Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

How To Navigate Living In Asia - Gluten Free
0

6 posts in this topic

Hi all,

After a recent hospitalization and confirmed malnourishment, doctors have suggested that I may have celiacs. We originally thought it was crohns, but a colonoscopy showed that my large intestine is looking healthy enough, although a cat scan showed some inflammation in the small intestine.

My sister and aunite are both celiacs and I have suffered from celiacs symptoms for about 10 years.

Anyway, I live in Japan and can't get the proper testing done until I go home in about a month. So, I was wondering if any celiacs living in Asia could give me some advice about living with the disease over here. Any suggestions on diet or lifestyle would be great.

Thank you

0

Share this post


Link to post
Share on other sites


Ads by Google:

Stay on gluten until you get all of your testing done.

I've heard of those with celiac being sucessful overseas. The one way would be to eat a whole foods diet, nothing processed. I think that could be the easiest route, as you can find meats, veggies, fruits (if they aren't sky high in price :) ) and rice (if you can handle it).

Eating out would be far more difficult, or so i've heard.

I've actually researched the heck out of this because i have always wanted to go visit Japan.

0

Share this post


Link to post
Share on other sites

Thanks for the reply.

If you have a contact you can stay with or stay at a hostel with a kitchen, there is no reason why you can't visit Japan. Eating out may be impossible as soy sauce is pretty much in everything over here, but if you were willing to go to the supermarket and cook for yourself during the stay, then it would be fine.

Anyway, I've lived here for more than 4 years now and I do think it's a beautiful, but expensive, country and is definitely worth visiting.

I'd be more than happy to help with any questions you have about travel and such :D

Edited by sabin112
0

Share this post


Link to post
Share on other sites

Hi there,

I live in Hong Kong and it is equally difficult once you eat out, but there is a good Japanese Soy Sauce called Tamari that is gluten free and I just take it out with me everywhere I go (I do the same with gravy powder too!), then I get them to use it instead of the regular stuff.

However, cross contamination is a bigger issue when eating out and most chefs might understand the gluten-free issue but they don't get the cross contamination!

0

Share this post


Link to post
Share on other sites

I just visited HK in June. It must be hard to resist all the lovely pork buns and such that line the street every morning. When I visited I was still unaware of my condition and binged on yamcha and beer everyday- I was so sick that I couldn't leave the hotel by the third day :(

Thanks for the tip about the tamari soy sauce. If I got some of that I could still go out with friends to eat sashimi :lol: I'm actually thinking of moving to my wifes hometown, Nanjing, next year, but cross contamination seems unavoidable if you eat out.

Anyway, it gives me a bit of hope knowing there are other people living with Celiac disease/GI in Asia.

0

Share this post


Link to post
Share on other sites




I lived in Japan for a year pre-diagnosis, and I've always wanted to go back. Being able to manage the diet is the one thing that's keeping me away (I'm soy intolerand now too!)

However, if you've lived there a while and have a decent grasp of the language, it should be easier to at least navigate the supermarket (I can just imagine myself spending 2 hours trying to decipher kanji...)

Remeber: not all tamari is wheat-free, but there are more wheat-free varieties out there than there used to be (at least I've seen some in import shops here.) I believe Kikkoman has one now, but I could be mixing up brands.

Be careful of sauces in general. I'd say buy ingredients as raw as possible and make your own. Also, no seasoned nori (usually has soy sauce= wheat)

Oh, and aparently someone there is making gluten-free ramen/soba/etc noodles. They have some at the Japanese food store here in Toronto. I can't remember the name, and I haven't tried it yet, but you might be able to ask around.

You can do tempura with corn starch and/or rice flour.

Anyway, as Shadow said, don't go off the gluten until your testing is done (which means time to go out and enjoy whatever you can.)

Good luck!

Peg

1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,364
    • Total Posts
      920,548
  • Topics

  • Posts

    • Hi Laurabella, Yes, you could have celiac disease!  It is important to keep eating gluten until all testing is completed, including an endoscopy with biopsy samples if the doctor recommends it.  The doctors usually do want the endoscopy.  The biopsy samples of the small intestine lining (4 to 6 samples) are checked for microscopic damage that indicates celiac disease.  Gall bladder problems can happen with celiac disease.  Your pain could also be from intestinal damage in any part of the small intestine. Some things you could try while you are waiting for your tests to be completed are stopping all dairy, and taking peppermint tea for gas in the stomach.  Celiac disease damage makes it hard to digest dairy sugar (lactose) and that can cause bloating and pain.  Constipation and diahrea are also possible fun symptoms. Welcome to the forum!
    • Hi Beachgrl, We have had members with microscopic colitis before, usually in addition to celiac disease.  Have you been tested for celiac disease?  The reason I ask is, it is much better to be tested for celiac before starting the gluten-free diet.  The primary tests for celiac are to detect antibodies to gliaden in the bloodstream.  Those antibodies start to decline when a person stops eating gluten, so the tests become useless. There is no reason a person can't have more than one digestive system disease.  So it is smart to be tested for celiac disease if you can get the testing arranged.  Any change in symptoms after stopping gluten is an indicator that gluten is causing a reaction of some kind.  It could be celiac, or it could be non-celiac gluten intolerance, (NCGI).  There aren't any reliable tests for NCGI yet. Welcome to the forum!
    • I have microscopic colitis. Having a bad flare of D.  On Budesonide for first time for this. It's helping some- only on it a week. Do you think gluten free would help even if tested negative a few years ago?  Was gluten free yesterday and no BM changes. Even had cramps this AM that wasn't really having before. Thank you!!
    • Do you want to tell us the name of it ans where it is located.  maybe someone else will be looking for a restaurant there. Also, it is very helpful if you go to Find me Gluten Free and review it.
    • Hi. Im currently under consultants at my hospital,  and have just been for a blood test to test for celiacs. My symptoms are.... Low weight (8stone and 5ft6tall) Joint pain,particularly my hips and lower back  Severe pain in my gall bladder area which happens spontaneously... Especially after eating foods containing gluten.  When i have foods with wheat in i pain in my  right side just under my bottom rib, i become a bit spaced out and cant focus on anything. Also get diahorrea aswell. I recently contracted C-Diff and was in hospital for 4 days very poorly. Im 29years old (female) and the doctors r trying to work out what is wrong with me. I have always struggled to gain weight,  even after having 2 children i am still only 8stone. I was just wondering if u think i could have celiacs?  The pain in my side has been on and off for 7years! And the last 3years its been severe. And it definitely comes on as soon as i have gluten/wheat.   
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,437
    • Most Online
      1,763

    Newest Member
    Laurabella
    Joined