Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Endoscope Done Today
0

6 posts in this topic

My husband had an scope done today (blood last week, but don't have results yet-urgh) and I'm wondering if the doc would/should have seen eroded villi during the exam today or is the only way to detect damage after biopsy sample(s) are completed? Just feeling kind of anxious to know more either way. I'm somehow thinking Doc should have visually noticed changes and feeling kind of discouraged he did not, but I have no clue.

I guess all the anticipation is killing me -I've been researching and learning for several months, come to grips with having to change over my kitchen and ways of eating for the whole family (both kids and myself are at minimum wheat sensitive/intolerant) and I think just looking for the green light to tell me "GO NOW".

Any thoughts? Thanks in advance...

0

Share this post


Link to post
Share on other sites


Ads by Google:

Sometimes, if its really bad, they will see something. The problem is the villi that is damaged is very tiny so looking at little bits under a microscope is the best way to tell. Who would think the lack of something so teeny weeny hair-like could make us feel so bad!

0

Share this post


Link to post
Share on other sites

My husband had an scope done today (blood last week, but don't have results yet-urgh) and I'm wondering if the doc would/should have seen eroded villi during the exam today or is the only way to detect damage after biopsy sample(s) are completed? Just feeling kind of anxious to know more either way. I'm somehow thinking Doc should have visually noticed changes and feeling kind of discouraged he did not, but I have no clue.

I guess all the anticipation is killing me -I've been researching and learning for several months, come to grips with having to change over my kitchen and ways of eating for the whole family (both kids and myself are at minimum wheat sensitive/intolerant) and I think just looking for the green light to tell me "GO NOW".

Any thoughts? Thanks in advance...

I had a TTG of > 100 on a scale of 10 positive. After the Endoscopy Dr told my wife that he did not believe I had Celiac cause he did not see damage indicating Celiac. He only took 3 biopsys and all showed moderate villous blunting confirming Celiac disease. Dr did not see the damage in my case so I would not get discouraged.

0

Share this post


Link to post
Share on other sites

I think it depends on the extent of the damage.

My intestines were so damaged that the doctor was exclaiming during the endoscopy "classic coeliac duodenum" and afterwards he showed me a picture of my completely eroded intestines. They were so wrecked that there were no villi at all to be seen. Straight after the endoscopy he told me I definitely had coeliac disease and that I should go gluten-free immediately. The biopsy results later confirmed the extreme extent of the destruction. I was so shocked by how severe the damage was!

But I think for a lot of people the damage isn't as obvious or is more patchy so they have to wait for a biopsy before any diagnosis can be made.

0

Share this post


Link to post
Share on other sites

Thank you everyone, you have given me hope, I was fearful that nothing visual would just say "negative"....though I'm finding it hard to be patient. Was at the Doc with my son today and asking for a copy of hubby blood labs, but alas, doc said he would have to talk to my hubby first...then would mail. ACK!!!!!! My fingers are crossed we get a confirming diagnosis and don't have to struggle for years without knowing.

Coincidentally, my toaster zapped out this morning, so I'm hoping this is a sign I can make drastic changes. Don't think hubby/kids will go along with the necessary changes unless the doc says it's necessary. I'm convinced, but it's not enough for them...even when I point out how badly "the guys" feel after a sandwich vs chicken breast and vegtables.

0

Share this post


Link to post
Share on other sites




To echo others here, my doc told me it all looked normal as I came to afterwards, and told me to continue to eat a normal diet. Two weeks later, a nurse called and told me that I have Celiac disease and sent a poor-quality photocopy of a short pamphlet about how to eat gluten-free. When I asked if I should schedule a follow-up exam, I was told that the doctor was off - for the entire summer - and that they'd call me when she returned.

All of which is to say, the time between now and when you get results may seem slow, but if you suspect Celiac there's no reason not to start the "diet" now, since all tests are done. Worst case they'll come back negative and he'll be a few days or a week or so into the diet change and will know if he feels better, indicating possible sensitivity.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,906
    • Total Posts
      919,578
  • Topics

  • Posts

    • Kidney disease question
      GFR ranges are very strange.  We went through this with my husband.  Did you notice in Icelandgirl's link that there is no range that is considered good and normal?  I just had mine tested and the report said that normal was > 60.  As your report says, your value is only a problem if there is other evidence of kidney damage.
    • Kidney disease question
      Hi Matt I'd love answers to this one too. My own levels have varied since I have been monitored, over the last three or so years.   I asked my GP about this and I seem to recall she said to me that levels of hydration affect this number.  i.e. when my figures were in the 90s it was because I was super-hydrated. When my numbers were in the 70s she wasn't worried, either! I'm hoping someone with a better knowledge of these matters will chime in but the last time I was tested my gastroenterologist was very pleased with my kidney and liver function numbers - so it seems to me that when my own numbers were in the 70s on a couple of occasions I must have been  less well hydrated when I had the test those times? And that these numbers are therefore subject to variation.     
    • New to this gluten-free life
      Kareng is correct.  There are also a number of good reference books on celiacs and gluten free issues.  Also several magazines.  The main thing is to find out the hidden and unusual sources of gluten, and also to be very careful when eating at restaurants.  I got glutened quite a few times at restaurants before I learned to triple check and began to find safe places.  Good luck. 
    • Kidney disease question
      Hi Matt, Since celiac impacts the whole body...I think kidneys are affected.  I have kidney stones and they are super fun(not) and my urologist says that it's fairly common with celiac and malabsorption.  I don't know specifically about kidney disease, but when I was in the hospital passing my stones...prior to passing, my GFR was around 60.  A few weeks later when my doctor did bloodwork it was 87.  Here is some info that may help.   https://www.kidney.org/atoz/content/gfr
    • Most New Celiac Patients Show Normal Bone Density
      Some doctors recommend that patients with newly diagnosed celiac disease get scanned for bone density. Several researchers recently set out to assess the bone density results in a cohort of patients with celiac disease. View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,954
    • Most Online
      1,763

    Newest Member
    Olivia
    Joined