Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Intolerances Or Allergies?
0

5 posts in this topic

Hello again

I'm back for more advice...

Corn... Seem to have developed some kind of intolerance. Ate some cornflakes... Big no no... But seem to tolerate some organic snack rice and corn cakes? Is it normal to tolerate smaller amounts?

Also. If I eat corn, am I damaging myself like I would with wheat, barley etc? Is it the same as being glutened? ie villi damage?

I seem to come up in a slightly swollen eye to eggs now too. Rocket leaves make my mouth itch. Various other responses to food, none of which are gastro intestinal, but am I allergic to all of these foods now??? Or could they be intolerances?? I am gutted to think I am allergic.

Also! I seem to be allergic to my one and only favourite body lotion cocoa butter :( I come in red patches that are hot and burn slightly. Why is this all happening now??? I don't understand. Is it because I've been so pure on whole foods mainly? What's going on with these reactions? Am petrified of colouring my hair now incase I have a full on reaction? If I can't even tolerate my cocoa butter that I have been using for 20 years then hair dye is much stronger. I'm quite depressed, my grey is about 3 inches either side of my parting (not a good look with thinning hair).

Heeeeeelllllllllp. Someone give me hope.

Any advice on any of these things would be greatly appreciated, I feel like I have become allergic to the modern world suddenly.

I have been gluten free for 4 months, dairy free for 3. I need some cheese, oh I wish I could have some cheese! Though who knows maybe I can't eat it anymore?

Depressed.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Were the corn flakes "Gluten Free" certified corn flakes, or regular ones ? Regular corn flakes are NOT gluten free because they have barley malt flavoring. From my experience, a LOT of processed corn products here in the United States are cross contaminated enough, either the corn or the other ingredients, that a sensitive person will react. I can't do one brand of corn flour products at all, because this company mills oats in the same facility, and I developed a gluten free oat intolerance. Other brands have been tested and been shown to sometimes contain significant cross contamination. One brand of corn flour that is not labeled gluten free, has been tested by a restaurant here in my state, and shown that it actually is less than 5 ppm, so they go ahead and use it. I've eaten there more than once, and have not reacted. Sometimes the corn product, such as a corn chip, is cooked with "xxxx" and they will name 3 or more different kinds of oils, who knows if these oils are actually truly gluten free, or not, because of the way the seeds were harvested and stored in with other grain crops. The only truly "safe" corn is a fresh ear of it that you husk yourself, otherwise, there's always the slight chance of cross contamination unless the corn, from planting to harvest to processing, was grown to be gluten free. This is why popcorn works for a lot of people, because it doesn't get milled to a flour anywhere. Corn, aka "maize," itself is okay for gluten free. Some imported corn flours that are specifically grown to be gluten free are pricey $$ but might work. The blue corn ones seem to be easier for the vendors to keep clean.

The corn/rice snack cakes you ate, were they "gluten free?"

Once you start up a gluten reaction, then you are going to be more sensitive to other things, until you get rid of the accidental gluten.

Lotions: the problem with lotions is that manufacturers are constantly changing their ingredients and putting really weird **** into them. If this was pure 100% cocoa butter I'd doubt you'd be reacting. Last week I went to the store and started reading labels on lotions with sunscreen and it was ridiculous. Most of them contained soy oils or even cottonseed oils or cottonseed sugars or starches, and cottonseed is just loaded with pesticide because it is grown under different USDA regulations in the south as a fabric, not as a foodstuff, even though the oils are used in human foods and cosmetics. You will probably have to change what you use for lotion, try pure coconut oil in a pinch.

0

Share this post


Link to post
Share on other sites

Hello Kimmy!

My guess is all your problem foods are intolerances -- many of which you will get back once time heals your gut from the damage that Celiac Disease caused.

I completely understand feeling angry and depressed -- I too was both many times as I lost more and more foods. After all -- when I was finally diagnosed the doctor said remove all gluten and take several supplements -- I did that for many months before I realized removing gluten is not the only thing necessary to help the extremely damaged digestive system heal.

Hindsight is always very clear so realize I say it knowing how difficult it can be and am not dismissing any of the pain, frustration and grieving that goes along with losing healthful foods.

A very strict elimination diet can be instrumental in finding your problem foods. If you are ready.

For now continue to eat non-processed whole foods.

Also, if you have not had allergy testing, it would be a good idea -- most likely you are reacting to foods because of the damage in your gut, but it is wise to have allergy testing - both blood and skin scratch tests to rule out any true allergies.

Hang in there -- it does get better -- until then -- feel free to come here to stomp your feet and scream -- "it is not fair" -- because it is not fair and often makes no sense how sensitive we are to good food -- we all get it!

0

Share this post


Link to post
Share on other sites

Takala! My cornflakes were from a strictly gluten free source... Well, so they say! As were the rice/corn snacks. So you think that it's more likely that I reacted from cross contamination as opposed to just having an intolerance? Perhaps then I will try some popcorn and see how that is. Thank you!! :)

Hi Lisa!

Just got my Internet installed at new house, I've been lonely without you all!! ;)

I am hoping you are right and that these are all intolerances... I have a new doctor now so hoping he has a brain and refers me to an allergist. I go on Thursday for my first appointment with him.

Silly question....I'd like to bake my own bread. I assume that I shouldn't eat it as it would be

processed?? Even though its processed by me. Am I correct?!!!

And judging by your story, am I right then to assume any trouble my GI gives me (intolerances etc) indicates further damage (ie by the corn etc) so that may be why I'm not healing so quick?

If eating small amounts of corn doesn't seem to bother me should I eliminate it anyway??

