YVW Itch. And I'm right there with you on so many avenues. No how, no way I am going back on gluten to prove to some doc something I already know! You put it well with "makes my blood run cold". Amen sister! Dapsone is in the sulfa class & I have problems with sulfamethoxozole. Despite this --- when I was out of my mind crazy insane with this latest flare --- I actually was ready to try it & damn the consequences! I'm finally healing & my mind is returning to more normal thinking.
There is (fourth down the line) a treatment using Tetracycline + niacinimide, however; I have not been able to find any info. as to how well it works or how long one has to continue on it or how rapidly it may work or anything at all --- not even what doses should be used.