Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

O.m.g I Love This Forum
0

6 posts in this topic

ok

so im just browsing the forum ,reading random posts , and just come across one on keratosis pilaris. ive just looked at some pics and realised its what ive got on my thighs and calfs!! id just put the red spots down to being overweight and the fact that the skin is stretched so making the pores more visible (does that make sense)?

and i saw a pic of someone with it on their face!! oh my god - thats it - my rash that ive developed over the last year -unbelievable. :o ive googled it and it seems ( dont know if this is all correct) it can be caused by genetic problems,hereditary, and with a possible link to gluten and dairy ( and celiac). is this correct??

its not something that has bothered me coz i exfoliated and moisturised which at least made it smooth. the only problem was i couldnt fake tan coz it seemed to show up the spots. i just settled for english rose "white" colour lol. but since it appeared on my face its really pissed me off (soz for swearing) ive been moaning about it for months and the other day my mum turned up before id put my make-up on and basically said " god your face is a mess isnt it " err yep - thats what ive been going on about!!!!

so it seems im on the right track with trying to go gluten and dairy free!

on another note, ive read a few threads about having a colonoscopy. my dad died in 2000 of bowel cancer and it was diagnosed as hereditary non polyposis colorectal cancer, so i know all about them ( have to have one every 2 years ). some people mention having one for celiac ( i know this is wrong) but is there any possibility that you could spot any problems in the colon that could indicate a problem with gluten.? ive had a polyp removed every time i had one done! i only ask coz on my last one( im so used to them i usually watch- when im aware lol) i saw a cluster of what looked like blood blisters - probably about ten of them- thought it was strange, remember wondering what they were but must have zonked out again ha! -ive googled them but havent found anything. just thought somebody here might know summat.

maybe all these genetic/hereditary stuff is connected in some way :blink:

0

Share this post


Link to post
Share on other sites


Ads by Google:

I had a colonoscopy the same visit as my endoscopy because I had near constant pain on my left side where my bowel is. It came back completely clear EXCEPT for a few nodules at the very start of my colon. The gastroenterologist said that it could be a sign that my small intestines were damaged all the way through (since endoscopies only see the first part of the intestines), and I guess there's probably some overlap of cells and structure of where small v large intestine stops/starts.

What my GI explained to me though was that celiac disease only affects the specific cells of the small intestine, and that in and of itself celiac disease doesn't affect the large intestine. He doesn't know a whole about celiac disease though, as he had no idea that along with destroying the small intestine, it's probably responsible for my peripheral neuropathy (nerve damage).

While I still don't think celiac disease directly affects the colon (I haven't heard anything to say that it would), I believe colon cancer is one of the cancers a non-gluten free celiac is likely to get. I'd imagine that would be because in celiac disease your entire intestinal flora is going to be messed up as what stays in your intestines and then passes through to the colon is going to support different types of bacteria than someone without celiac disease. Also that celiac disease is an auto-immune disorder and so other auto-immune disorders are going to be more likely, eg crohn's.

I'm just discovering my own skin problems though. Being gluten free has somewhat cleared up my face of acne and blotchiness. It still gets bad at times though (bad is relative, it's still pretty good), so I may not be doing a good enough job being gluten-free.

0

Share this post


Link to post
Share on other sites

thank-you cavernio for answering,

im in the process of going gluten and dairy free at the moment. im not celiac though (so the tests said)- so finding it difficult to stick with the decision. im adding a few gluten free recipes and snacks a week untill im completely gluten and dairy free. hopefully ill see and feel a difference within the next few months, an this bloody rash on my face and hands will disappear :)

0

Share this post


Link to post
Share on other sites

Well there's a plethora of tests that can be done which all, of course, have the possibility of being false, just like any medical test I suppose. The current standard for a celiac test is a biopsy of the small intestine, not just blood tests, and you still haven't specifically said you've had that, so definitely consider asking for that test. And false negatives are alot more likely than false positives in blood tests for celiac disease.

My current understanding of celiac disease and gluten intolerance is that celiac disease can affect multiple different T cells but celiac disease in and of itself only affects the 1 type that destroys the small intestine, while the other ones can affect the skin and the nervous system. They might not all show up in one person though. I think you should be able to get a biopsy of your rashy skin in fact and see if there's signs of DH, the skin component of celiac.

