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Son Will Be Tested After He Is Back On The Gluten


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#1 Happyw5

 
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Posted 28 January 2013 - 05:42 PM

I took my son to the doctor today and he said he would run a full celiac panel on him. First I have to get more gluten into his diet. I have been gluten free for two years, so most everything in the house is gluten free. He does eat gluten at school and at other peoples houses. The dr told me to feed him alot more gluten for the next five weeks so the test results can be accurate. How much should he be eating? Bread everyday? Any input would be great, my celiac test was negative, but I was already wheat free because of a wheat allergy. Thanks for any info..
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#2 mushroom

 
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Posted 28 January 2013 - 06:28 PM

This is your 12-year-old, right? If memory serves, this is the age where they start eating quite a lot, so I would give him the equivalent of a couple of slices of bread a day. And then he gets some at school and other places so that should be plenty.
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Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

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Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
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#3 nvsmom

 
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Posted 28 January 2013 - 07:51 PM

I agree with Neroli. :) Good luck to him; I hope his gluten trial goes smoothly!
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#4 Happyw5

 
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Posted 29 January 2013 - 06:28 AM

Yes, it is my 12 year old. Thanks for the info. If he tests positive maybe my other family members will finally get tested. My mom is hypothyroid and has fibromyalgia. My sister is hypothyroid and unexplained infertility. My brother has epilepsy (has seizures even with all the medication) Not to mention all the little complaints I hear from all of them.
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#5 mushroom

 
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Posted 29 January 2013 - 12:04 PM

My brother has epilepsy (has seizures even with all the medication)



My brother was also diagnosed with epilepsy, in his 40's. Not grand mal, not petit mal, just generic epilepsy. Like your brother, for him medication made no difference and the mini seizures continued. We eventually lost him to complications of one of his seizures :( I am convinced it was gluten - we are a gluten family, and he had other symptoms.
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Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

#6 Happyw5

 
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Posted 29 January 2013 - 02:44 PM

My brother was also diagnosed with epilepsy, in his 40's. Not grand mal, not petit mal, just generic epilepsy. Like your brother, for him medication made no difference and the mini seizures continued. We eventually lost him to complications of one of his seizures :( I am convinced it was gluten - we are a gluten family, and he had other symptoms.


That scares me! I don't know what kind of epilepsy he has, but I asked him to try gluten free for a month to see if they continued. I offered to make all his meals even. He made it about two days and said it was just to hard and quit...Frustrating!!!
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#7 mushroom

 
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Posted 29 January 2013 - 02:49 PM

Convince him to get tested. Getting rid of seizures would be worth the hardship, surely. We didn't know about our familial affliction when my brother was having his seizures.
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Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator




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