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Son Will Be Tested After He Is Back On The Gluten
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I took my son to the doctor today and he said he would run a full celiac panel on him. First I have to get more gluten into his diet. I have been gluten free for two years, so most everything in the house is gluten free. He does eat gluten at school and at other peoples houses. The dr told me to feed him alot more gluten for the next five weeks so the test results can be accurate. How much should he be eating? Bread everyday? Any input would be great, my celiac test was negative, but I was already wheat free because of a wheat allergy. Thanks for any info..

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This is your 12-year-old, right? If memory serves, this is the age where they start eating quite a lot, so I would give him the equivalent of a couple of slices of bread a day. And then he gets some at school and other places so that should be plenty.

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I agree with Neroli. :) Good luck to him; I hope his gluten trial goes smoothly!

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Yes, it is my 12 year old. Thanks for the info. If he tests positive maybe my other family members will finally get tested. My mom is hypothyroid and has fibromyalgia. My sister is hypothyroid and unexplained infertility. My brother has epilepsy (has seizures even with all the medication) Not to mention all the little complaints I hear from all of them.

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My brother has epilepsy (has seizures even with all the medication)

My brother was also diagnosed with epilepsy, in his 40's. Not grand mal, not petit mal, just generic epilepsy. Like your brother, for him medication made no difference and the mini seizures continued. We eventually lost him to complications of one of his seizures :( I am convinced it was gluten - we are a gluten family, and he had other symptoms.

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My brother was also diagnosed with epilepsy, in his 40's. Not grand mal, not petit mal, just generic epilepsy. Like your brother, for him medication made no difference and the mini seizures continued. We eventually lost him to complications of one of his seizures :( I am convinced it was gluten - we are a gluten family, and he had other symptoms.

That scares me! I don't know what kind of epilepsy he has, but I asked him to try gluten free for a month to see if they continued. I offered to make all his meals even. He made it about two days and said it was just to hard and quit...Frustrating!!!

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Convince him to get tested. Getting rid of seizures would be worth the hardship, surely. We didn't know about our familial affliction when my brother was having his seizures.

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    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
    • Thanks for sharing with me.  I really appreciate it.  Honestly, after a glutening last summer (still do not know what glutened me), I did not eat out for a year!  The risk was too great as my healing time took 3 months (for symptoms to subside) and six months to regain lost weight.  Our recent vacation to Europe was worth the risk  as we traveled with our entire extended family, but we were extra cautious and ate only at celiac-approved places.  Otherwise, we "dined" at markets or ate the food we brought from home.  Thankfully, we did not get glutened (at least we don't think so!)  
    • I do not struggle with this and I was brought up the same way as you. I don't struggle because for many years off & on we didn't have a bathtub, only showers as well as this being therapy or medicinal for the skin - heck even for the muscles as I age. I figure I've earned my right to luxuriate or medicate with baths any time I've a mind to. My husband saw just how bad my dh got & NEVER begrudges me a nice long soak in the big soaking tub we now have.
    • Hi, No, I do not have celiac  disease. I have an ankylosing spondylitis which is an auto-immune disease provoking an inflammation of the joints. Under the advice and supervision of my doctor and the professor at the hospital I follow a gluten free & casein free diet, which is extremely successful in preventing inflammatory events. And I've been doing so, strictly, for more than 6 years. So I'm not Celiac, but I can tell you that I react strongly every time I take gluten even in small amounts. Even soya sauce, which according to this website has an almost zero dose of gluten, is a lot too much for me. Nevertheless I allow myself to eat food which has been processed in a factory which processes gluten. To conclude, I would say that when you are travelling, especially in a country where celiac disease is scarcely known, you should be twice as careful as when you're going out at home. In the end you can never guarantee that the cook has cleaned his pan after using soya sauce and so on... You can only bet
    • Along those lines, many Americans are now pursuing gluten-free eating. Gluten ... Diagnosis of celiac disease typically requires a history and physical ... View the full article
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