3 replies to this topic

[mamamonkey]

I have my follow up appt next Thursday with the GI. I haven't gotten to talk to her since I got the biopsy results (recorded message) and a message from the nurse saying "you have celiac sprue, continue your gluten free diet, but be strict". So, what questions should I ask? I am completely at a loss right now, other than a few. I am going to ask her if I need to be taking any supplements (other than calcium and the magnesium/B2 that the neuro wants me on) and about a bone density test to get a baseline since all the females in my family have osteoporosis.

I want to have a list written out prior to the appt so I don't forget anything. Help!

[mushroom]

If you have not already done so, you should have all your vitamin and mineral levels checked; A, B's, D, E, K; calcium, potassium, zinc, copper, magnesium, iron/ferritin, and yes, a DEXA scan with a family history of osteoporosis - which may well mean a family history of celiac and low Vit. D. You should also get your thyroid function checked, and not just TSH but also free T3, free T4 and TPO antibodies.

[mamamonkey]

Just had thyroid function checked about 2 weeks prior to dx. I have a thyroid nodule (which is a cyst), so it gets checked frequently anyway. I also already take 4000 IU of vitamin D every day. I'll add all the others to my list.

[mushroom]

I also already take 4000 IU of vitamin D every day. I'll add all the others to my list.

You might just as well recheck the D to make sure you are absorbing it.