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ok

so im just browsing the forum ,reading random posts , and just come across one on keratosis pilaris. ive just looked at some pics and realised its what ive got on my thighs and calfs!! id just put the red spots down to being overweight and the fact that the skin is stretched so making the pores more visible (does that make sense)?

and i saw a pic of someone with it on their face!! oh my god - thats it - my rash that ive developed over the last year -unbelievable. :o ive googled it and it seems ( dont know if this is all correct) it can be caused by genetic problems,hereditary, and with a possible link to gluten and dairy ( and celiac). is this correct??

its not something that has bothered me coz i exfoliated and moisturised which at least made it smooth. the only problem was i couldnt fake tan coz it seemed to show up the spots. i just settled for english rose "white" colour lol. but since it appeared on my face its really pissed me off (soz for swearing) ive been moaning about it for months and the other day my mum turned up before id put my make-up on and basically said " god your face is a mess isnt it " err yep - thats what ive been going on about!!!!

so it seems im on the right track with trying to go gluten and dairy free!

on another note, ive read a few threads about having a colonoscopy. my dad died in 2000 of bowel cancer and it was diagnosed as hereditary non polyposis colorectal cancer, so i know all about them ( have to have one every 2 years ). some people mention having one for celiac ( i know this is wrong) but is there any possibility that you could spot any problems in the colon that could indicate a problem with gluten.? ive had a polyp removed every time i had one done! i only ask coz on my last one( im so used to them i usually watch- when im aware lol) i saw a cluster of what looked like blood blisters - probably about ten of them- thought it was strange, remember wondering what they were but must have zonked out again ha! -ive googled them but havent found anything. just thought somebody here might know summat.

maybe all these genetic/hereditary stuff is connected in some way :blink:

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I had a colonoscopy the same visit as my endoscopy because I had near constant pain on my left side where my bowel is. It came back completely clear EXCEPT for a few nodules at the very start of my colon. The gastroenterologist said that it could be a sign that my small intestines were damaged all the way through (since endoscopies only see the first part of the intestines), and I guess there's probably some overlap of cells and structure of where small v large intestine stops/starts.

What my GI explained to me though was that celiac disease only affects the specific cells of the small intestine, and that in and of itself celiac disease doesn't affect the large intestine. He doesn't know a whole about celiac disease though, as he had no idea that along with destroying the small intestine, it's probably responsible for my peripheral neuropathy (nerve damage).

While I still don't think celiac disease directly affects the colon (I haven't heard anything to say that it would), I believe colon cancer is one of the cancers a non-gluten free celiac is likely to get. I'd imagine that would be because in celiac disease your entire intestinal flora is going to be messed up as what stays in your intestines and then passes through to the colon is going to support different types of bacteria than someone without celiac disease. Also that celiac disease is an auto-immune disorder and so other auto-immune disorders are going to be more likely, eg crohn's.

I'm just discovering my own skin problems though. Being gluten free has somewhat cleared up my face of acne and blotchiness. It still gets bad at times though (bad is relative, it's still pretty good), so I may not be doing a good enough job being gluten-free.

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thank-you cavernio for answering,

im in the process of going gluten and dairy free at the moment. im not celiac though (so the tests said)- so finding it difficult to stick with the decision. im adding a few gluten free recipes and snacks a week untill im completely gluten and dairy free. hopefully ill see and feel a difference within the next few months, an this bloody rash on my face and hands will disappear :)

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Well there's a plethora of tests that can be done which all, of course, have the possibility of being false, just like any medical test I suppose. The current standard for a celiac test is a biopsy of the small intestine, not just blood tests, and you still haven't specifically said you've had that, so definitely consider asking for that test. And false negatives are alot more likely than false positives in blood tests for celiac disease.

My current understanding of celiac disease and gluten intolerance is that celiac disease can affect multiple different T cells but celiac disease in and of itself only affects the 1 type that destroys the small intestine, while the other ones can affect the skin and the nervous system. They might not all show up in one person though. I think you should be able to get a biopsy of your rashy skin in fact and see if there's signs of DH, the skin component of celiac.

Good luck with your diet, and continue reading about your problems. There's a lot of information on the forums and elsewhere that might help you.

Following a totally gluten and dairy free diet is hard. Keep at it even in those times of temptation, otherwise you'll never be able to tell for certain if it's gluten or not. You really have to have 0 gluten and check every piece of food you eat. If you don't know, assume it's not safe.