Also.... Cheeeeeeeese! When could I introduce some cheese back in?! (Only been dairy free 3 months!)

Ugh, thanks Lisa. I needed a vent. It's exhausting this food thing. I thought being gluten free and vegetarian was going to be a nightmare. What I'd give to have it that simple! Muuuchas gracias amiga!

0

Share this post


Link to post
Share on other sites

Ps . Takala... I'd love to use coconut oil, but can't have any nuts in the house due to my sons allergy to them. And you're right though, the ingredients list does have lots of rubbish in it... I just don't understand why I have become so sensitive to everything all of a sudden??? Why is my body reacting to anything and everything? Things I've been using with no problem up to 2 weeks ago?!

It's crazy. Just don't know what to do anymore!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,598
    • Total Posts
      918,309
  • Topics

  • Posts

    • Oat Flour making me sick?
      I wouldn't be afraid to use a stainless steel pot that other things had been cooked in AS LONG AS YOU WASH THEM VERY WELL before making her food.
    • to biopsy or not?
      You are MOST welcome! No problem with making these recipes. If you just follow the directions they lay out, you will be absolutely fine! BTW, I chose to make everything using the flour blend they give you the recipe for. It really is better than the pre-made flours you can buy. To make things easier, I make a double batch of the flour blend and put it in a BIG tupperware (plastic) container & keep in the fridge. That way when I go to make anything I just scoop out the amount I need. Secondly, get yourself a cheap little kitchen scale. I got this one & it works great. http://www.amazon.com/dp/B007TCFE0I?psc=1 Mine doesn't have the removable glass or the kitchen timer but otherwise is just like this one. This one is more like the one I got http://www.amazon.com/Ozeri-Digital-Kitchen-Capacity-Elegant/dp/B002IR6OP8 Weighing out your ingredients makes a huge difference & really it's so much easier than measuring everything in measuring cups. As far as the coffee cake recipe..... I changed it a little bit so it would be like a gluten coffee cake I used to make & we loved. It turns out a little more healthy as well with dried fruit I put in it. I didn't make the topping that they do. These are the changes I made. In the batter, instead of the 1 Tblsp. of cinnamon I used 1 teaspoon. In the batter, I added dried apricots & raisins --- I do it by feel so I will say about 1/2 cup of each maybe a tad more.  My Topping: Then in a separate bowl I put about 1.5 teaspoons of cinnamon, about 3/4 cup of dark brown sugar, and some melted butter. Mix the dry ingredients & pour the butter in mixing the mixture with your fingers. You want the mixture crumbly yet moist. Put the batter in the oven for 5 min. & then take out & crumble the topping on top, then it all goes back in the oven & bake according to directions in the recipe. You could add nuts, dried dates, any dried fruits or nuts you like!   Finally, you owe it to yourself to get some really good pans. This for loaves of bread as gluten free bread requires the extra height & support these pans give. You won't have to use parchment paper or make the tin foil collar which is a pita. http://www.kingarthurflour.com/shop/items/bread-loaf-pan-9-x-4-x-4 These are great for making the dinner roll recipe into burger buns: http://www.kingarthurflour.com/shop/items/individual-pie-and-burger-bun-pan
    • celiac disease is psychosomatic
      Actually, there is a place I could complain to about how my request to amend my record was handled. zthey really messed up onthis one. I think this doctor was too careless to set a HIPPA policy in place or doesn't pay attention to generic forms included to fill out with new patient forms. I'm debating whether or not to file a complaint. If the doctor adds derogatory remarks to my report, I will definitely file a complaint. I really should file a complaint for all the patients who are mistreated, but I don't need more stress in my life. I have found doctors like her create stress or sometimes it's best to say goodbye without further contact. Can I Appeal if a Covered Entity Refuses to Make an Amendment? Maybe. An institution must accept complaints about its health privacy policies and practices. Filing a complaint with an institution may not be the equivalent of filing an appeal of a denial of a request for amendment, but it may help if it forces someone new at the covered entity to review your request. However, some institutions may accept formal appeals. Consult the institution’s notice of privacy practices to see if there is an appeal method for a denial of a request for amendment. Talk to the privacy officer at the covered entity to see if you can obtain help. You can also complain to the Secretary of the federal Department of Health and Human Services about how your request was handled. The Department’s Office of Civil Rights processes complaints. You can find information about the process at http://www.hhs.gov/ocr/privacy/hipaa/complaints/index.html. You have another alternative. When a covered entity denies your request for amendment, it must tell you that you can request the covered entity to provide a copy of your request for amendment with any subsequent disclosure of the disputed information. In some instances, it may be important to make the request. Remember that the covered entity is not required to tell others about the dispute unless you ask.    
    • Johnny Carinos
      According to Johnny Carino's' gluten free menu, the potato soup is safe to eat. However, their allergen guide says the soup has wheat. Anybody know which is right? I contacted my local restaurant and sent an email to the email address listed on their website. However, my local place did not know, and no one has responded to my emails yet. I would love to try this restaurant, but now I am worried if it is safe.  allergen guide http://pmgdata.s3.amazonaws.com/menu/75327/pdf/allergy_info_guide_7-21-13_8731.pdf   gluten free menu http://glutenfreeguidehq.com/johnny-carinos-gluten-free-menu/    
    • Celiac.com: Gluten-Free Diets Are Not Necessarily Healthier, Doctors Warn
      Out of about 15,800 children in the schools, 78 were on a gluten-free diet. Of these, 60 percent had celiac disease, an immune condition that makes ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,698
    • Most Online
      1,763

    Newest Member
    deandrade
    Joined