Jump to content





   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Ads by Google:
Celiac.com Sponsor:                                    


Photo
- - - - -

Follow Up Appt After Dx


  • Please log in to reply

3 replies to this topic

#1 mamamonkey

 
mamamonkey

    Community Member

  • Advanced Members
  • PipPipPip
  • 29 posts
 

Posted 23 January 2013 - 02:21 PM

I have my follow up appt next Thursday with the GI. I haven't gotten to talk to her since I got the biopsy results (recorded message) and a message from the nurse saying "you have celiac sprue, continue your gluten free diet, but be strict". So, what questions should I ask? I am completely at a loss right now, other than a few. I am going to ask her if I need to be taking any supplements (other than calcium and the magnesium/B2 that the neuro wants me on) and about a bone density test to get a baseline since all the females in my family have osteoporosis.

I want to have a list written out prior to the appt so I don't forget anything. Help!
  • 0

Hi, I'm Melissa

Mostly gluten-free 5/12 in an attempt to help migraines

Surprise! All my GI symptoms resolved (that I was blaming on not having a gallbladder)

EGD 1/13; biopsies showed inflammation suggestive of partially treated celiac

Bloodwork negative (of course, I was gluten-free)

GI dx'd celiac 1/13


Celiac.com Sponsor:

#2 mushroom

 
mushroom

    Mushroom

  • Advanced Members
  • PipPipPipPipPipPip
  • 9,448 posts
 

Posted 23 January 2013 - 03:16 PM

If you have not already done so, you should have all your vitamin and mineral levels checked; A, B's, D, E, K; calcium, potassium, zinc, copper, magnesium, iron/ferritin, and yes, a DEXA scan with a family history of osteoporosis - which may well mean a family history of celiac and low Vit. D. You should also get your thyroid function checked, and not just TSH but also free T3, free T4 and TPO antibodies.
  • 1
Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

#3 mamamonkey

 
mamamonkey

    Community Member

  • Advanced Members
  • PipPipPip
  • 29 posts
 

Posted 23 January 2013 - 05:06 PM

Just had thyroid function checked about 2 weeks prior to dx. I have a thyroid nodule (which is a cyst), so it gets checked frequently anyway. I also already take 4000 IU of vitamin D every day. I'll add all the others to my list.
  • 0

Hi, I'm Melissa

Mostly gluten-free 5/12 in an attempt to help migraines

Surprise! All my GI symptoms resolved (that I was blaming on not having a gallbladder)

EGD 1/13; biopsies showed inflammation suggestive of partially treated celiac

Bloodwork negative (of course, I was gluten-free)

GI dx'd celiac 1/13


#4 mushroom

 
mushroom

    Mushroom

  • Advanced Members
  • PipPipPipPipPipPip
  • 9,448 posts
 

Posted 23 January 2013 - 07:51 PM

I also already take 4000 IU of vitamin D every day. I'll add all the others to my list.


You might just as well recheck the D to make sure you are absorbing it. :)
  • 0
Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator


0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: