Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Does Everything Make Me Sick?
0

14 posts in this topic

Hello!

I am new to the forums, and I am nearing desperation...

I've been gluten-free for over a year. I've been dairy free for about 4 months.

After first going gluten-free I noticed a significant difference. My bloating and constipation disappeared within the week.

Then about a year in I started to experience symptoms again. Then I went dairy free - but nothing is giving me the relief I had after first going gluten-free.

I did notice that some of my hair products have wheat in them. But I feel like there must be something else that I'm allergic to. For example, jus tthe other night I had severe reaction after eating Trader Joe's Gluten/Dairy/Soy/etc. free brownies with almonds and cashews.

And again today, I've eaten all clean foods and I'm reacting pretty significantly: eggs, onions, green onions, sugar, vanilla almond milk, EVOO, chicken, broccoli, and roasted potatoes, and iced tea...

Is there another common allergen in what I'm consuming that I"m not seeing?

Any thoughts or insights or suggestions would be greatly appreciated.

Thank you!

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hello!

I did notice that some of my hair products have wheat in them. But I feel like there must be something else that I'm allergic to. For example, jus tthe other night I had severe reaction after eating Trader Joe's Gluten/Dairy/Soy/etc. free brownies with almonds and cashews.

And again today, I've eaten all clean foods and I'm reacting pretty significantly: eggs, onions, green onions, sugar, vanilla almond milk, EVOO, chicken, broccoli, and roasted potatoes, and iced tea...

Any thoughts or insights or suggestions would be greatly appreciated.

Thank you!

I would suggest that you revisit everything that can pass your mouth, to include your personal products. A daily dose of wheat in your shampoo could make you sick daily. Check your lipsticks, lotions, meds, vitamines, shared home toaster, work cross contamination....etc.

Keep a food diary with your reactions. Eliminate all the possible gluten for a period of time, then....it may be time to look into other causes.

Gluten first. B)

Oooops....forgot to say WELCOME!

0

Share this post


Link to post
Share on other sites

Some people react to almond milk which has been filtered with barley - I believe it is Silk?? Others will know. I personally cannot eat potatoes, but again, I cannot eat any nightshades including tomatoes.

I believe you will have to keep a food and symptom diary to find the likely culprits. Do you have a list of staples you know you don't react to? You could start with that, if you did, then add one additional food a week.

The other thing to consider is that you still have a leaky gut, and other foods are getting into your blood stream in an incompletely digested state and your body treats them as alien invaders. To heal your gut, you probably would benefit from a combination of a good probiotic, a digestive enzyme that you take with every meal to help break down your food, and possibly some L-glutamine.

Good luck with your sleuthing and healing. :)

P.S. And since you are still having problems it is probably a good idea to rid your personal care products of gluten also. I know I did.

0

Share this post


Link to post
Share on other sites

If you have pets, you could be getting CC'd from them.

0

Share this post


Link to post
Share on other sites

Hi clsmith

I know how you feel. I too felt great when I first went gluten very light (before I knew about celiac) then gluten free. Giving up gluten didn't trouble me at all because it had made me feel ill for so many years.

Then along came the other problems - really unfair :( I thought.

Rice, potatoes and soya are real problems now for me along with all processed gluten-free foods - urgh! they make me so ill. Even worse and unlike some here, I have always done a lot of cooking so am happy to produce gluten-free versions of yummy food - in fact, I think gluten free puddings and desserts are better than the gluten versions but wait ........ they make me ill :o !!!

Sorry, I have taken over your thread with a moan.

Anyway, I view it all as a 'work in progress' and hope that when I have healed enough small amounts of these other foods can be reintroduced again. I also think I am super sensitive celiac and do hold some suspicions about getting cc'd from some gluten free products.

0

Share this post


Link to post
Share on other sites




Hi clsmith

I know how you feel. I too felt great when I first went gluten very light (before I knew about celiac) then gluten free. Giving up gluten didn't trouble me at all because it had made me feel ill for so many years.

Then along came the other problems - really unfair :( I thought.

Rice, potatoes and soya are real problems now for me along with all processed gluten-free foods - urgh! they make me so ill. Even worse and unlike some here, I have always done a lot of cooking so am happy to produce gluten-free versions of yummy food - in fact, I think gluten free puddings and desserts are better than the gluten versions but wait ........ they make me ill :o !!!

Sorry, I have taken over your thread with a moan.

Anyway, I view it all as a 'work in progress' and hope that when I have healed enough small amounts of these other foods can be reintroduced again. I also think I am super sensitive celiac and do hold some suspicions about getting cc'd from some gluten free products.

Oh yay, someone else like me!!! After diagnosis I thought having to avoid gluten would be the most difficult part but then all these other intolerances started to raise their ugly heads! Can't tolerate any processed gluten-free products, corn, soya, white potatoes, rice, eggs, lactose and probably tonnes more! Seem to have difficulties with nuts too. Along with being a vegetarian, I feel so limited and I'm feeling so ill most of the time!

How long have you been gluten-free? Are you feeling better yet? I just want to be myself again :(

1

Share this post


Link to post
Share on other sites

Hi everyone,

Thank you for your responses. :) Glad to know I'm not the only one.

cc'd = cross contaminated (?)

How would one get cc'd from gluten-free foods - Lady Eowyn? I have a suspicion this could be part of what's happening.

And Shadowicewolf - how would one get cc'd from pets? As in their food? (my pup eats gluten-free too). :)

Thank you all again!

0

Share this post


Link to post
Share on other sites

Hello!

I am new to the forums, and I am nearing desperation...

I've been gluten-free for over a year. I've been dairy free for about 4 months.

After first going gluten-free I noticed a significant difference. My bloating and constipation disappeared within the week.

Then about a year in I started to experience symptoms again. Then I went dairy free - but nothing is giving me the relief I had after first going gluten-free.

I did notice that some of my hair products have wheat in them. But I feel like there must be something else that I'm allergic to. For example, jus tthe other night I had severe reaction after eating Trader Joe's Gluten/Dairy/Soy/etc. free brownies with almonds and cashews.

And again today, I've eaten all clean foods and I'm reacting pretty significantly: eggs, onions, green onions, sugar, vanilla almond milk, EVOO, chicken, broccoli, and roasted potatoes, and iced tea...

Is there another common allergen in what I'm consuming that I"m not seeing?

Any thoughts or insights or suggestions would be greatly appreciated.

Thank you!

Don't assume any food is 'clean' or won' cause reactions. I react to eggs, cane sugar, vanilla and nutmeg (as well as gluten, dairy and soy). All my reactions were confirmed by the ELISA test and my experiences. You could be allergic/intolerant to almost any food. I prefered to spend the money on the ELISA test, rather than restrict myself endlessly to try to figure out what caused my symptoms. However you could try eliminating foods, but I can't recommend any 'safe' foods to start with.

1

Share this post


Link to post
Share on other sites

HI CL,

You can find lists of the top 8 food allergens on the web. They are a good place to start looking for possible problems. You can also read people's signatures on the forum to find some foods that bother others. We don't all react to the same foods so it is an individual thing to figure out.

1

Share this post


Link to post
Share on other sites

I think that my experience was similar to yours. At first all I had to do was eliminate breakfast cereal and bread and I felt great. Then came about a year of eliminating more and more things. I did eliminate things like shampoo and lotions that contained gluten. I play with my hair and then might handle food or bite a fingernail. Shampoo sometimes washes over my mouth in the shower. I could see how I could ingest a little bit by accident. All these changes helped.

