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Ugh. Dh But The Dermatologist Is Stupid


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#1 glutenfreemamax2

 
glutenfreemamax2

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Posted 25 January 2013 - 06:31 PM

I've had this rash on and off for years. The last 9 months its getting worse and worse. I was gluten-free for a year ago for a year but life dumped on me and I went back to the dark side. I was okay for a while but now I'm flairing with this rash on my ankles feet and shins. Sometimes it's my hands also. I have scars.... It itches so uncontrollable that I scratch literally until I bleed. I finally found a dermatologist on my health plan and he told me that there is no rash with Celiac, and that it's never on the legs or feet. Mine is bilateral on my legs. I told the guy to go back to school and learn about this and left. So there is no one else on my plan, and and I'm still itchy. Today was my first full day gluten-free in a year or so. I forgot how hard it was!! My boyfriend went gluten-free with me also so I wasn't alone. He's wonderful. I'm trying to teach him about it.
How do I post pictures so you can tell me what you think? The dr also told me he can't biopsy it unless the rash came and I didn't touch it. Yeah try and tell me not to scratch this thing.....
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Gluten free since 10/1/10
3 year old gluten free since 10/16/10
Diagnosed with IBS in 2000
Appeared on the Dr.Phil Show 9/23/10
started working with Dr.Phil's nurtitionist and he discovered the gluten/dairy intolerance
Labs drawn on 10/16/10 waiting on results
10 pounds and 15 inches off so far!

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#2 mushroom

 
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Posted 25 January 2013 - 06:43 PM

Uhmmm, my understanding of biopsying for DH is that you take a punch biopsy of clear skiin adjacent to the active lesion. It wouldn't seem to make any difference if it were scratched or not, so long as it was active. He is (or should be) looking for antibodies in the skin adjacent, not in the lesion itself :wacko:
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Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

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Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

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#3 squirmingitch

 
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Posted 25 January 2013 - 07:51 PM

AND you have to be actively eating gluten diet or the dh biopsy will be negative. Don't stop eating that gluten if you are determined to get a dx.
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Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 





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