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Symptoms Similar To Celiac Disease
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I'm a 26 year old male, who in the past few years have had some major stomach problems. About four years ago I had a nasty parasite that caused me to lose about 65lbs. After healing from that, they found that the parasite had attacked my gall bladder, causing me to have that removed. For a year or so I started feeling better, then what I thought was the flu hit me. Instead it was cdiff, which I had 4 times in one year. After getting over that I started gaining weight, but never felt all there. Had a lot of bloating and gas. Well for the last 2 months it has picked up alot. I get very very bloated and gassy. This seems to be hitting me at night more than the day. But its also making me very nauseous. It wakes me up in the middle of the night and I can here my stomach churning and making noises. I have a lot of gas and burp a lot. I also have been really tired and get kind of stiff or sore in the muscles. The only reason I suspect it could be celiac is because my grandpa has it. I havent been tested for food allergies, but will here in the next few days. Also another thing is , when these symptoms started it seemed like I was very stressed. The bloated and gassy feeling I have comes and goes, but these last few months have been terrible. Sometimes I cant make it ten mntures after eating to rush to the bathroom. Then sometimes I wont go for a day or two, then when I do go , I will have to go several times. If anyone has any opinions please respond. I just wont to feel better and know its not all in my head! Thanks!

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Hello, and welcome to the boards. I hope you will feel you are in good company :)

No, I do not believe it is all in your head, and I do not believe it is because you are stressed, apart from the condition itself being stressful, I am glad you are going to get tested. Make sure you are tested for celiac disease first, a panel which consists of the following tests:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

Total Serum IgA

If they baulk at doing them all make sure they at least do the last three. Whatever you do, do not stop eating gluten until your testing is finished as this can affect your results. If celiac runs in the family this is much more likely to be your problem than the average person on the street. Your symptoms are certainly consistent, including the alternating constipation and diarrhea.

A c.diff infection can really knock one back and I recently found some experiences on the net which indicate one might never fully recover from it, that it does leave some lasting damage. And celiac disease seems to make us more susceptible to these gut bugs because our body does not have the strength to fight them off.

So get thee to thy physician and get yourself tested right smart. And do let us know the results. :) Good luck!

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Thanks for the response. Cdiff was no fun at ALL! I honestly thought I was going to die the first time I had it. I was in the hospital for a few days pretty much knocked out on morphine. It seems since that, I havent felt right. Not fun for an active male in his mid 20s. I have a few more questions. Sometimes I do feel alright and can eat fine. But Im always rushing to the bathroom. Also my hips and knees always feel stiff. Is joint stiffness a symptom? I really hope in part of my mind I'm positive for celiac. It would give me some resolution! I just want answers....

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Yes, joint problems are a common symptom in celiac persons, ranging from stiffness to rheumatoid arthritis, so here's hoping once you get off gluten - regardless of your test results, do give the gluten free diet a good trial once your testing is complete - that they go away :)

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Also, it seems like my symptoms really bother me at night. It has been waking me about almost nightly for the past month or two. A lot of nauseous and churning of the stomach. It last about an hour. If I pass gas or burp it tends to make it better, but I also feel very weak during this. Has anyone else had these symptoms?

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Oh yeah!!! I could burp / belch for an hour :D

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Evenings were definitely the worst time for symptoms; I would get more pregnant looking as the day wore on. LOL

Joint pain and stiffness was a big one for me, and it's finally STARTING to improve after 6 months on the diet. That symptom takes a while to go for many people, so be patient once you go gluten-free.

Good luck with your testing!

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    • Thanks for posting this Adrien, it's a great list and I and others will appreciate the effort and the thought behind it. I loved my time in Malaysia and I'm glad I sampled all the food I could whilst I was still on an unrestricted diet. The good thing is that, like you say, some of the nice Malay foods are still ok. As a backpacker I survived on a lot of nasi goreng and laksa, nice to think if I return there I could still do the same Terima kasih!
    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
    • Thanks for sharing with me.  I really appreciate it.  Honestly, after a glutening last summer (still do not know what glutened me), I did not eat out for a year!  The risk was too great as my healing time took 3 months (for symptoms to subside) and six months to regain lost weight.  Our recent vacation to Europe was worth the risk  as we traveled with our entire extended family, but we were extra cautious and ate only at celiac-approved places.  Otherwise, we "dined" at markets or ate the food we brought from home.  Thankfully, we did not get glutened (at least we don't think so!)  
    • I do not struggle with this and I was brought up the same way as you. I don't struggle because for many years off & on we didn't have a bathtub, only showers as well as this being therapy or medicinal for the skin - heck even for the muscles as I age. I figure I've earned my right to luxuriate or medicate with baths any time I've a mind to. My husband saw just how bad my dh got & NEVER begrudges me a nice long soak in the big soaking tub we now have.
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