Good luck with your diet, and continue reading about your problems. There's a lot of information on the forums and elsewhere that might help you.

Following a totally gluten and dairy free diet is hard. Keep at it even in those times of temptation, otherwise you'll never be able to tell for certain if it's gluten or not. You really have to have 0 gluten and check every piece of food you eat. If you don't know, assume it's not safe.

0

Share this post


Link to post
Share on other sites

jhol has said in another thread that her intestinal biopsies were negative,

0

Share this post


Link to post
Share on other sites




yep thanks mushroom :)

my tests all came back negative- but im determined to get a handle on this diet. everything i bought food wise this and last week have definitely been gluten and dairy free. i even made my own soup, and bought flour ( rice and gluten free) to try to make ... well i havent decided yet but i,ll make something :D might not be eatable ha! but i,ll have a go!!- just a case of seeing how it goes now. it may be wishfull thinking but im sure my joints seemed "looser" not sure if thats the right word... but dont seem to be hobbling about in the mornings like i usually am. im actually waiting for allergy tests at the moment to see if im wheat intolerant- i definitely have a problem with dairy . if the rash doesnt get any better ( but im convinced it will) i,ll talk to docs about a biopsy on it . dont think its d.h though. its not anywhere near as bad as some of the pics ive seen and not insanely itchy.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,633
    • Total Posts
      921,524
  • Topics

  • Posts

    • I found my gas issues were caused by carbs, and sugars, something about how the bacteria in my gut changed and started making me gassy and extremely bloated when they got a hold of any thing more then a tbsp of grains, beans, fruit, or starch carbs. And no amount of medicine helped. Changed to 1/4 servings of those and mostly protein, fat diet. As for vitamin supplements I found I have to take B vitamin supplements 3 times a day to not go zombie mode. I personally found Liquid Vitamins Energy & Stress and the Nero-logic from them helps along with the occasional 1/2 bottle of 5 hour. As to carbonated water I avoided it when bloated cause it made me feel worse.
    • Butterbean, do go have a read of the dermatitis herpetiformis section.  See if anyone's story sound familiar to what you're experiencing.
    • Hi all. Well, it's been around twenty days since I've been taking Gas-X like meds (with simethicone), but no relief. Maybe I should drink bigger dose... Currently, I'm taking 80 mg four times per day.
      I'm so exhausted, both mentally and physically... Anyway, I have two questions:
      First, is it good or bad to drink mineral/carbonated water if you have severe trapped gas like me?
      Second: Is it possible to regain some physical strength/relieve fatigue with vitamin supplements? Thanks in advance.
    • I have had so many issues with my teeth--I keep getting decay and I have had filling after filling.  This past week, my dentist told me I may need a crown, which is pricey. I also have two missing teeth, which was a genetic thing that runs in my family. I am sick of hygienists telling me I am not doing enough brushing, flossing rinsing.  I do all three religiously (can't even imagine how bad my mouth would be if I didn't...)  Thankfully, last time I had my teeth cleaned, the hygienist said that my mouth was the cleanest one she had seen in years. And, she said, "something happened to your teeth developmentally." I explained how I had undiagnosed celiac disease many years. I am only 31... It is really disheartening.   What do you guys do to afford all this dental care?  My insurance doesn't cover a whole lot.  Thankfully, my dentist has felt bad and gives me discounts here and there.
    • I have been recently diagnosed with celiac. It causes terrible attacks that start with ear ringing (?) Anyway, I too, cannot eat Budding's lunch meat. I have discovered that it causes a gluten reaction. I did not realize it until the third time eating it as I am vegetarian. But as I literally can eat almost nothing now, I was craving "real food". I ate this lunch meat thinking it was safe and voila! Celiac attack. Swollen, painful ankle, ringing ears, itching mouth, nausea, anxiety, going to the bathroom way too much, etc...I also cannot toletare corn starch so, that might be it? So, I agree, I definitely cannot eat that nor can I tolerate 20 ppm. I empathize with all of you. Looks like potatoes and tea, at least till I learn to cook.  :-p
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,637
    • Most Online
      3,093

    Newest Member
    Gracey
    Joined