At around a year in I was eating only things processed in facilities that didn't process gluten. I still had some symptoms so I have been moving more towards a produce only diet. I still do eat a few processed foods, but not many. It seems that I am sensitive to terribly low levels of cc, in other words, I am a super sensitive celiac. With this careful diet, I am mainly symptom free. It gets worse every winter as I tend to run out of the safe food from my garden. Also the local farmers can't pasture their animals in the winter because I live in snow country so those food sources start to bother me. Then it gets better again in the warm season. My goal is to grow enough, and to find enough other safe sources of food to be able to make it through the winter.

What really helped me figure out what foods I was reacting to was to keep a food/symptoms journal. I try to make only one change per week. It can take a week or so to notice a reaction. This helps to point out other food intolerances as well as possible cc. Keep track of sources of the foods as well as what the foods are.

Best wishes to you to figure out what is going on in your case.

0

Share this post


Link to post
Share on other sites

I'm in the same boat right now, so I can sympathize. I only got a couple of weeks of relief after going gluten free before I began reacting to everything! Corn, Gluten-Free oats, buckwheat, coffee, overripe bananas and spinach older than a few days, carrots, coconut, white potatoes... to compound the problem, I've been dairy free my whole life, egg white free since age 9, and soy free for the past few years. I'm also prone to cold sores so I have to avoid arginine rich foods like nuts, brown rice, and mushrooms. So for the past month I've been eating a few veggies, apples, organic beef and chicken, flax milk,egg yolks, sweet potatoes, sweet potato chips, and organic tuna. Exclusively. I'm hoping my body is just freaking out after going gluten free and will settle down someday. Good luck to you!

0

Share this post


Link to post
Share on other sites

I'm in the same boat right now, so I can sympathize. I only got a couple of weeks of relief after going gluten free before I began reacting to everything! Corn, Gluten-Free oats, buckwheat, coffee, overripe bananas and spinach older than a few days, carrots, coconut, white potatoes... to compound the problem, I've been dairy free my whole life, egg white free since age 9, and soy free for the past few years. I'm also prone to cold sores so I have to avoid arginine rich foods like nuts, brown rice, and mushrooms. So for the past month I've been eating a few veggies, apples, organic beef and chicken, flax milk,egg yolks, sweet potatoes, sweet potato chips, and organic tuna. Exclusively. I'm hoping my body is just freaking out after going gluten free and will settle down someday. Good luck to you!

I hope you find that a gluten free diet will be helpful.

0

Share this post


Link to post
Share on other sites

OMG! I am going through the same thing after allergy testing positive to wheat, eggs, and corn. I am one full week free of these items, but had a hives reaction to silk almond milk in my coffee this am. Im itchy-tingling, and my stomach looks like I am eight months pregnant! After a good cry, I think I will stick to apples, rice and peas for a bit. :o(

0

Share this post


Link to post
Share on other sites

A rotational diet seems to be helping me with preventing antibodies..  I took an Elisa test and found I had antibodies to all but 11 things I had been eating.  I avoided all of the foods I had antibodies to for 3 weeks. In the meanwhile, I had begun on enzyme supplements to help break down my food.   Now, I have I begun to add foods, I had very low antibodies to, back in. I can add a new food every four days and watch for a reaction.  I think I am getting stronger and feeling better.  I believe my toe with a fungus infection has healed.  It had been ugly for about 5 years.  I am trying to add the vegetables back in.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,657
    • Total Posts
      921,628
  • Topics

