Anyone else with celiac disease taking Budesonide (or Entocort)? Just started taking it and I'm itching like crazy similar to when I eat gluten. I checked the active and inactive ingredients but couldn't find any. Was curious if many other celiacs are using it.
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3 replies to this topic
#2
Adalaide
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Kipenzi
Posted 23 January 2013 - 07:37 PM
I have no experience with it, but did you call the manufacturer before filling the prescription to verify that the pills are gluten free?
Gluten free January 2012.
Tyramine free June 2012 - slowly getting a few foods back at a time.... scratch that
Low Histamine April 2013 - I swear this better be the last time I have to restrict my diet because giving up chocolate is the final straw
Iodine free briefly fall 2012
I like nonsense, it wakes up the brain cells. Fantasy is a necessary ingredient in living. It's a way of looking at life through the wrong end of a telescope, which is what I do, and that enables you to laugh at life's realities. -- Theodor Geisel
#3
UCglutenfree
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Posted 26 January 2013 - 09:38 AM
Its not clear to me why you are taking Budesonide but it actually should reduce itchy skin. There could be something else.
Diagnosed with Ulcerative Colitis and Migraines in 2007.
Medications - Colazal, Imuran, Verapamil, Nabumetone
Supplements - Methylcobalamin, Vit D, Multivitamin, Mg-Citrate, Vit B2
Stumbled on the fact that I am possibly Gluten and casein/lactose intolerant.
Current food choices, Strictly vegetarian, no meat/chicken/fish/soy/milk/raw vegetables.
Trying to go gluten-free.
Medications - Colazal, Imuran, Verapamil, Nabumetone
Supplements - Methylcobalamin, Vit D, Multivitamin, Mg-Citrate, Vit B2
Stumbled on the fact that I am possibly Gluten and casein/lactose intolerant.
Current food choices, Strictly vegetarian, no meat/chicken/fish/soy/milk/raw vegetables.
Trying to go gluten-free.
#4
jas322
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Posted 15 March 2013 - 07:55 PM
Anyone else with celiac disease taking Budesonide (or Entocort)? Just started taking it and I'm itching like crazy similar to when I eat gluten. I checked the active and inactive ingredients but couldn't find any. Was curious if many other celiacs are using it.
Anyone else with celiac disease taking Budesonide (or Entocort)? Just started taking it and I'm itching like crazy similar to when I eat gluten. I checked the active and inactive ingredients but couldn't find any. Was curious if many other celiacs are using it.
Yes, I have been on Entocort for about a year. It's used for refractory celiac and completely changed my life. It is a steroid that does not pass the liver and therefore doesn't give the nasty side effects of prednisone. It comes in a coated gelatin capsule that is designed to break down in the colon for ulcerative colitis patients. Since celiac affects the small intestine, my doctor has me open the gelatin capsule and swallow the little granules (I even crush one of the pills to be sure my duodenum gets some drug). I have spoken to the company and the sales reps. It is gluten free. Hope it works as well for you.
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