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Accutane?
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My teenage son has tried the standard antibiotic and gel treatments for his acne and it isn't working well. Understandably, they don't want to continue the antibiotics. They want him to try Accutane. Does anyone know any studies about it being linked to the expressing of the Celiac gene ( causing Celiac disease)?

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Among the many nasty side effects of Accutane (liver disease, depression, headaches, etc) , it has been linked to AI bowel diseases such as Crohn's, ulcerative colitis and IBD (inflammatory bowel disease).

This is one article suggesting a link to it causing problems for people with celiac and possibly activating it.

http://accutanelawsuit-info.com/2011/05/accutane-side-effects-celiac-disease/

Don't they have any other alternatives for him. K? :(

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No. Accutane is the only real " cure". He has had the range of antibiotics they give and that can cause issues, too.

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My teenage son has tried the standard antibiotic and gel treatments for his acne and it isn't working well. Understandably, they don't want to continue the antibiotics. They want him to try Accutane. Does anyone know any studies about it being linked to the expressing of the Celiac gene ( causing Celiac disease)?

Please, please do not let him take Accutane! It can and does cause severe GI problems. There have been numerous lawsuits from patients who suffered severe illnesses caused by this drug. It should be yanked from the market.

Other problems with it, it completely dries up your oil glands, which is not always the cause of acne. It can affect tear production so your eyes get dry and that is permanent. You have problems with dry skin for the rest of your life. This is bad stuff and the medical profession lies about side effects.

Kareng.....I had acne before my celiac diagnosis and they pressured me into taking it. I refused after doing some homework on it. Good thing, because I have Sjogren's so the Accutane would have added to my dry eye problems and made them a lot worse. What really ticked me off was after being gluten-free for 2 months, my face cleared up completely and never have had a problem since. It was the wheat that caused my problems so are you sure your son doesn't have a wheat issue?

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Please, please do not let him take Accutane! It can and does cause severe GI problems. There have been numerous lawsuits from patients who suffered severe illnesses caused by this drug. It should be yanked from the market.

Other problems with it, it completely dries up your oil glands, which is not always the cause of acne. It can affect tear production so your eyes get dry and that is permanent. You have problems with dry skin for the rest of your life. This is bad stuff and the medical profession lies about side effects.

Kareng.....I had acne before my celiac diagnosis and they pressured me into taking it. I refused after doing some homework on it. Good thing, because I have Sjogren's so the Accutane would have added to my dry eye problems and made them a lot worse. What really ticked me off was after being gluten-free for 2 months, my face cleared up completely and never have had a problem since. It was the wheat that caused my problems so are you sure your son doesn't have a wheat issue?

We are thinking about trying the blue light treatments. They are not covered by insurance and will be at least $1000. But hub pointed out that he didn't need braces so we owe him at least $5000 in cosmetic procedures. :)

He eats a lot gluten-free. The time his skin cleared up without meds was when he was camping and never used his sunscreen. This makes us think the light treatment might be beneficial. He would continue his face gel that kills germs with it, I think.

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I would stay away from accutane I have 2 friends that took it and after finishing treatment they both became allergic to fragrances. one of my friends gets hives when she goes near/uses fragrances like lotions or candles, and the other gets a migrain and her skin itches even though she doesn't get hives. they also say that their skin is a lot more sensitive now as well.

I hope you find something that helps, my acne cleared up when I went completely gluten free.

Good luck

AP

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he may need a much more limited diet, Vit D. probiotics, digestive enzymes. Just acne, or perhaps 'acne inversa'?

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I took accutane in my late teens. All I can say is my health started going downhill after the treatment. I'm not sure if there is any connection, but I do regret my decision to take it.

Knowing what I know now, the first thing I would do is get all my vitamin levels checked and supplement where necessary. Don't take the doctor's word that everything is fine. Look at the numbers, do the research, and make your decisions. This, along with a diet changes, has a good chance of improving the situation ( maybe even curing it ) and carries none of the risks of an Accutane treatment. Things that seem to improve acne in some people are Vitamin A ( the animal form ), zinc, Vitamin D, some of the B vitamins....

Your son can always take Accutane later, but I would suggest seeking out less risky solutions first.

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    • Hi Aly and welcome You may want to repost this in a new thread, that way more people will see it and can advise you.  I think you would be much better off getting the celiac test now, if you stay off gluten you will need to go back on it and that can be much harder. That said, loads of your symptoms look like they could be gluten related.  I had a persistent 'trapped nerve' for instance under my eye which would twitch like crazy. Since I went gluten-free doesn't happen any more.  Best of luck! Matt
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    • Just found this site today. Did you ever find one? I was diagnosed this year and I live on Oahu.
    • I was diagnosed this year and I live on Oahu. I have yet to meet another celiac, so that tells you something about our limitations here. I work in Waikiki and do frequent Rouffage. It is nothing fancy, small place, but keeps me fed when I need something. I also like Greens and Vines. It is a vegan restaurant and worth every penny. Greens and vines sets up at the KCC farmers market on Saturdays too. Places in Waikiki that do offer a gluten-free menu include, PF Changs, Dennys, Big City Diner and California Pizza kitchen. I do not trust those places due to the risk, but they "offer" gluten-free options. I did try and order a beer at Yard House in Waikiki. They label clearly states that it contained wheat, so yeah sent that back with the waiter. I have also tied Doraku in Waikiki. I called ahead and spoke with management. That went well and they offer gluten free soy sauce. There is a deli at Down to Earth Grocery store in Honolulu that has gluten-free options, but the whole foods here do not offer hot food that is gluten free. They do have a hot food bar, but you have to stick to the whole plain salad and veggie options. It's good to hear the hotels here are getting better, beyond Waikiki hotels there is no one really interested in being gluten free.
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