscopy to check for celiac damage.  Colonoscopy won't show anything related to celiac.  Also no you should not feel worse on gluten free, you should feel better.
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