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jhol has said in another thread that her intestinal biopsies were negative,

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yep thanks mushroom :)

my tests all came back negative- but im determined to get a handle on this diet. everything i bought food wise this and last week have definitely been gluten and dairy free. i even made my own soup, and bought flour ( rice and gluten free) to try to make ... well i havent decided yet but i,ll make something :D might not be eatable ha! but i,ll have a go!!- just a case of seeing how it goes now. it may be wishfull thinking but im sure my joints seemed "looser" not sure if thats the right word... but dont seem to be hobbling about in the mornings like i usually am. im actually waiting for allergy tests at the moment to see if im wheat intolerant- i definitely have a problem with dairy . if the rash doesnt get any better ( but im convinced it will) i,ll talk to docs about a biopsy on it . dont think its d.h though. its not anywhere near as bad as some of the pics ive seen and not insanely itchy.

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    • Anxiously waiting
      Thanks heaps. I will def be going private if the wait is too long. I have done a little research but i thought a gluten intolerance and coeliac was the same lol. My iron levels are just below average apparently but she said not bad enough for me to be this tired.
    • How effective is HD skin biopsy after being gluten free for a year
      DH is celiac disease that appears on the skin (gluten triggered).  It does not appear when you are consuming dairy, which sounds like a separate issue for you.   A DH biopsy requires active lesions (new/fresh) from consuming gluten.  So, if you want to be tested via a skin biopsy you must go back on gluten.  Finding a dermatologist who knows exactly how to biopsy for DH is often difficult.  Be sure your Derm is knowledable and has biopsied for DH before. Why no endoscopy for now?  I bet your GI  knows that your insurance will deny the endoscopy.  After all, you tested negative to the blood panel.  Your GI should not even ordered the blood panel knowing that you had been gluten free for months.  You have to be consuming gluten daily for 8 to 12 weeks for the blood test to be accurate.   Did you ever test positive?  Why did your primary diagnose you?  Having the gene just means you can develop celiac disease.  Some 30% of the population carries the genes.  The gene test should only be used to help rule out celiac disease.  
    • How effective is HD skin biopsy after being gluten free for a year
      No one can say exactly how long you might be able to get a positive dh biopsy after having been gluten free as long as you have been. The Chicago Celiac Disease Center says this: http://www.cureceliacdisease.org/faq/im-scheduled-to-have-a-skin-biopsy-to-screen-for-celiac-disease-should-i-maintain-a-gluten-containing-diet-similar-to-those-who-are-being-screened-via-blood-or-intestinal-biopsy/ http://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/ You said you had a flare of the plaque psoriasis -- that is NOT dh so why do you think the dh biopsy will show positive? Testing positive for the celiac genes does not mean you have celiac disease. 30+% of the population have the celiac genes but only very, very small fraction of those people do or will present with celiac disease. The gene tests are only used to rule OUT celiac NOT to diagnose it. Frankly, I can understand why your GI does not put any stock in your Primary doc's thinking you have celiac disease. A positive celiac gene and the boils in your armpits which the GI never saw and were never biopsied for dh but they resolved on a gluten free diet and so did your plaque psoriasis. That's all the GI has to go on. I don't know why you are pushing an endoscopy. If you've been eating strictly gluten free then an endoscopic biopsy for celiac will be negative.  Your PCP should have done a celiac blood panel on you back when you were still eating gluten rather than dx you based on the celiac gene you tested positive for.
    • How effective is HD skin biopsy after being gluten free for a year
      I've been gluten free for a year now and my gastro wants to wait for the endocopy until I'm eligible for the colonoscopy when I turn 50 later this year. I don't think she believes I have celiac, even though I tested positive for one of the genes associated with celiac and my primary has diagnosed me as having celiac. The gluten sensitivity blood tests came back negative, of course, since I was gluten free for 9 months at that time. Why is she waiting? At any rate, My digestive system has improved greatly, but when I reintroduced non fat Greek yogurt in my diet, the plaques psoriasis returned on my elbows. My primary believes it is dermatitis herpetiformis (as well as I, since before going gluten free, I used to get boils in my armpits) and I'm scheduled for a skin biopsy in 3 weeks. However, I eliminated dairy from my diet 4 weeks ago and the plaques psoriasis is healing like it did when I eliminated gluten from my diet a year ago. If the scar is reduced to eczema, does that mean there still are IGA deposits in my skin? I don't want to resume dairy since I experienced a cross reaction to the casein in cheese and found lactose was on that same list. So my question is, how long do the granular IGA deposits remain in the skin in order to have a valid skin biopsy test performed for dermatitis herpetiformis? Since it takes 1-2 years for dermatitis herpetiformis to heal on a gluten free diet and I just had a recent flare up, can I continue on my dairy free diet or should I resume eating non fat Greek yogurt for the next 3 weeks just for this skin biopsy?
    • Celiac Night Vision
      Thanks Cristiana. It was Mistyx7 and night driving. Migraine type is very personal but does not appear to be closely connected to celiac or my peculiar scotomas. If you think going gluten-free has improved it that deserves a separate topic!
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