Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

How To Navigate Living In Asia - Gluten Free
0

6 posts in this topic

Hi all,

After a recent hospitalization and confirmed malnourishment, doctors have suggested that I may have celiacs. We originally thought it was crohns, but a colonoscopy showed that my large intestine is looking healthy enough, although a cat scan showed some inflammation in the small intestine.

My sister and aunite are both celiacs and I have suffered from celiacs symptoms for about 10 years.

Anyway, I live in Japan and can't get the proper testing done until I go home in about a month. So, I was wondering if any celiacs living in Asia could give me some advice about living with the disease over here. Any suggestions on diet or lifestyle would be great.

Thank you

0

Share this post


Link to post
Share on other sites


Ads by Google:

Stay on gluten until you get all of your testing done.

I've heard of those with celiac being sucessful overseas. The one way would be to eat a whole foods diet, nothing processed. I think that could be the easiest route, as you can find meats, veggies, fruits (if they aren't sky high in price :) ) and rice (if you can handle it).

Eating out would be far more difficult, or so i've heard.

I've actually researched the heck out of this because i have always wanted to go visit Japan.

0

Share this post


Link to post
Share on other sites

Thanks for the reply.

If you have a contact you can stay with or stay at a hostel with a kitchen, there is no reason why you can't visit Japan. Eating out may be impossible as soy sauce is pretty much in everything over here, but if you were willing to go to the supermarket and cook for yourself during the stay, then it would be fine.

Anyway, I've lived here for more than 4 years now and I do think it's a beautiful, but expensive, country and is definitely worth visiting.

I'd be more than happy to help with any questions you have about travel and such :D

Edited by sabin112
0

Share this post


Link to post
Share on other sites

Hi there,

I live in Hong Kong and it is equally difficult once you eat out, but there is a good Japanese Soy Sauce called Tamari that is gluten free and I just take it out with me everywhere I go (I do the same with gravy powder too!), then I get them to use it instead of the regular stuff.

However, cross contamination is a bigger issue when eating out and most chefs might understand the gluten-free issue but they don't get the cross contamination!

0

Share this post


Link to post
Share on other sites

I just visited HK in June. It must be hard to resist all the lovely pork buns and such that line the street every morning. When I visited I was still unaware of my condition and binged on yamcha and beer everyday- I was so sick that I couldn't leave the hotel by the third day :(

Thanks for the tip about the tamari soy sauce. If I got some of that I could still go out with friends to eat sashimi :lol: I'm actually thinking of moving to my wifes hometown, Nanjing, next year, but cross contamination seems unavoidable if you eat out.

Anyway, it gives me a bit of hope knowing there are other people living with Celiac disease/GI in Asia.

0

Share this post


Link to post
Share on other sites




I lived in Japan for a year pre-diagnosis, and I've always wanted to go back. Being able to manage the diet is the one thing that's keeping me away (I'm soy intolerand now too!)

However, if you've lived there a while and have a decent grasp of the language, it should be easier to at least navigate the supermarket (I can just imagine myself spending 2 hours trying to decipher kanji...)

Remeber: not all tamari is wheat-free, but there are more wheat-free varieties out there than there used to be (at least I've seen some in import shops here.) I believe Kikkoman has one now, but I could be mixing up brands.

Be careful of sauces in general. I'd say buy ingredients as raw as possible and make your own. Also, no seasoned nori (usually has soy sauce= wheat)

Oh, and aparently someone there is making gluten-free ramen/soba/etc noodles. They have some at the Japanese food store here in Toronto. I can't remember the name, and I haven't tried it yet, but you might be able to ask around.

You can do tempura with corn starch and/or rice flour.

Anyway, as Shadow said, don't go off the gluten until your testing is done (which means time to go out and enjoy whatever you can.)

Good luck!

Peg

1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,906
    • Total Posts
      919,573
  • Topics

  • Posts

    • Most New Celiac Patients Show Normal Bone Density
      Some doctors recommend that patients with newly diagnosed celiac disease get scanned for bone density. Several researchers recently set out to assess the bone density results in a cohort of patients with celiac disease. View the full article
    • Kidney disease question
      Hi all,   I don't know whether kidney disease is celiac related or not but hopefully someone here can advise.
      I recently had a general blood test as I'd been feeling unwell. I think I've been glutened tbh but I also felt lethargic and out of sorts. I asked for thyroid and other levels to be checked. Frustratingly they didnt run the TTG - something I'm really down about. Anyway, The doctor looked at my test results and told me (via the receptionist) there was nothing to worry about. Given past experiences I requested a paper copy of the results and I found the following under the renal profile section:

      Renal profile 142 (135-145)
      Serum Sodium 4.7 (3.5 5.3)
      Serum potassium 5.5 (2.5 - 7.5)
      Serum urea 93 (62 - 120)
      Serum creatinine 93 (62 - 120)
      GFR 77ml/min/1.73m^2 - STAGE 2: CKD only if other evidence of renal damage

      The doctor is presumably happy with this but I'm a little concerned. Should I ask for a doctors appointment and perhaps a urine test? Is the GFR result on its own not sufficient reason to investigate further? 
      Many thanks for any advice you can offer

      Matt 
    • Test Results
      Thank you, guys. I will let you know how it goes sometime after 8 a.m. on Tuesday morning. 
    • New to this gluten-free life
      This site has a lot of good info.  And you can get a free " care package"  which is fun. http://www.cureceliacdisease.org   this thread has some useful info -       
    • New to this gluten-free life
      So I just got diagnosed with celiacs and I felt like after all the testing and stuff I would finally get the information my fiancé and I so badly needed about what is wrong with me, but the doctor came in the room at our appt and spent about 15 minutes with us talking a little bit about cross contamination, then said I need to avoid gluten like i would arsenic then sent us on our way! So I guess I am looking for some good tips and information about what is really wrong with me! I know own it's an auto immune disease. I just feel scares because I am so uneducated about it and it's such a big change. I just want to know what to do and do it right so I feel better! 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,951
    • Most Online
      1,763

    Newest Member
    lfoisy
    Joined