  • Posts

    • Hi, you can try reporting your own post.  That should alert the site admin of your request.  I don't think they can delete your posts, but changing your user name may be possible.
    • Hi Pablito, Welcome to the forum! You are right, you should keep eating gluten  until the tests are all done.  The skin problems you describe ma be a condition only celiacs get.  The condition is called dermatitis herpetiformis (DH for short),  DH causes an itchy rash that is usually symetrical on the body.  You get the rash on both arms or legs etc.  It makes little blisters on the skin.  They are caused by IgA antibodies in the skin.  There i a test for DH where they take a small skin sample (biopsy) from the skin next to a blister and check it for IgA antibodies.   If they find DH, then you have celiac disease.  The 2 conditions are never separate.  there is a section of this forum dedicated to dermatitis herpetiformis with lots more information. The usual diagnostic process is to do a celiac antibodies blood test first, and then an endoscopy to test for damage to the gut lining.  But with DH, it is better to get the skin biopsy done instead of the endoscopy. Celiac disease is passed on in genes, so your children should be tested also if you are diagnosed.
    • Research Celiac Ataxia for potential diagnosis. Look at Milk and dairy for potential head and sinus related issues.  I stopped dairy and I can breathe now! Saturated fat may also be a problem, but it's mostly dairy!
    • It is best not to try and do this on your own. Talk to your allergist. Not all will deal with food intolerances but if yours doesn't find one who will.  Mine had me fill out a very detailed diet questionaire and tested for true allergies before he gave me my starting point. I will admit I wasn't real happy with my starting point since none of my usual foods were on it. He said that I was most likely to react to foods I ate the most so most of the 5 I either rarely ate or didn't really like. The prescribed starting point he formulated was designed to make sure I had adaquate nutrition and enough calories.   It took about 2 weeks before a lot of my tummy issues resolved and I was then able to start adding foods in one at a time for a week before moving on to the next.  He said food intolerance reactions can take up to a week to show up so I had to be sure it was a full week between food additions. I did have to call three offices before I found a doctor who could do the formulation of the diet but this guy truely saved my life. Out of all the doctors I had seen, including specialists in big hospitals, he was the one responsible for finally realizing I was celiac. He of course referred me back to my clueless GI doctor who confirmed the diagnosis by almost killing me with a gluten challenge. I should note that some of my intolerance (not gluten of course) did resolve after I had healed. Even dairy which I hadn't been able to have for years! I hope you can get some answers and are able to heal soon.
    • I'm 43 years old. I'm married and have two teen daughters. After all these years it was one of my daughters who tonight said to me: "you probably have Celiac disease" after hearing my wife and I talking about all the pimples I always get on my arms. I never heard of the disease but I have heard about a lot of people having gluten allergies and didn't know they were the same thing. So I started looking it up on the internet. Turns out I have had all the symptoms all my life and no one has ever said anything about it possibly being Celiac disease. When I was a kid my doctor gave me prescriptions to antibacterial soaps to use for the arm pimples. Hibitane I think was one of them. And I've always had swollen looking ankles as long as I can remember. All my life people have noticed it. As a kid and teen I played lot's of sports and have broken my ankles and sprained them so my mom and I brushed it off at that and so did my family doctor when I was young.  But I always thought it was weird that the swelling continued all these years.  I have had a bloated feeling stomach all my life too and chronic diarrhea. My stomach is always hard and swollen feeling. Not ever knowing what that stuff was related too so I have never mentioned the bloat or diarrhea to a doctor. Just kind of embarrassing I guess. As my wife and I were reading about Celiac Disease on the internet together tonight she pointed out to me that that's probably why these symptoms almost all went away when I did a very low carb diet for about a year straight to lose weight a couple years ago. I had solid bowel movements, no bloat, ankle swelling went down but I thought the improvements were from weight loss and just eating healthier . But perhaps in reality it probably had a lot more to do with not eating all the wheat products/gluten products. So tomorrow I will be seeing my doctor to talk to him about it and to ask for the blood tests. I have read that I should continue eating gluten though until my testing is done. So that is crappy but I guess it's better to know for sure. Something else I think I should point out too is that I get headaches quite a bit after having big meals. Now I am thinking that may have something to do with the gluten too. I have read that some people with Celiac also get headaches with the other symptoms. It's great to see there is a forum like this to help people out with these issues. If I test positive for Celiac I will for sure be following this forum closely for advice and diet/nutrition help.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,657
    • Most Online
      3,093

    Newest Member
    pablito
    Joined