Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Son Will Be Tested After He Is Back On The Gluten
0

7 posts in this topic

I took my son to the doctor today and he said he would run a full celiac panel on him. First I have to get more gluten into his diet. I have been gluten free for two years, so most everything in the house is gluten free. He does eat gluten at school and at other peoples houses. The dr told me to feed him alot more gluten for the next five weeks so the test results can be accurate. How much should he be eating? Bread everyday? Any input would be great, my celiac test was negative, but I was already wheat free because of a wheat allergy. Thanks for any info..

0

Share this post


Link to post
Share on other sites


Ads by Google:

This is your 12-year-old, right? If memory serves, this is the age where they start eating quite a lot, so I would give him the equivalent of a couple of slices of bread a day. And then he gets some at school and other places so that should be plenty.

0

Share this post


Link to post
Share on other sites

I agree with Neroli. :) Good luck to him; I hope his gluten trial goes smoothly!

0

Share this post


Link to post
Share on other sites

Yes, it is my 12 year old. Thanks for the info. If he tests positive maybe my other family members will finally get tested. My mom is hypothyroid and has fibromyalgia. My sister is hypothyroid and unexplained infertility. My brother has epilepsy (has seizures even with all the medication) Not to mention all the little complaints I hear from all of them.

0

Share this post


Link to post
Share on other sites

My brother has epilepsy (has seizures even with all the medication)

My brother was also diagnosed with epilepsy, in his 40's. Not grand mal, not petit mal, just generic epilepsy. Like your brother, for him medication made no difference and the mini seizures continued. We eventually lost him to complications of one of his seizures :( I am convinced it was gluten - we are a gluten family, and he had other symptoms.

0

Share this post


Link to post
Share on other sites




My brother was also diagnosed with epilepsy, in his 40's. Not grand mal, not petit mal, just generic epilepsy. Like your brother, for him medication made no difference and the mini seizures continued. We eventually lost him to complications of one of his seizures :( I am convinced it was gluten - we are a gluten family, and he had other symptoms.

That scares me! I don't know what kind of epilepsy he has, but I asked him to try gluten free for a month to see if they continued. I offered to make all his meals even. He made it about two days and said it was just to hard and quit...Frustrating!!!

0

Share this post


Link to post
Share on other sites

Convince him to get tested. Getting rid of seizures would be worth the hardship, surely. We didn't know about our familial affliction when my brother was having his seizures.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,636
    • Total Posts
      921,534
  • Topics

  • Posts

    • I have 2 insurance policies, one with my husband's company and one through mine. I also stretch out the more major work into the next year, so I can make the most use of my benefits. So, a dental implant for me takes about a year for me to complete.  I have the post put in at the end of one year and the tooth made about 6 months later. Honestly, the insurance company probably hates me because I max out my benefits every year. You do what ya gotta do!  I still have to pay for some of the work out of pocket but about 75% gets covered. If you pay cash for procedures then they usually charge a lower price. Haggle with the dentist over price. They like getting cash.
    • Did your doctor check for SIBO, H. pylori, ulcers, etc. when he was obtaining biopsies to check for celiac disease?  
    • Oh, and as I mentioned in my own post on pain, xanax. I swear. I tried it just to deal with the occasional panic I had at weird scary symptoms and clueless doctors. I am not a fan of long term use. But I recently found that .25 mg seems to aid with the neuropathic pain. It does not go away, but it helps. 
    • It does sound like a Glutening and you are just a few months into the diet.  It might help if you read our Newbie 101 thread under the "Coping" section.   Here is some information about rice milk: https://www.verywell.com/is-rice-dream-gluten-free-562354 Many, many celiacs are often lactose intolerant temorarily or permanently if you are naturally genetically inclined.  When I am glutened, I lose the ability to digest lactose for a while.   Salad?  Great but it can be rough on a sore gut!  Think soups, stews, easy-to-digest foods that you prepare yourself until you feel better.  Did your folks give you salad after a bout of flu?  Or did you stick with jello and broth?  I am intolerant still after three years to garlic and onions (the lactose resolved, thankfully).  You have a leaky gut (Google zonulin and Dr. Fasano who is a leading celiac researcher to verify that this is true) and that means you can become intolerant to anything (hopefully, just temporarily).   If you are 100% sure that you have had no access to gluten....did you eat out lately?.....then see your doctor.  Remember, celiac disease symptoms can change.  And here is the biggie.....it can take weeks, months or years to heal from celiac disease.  Two months in is nothing, really.  Why?  It takes time to figure out the diet and time for antibodies to come down.  celiac disease is an autoimmune disorder triggerEd by gluten.  once triggered it can go on and on damaging your gut especially with repeated glutenings (accidental or through cross contamination). I hope you feel better soon!  
    • I concur! I literally feel your pain as well. Like, at the moment, lol. Did you have an endo to see inflammation or damage? I am close to begging my GI for carafate or something to coat and protect. How about testing your antibodies to see if they are still rising? I read somewhere here rice milk may not be a good option.  Folks here have also suggested to me to stick with whole foods. Limit processed. Especially stuff that is not certified gluten-free, like chex. I think small amounts of gluten are in processed foids and can add up. I too reacted to lettuce the other day like I was ingesting glass. My sibling  had a food sensitivity panel done and it came back positive for a few things he had been eating a lot of. He can now eat them, but had to cut them out of his diet. Lettuce is probably on mine.  I have been drinking carrot and pomegranate juice,  dandelion root tea with hiney, aloe water, lots of squash, fish. Mild, no garlic, no onions or hot sauce. No coffee. It sucks.  Inflammation can tick off other organs, you mention a "Pain below". Not exactly sure which side, but certainly call your doc Monday. Sooner if the pain increases.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,639
    • Most Online
      3,093

    Newest Member
    NickyW_UK
    Joined