Jump to content



   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Ads by Google:
Celiac.com Sponsor:                                    


Photo
- - - - -

Is Celiac Always Doing Damage Even Before The "trigger?"


  • Please log in to reply
6 replies to this topic

#1 jessthirtytwo

jessthirtytwo

    Community Member

  • Advanced Members
  • PipPipPip
  • 39 posts

Posted 28 January 2013 - 06:27 PM

I have been wondering for a while and havent been able to find the answer anywhere: if one is predisposed to celiac disease, is damage being done before symptoms are present or does the damage to the small intestine begin once symptoms occur?
For example: I ate gluten normally for 20 years and was then exposed to my trigger event, only after did I have symptoms. was my diet for those 20 years doing damage to my intestine or only after the disease was "triggered."

Just wondering :)
  • 0

Celiac.com Sponsor:

#2 cavernio

cavernio

    Advanced Community Member

  • Banned
  • PipPipPipPipPipPip
  • 428 posts

Posted 28 January 2013 - 10:15 PM

Dunno. It's very clear that in some people damage can occur without symptoms, a known phenomenon called silent celiac. At the same time I've heard that celiac disease can strike at any time, that you don't need to have that same reaction from birth. It's possible you've been a celiac with damage for many many years, or at the same time you started noticing symptoms was when it actually started to happen.
  • 0
diagnosed Jan 2012, bloodwork only
June 2012 positive visual of celiac disease from gastroscopy

#3 gatita

gatita

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 382 posts

Posted 29 January 2013 - 01:11 AM

I for sure don't have an answer to that one but just wanted to say it's a really good question!

I wonder that myself because my own case of gluten intolerance came on quite suddenly last year. I was happily eating all the wheat I wanted before that... or so I thought.
  • 0

Diagnosed with wheat hates me 4/13


#4 cap6

cap6

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 629 posts

Posted 29 January 2013 - 06:11 AM

From what I understand......the damage is going on and steadly becomes worse until a trigger throws it into a fiull blown attack. I may be wrong..... but from what I have read it is slowly going on. From my own experience I can say that eating gluten slowly started to make me sick. I would have a sandwich and then feel sick maybe once a week, then it was twice a week....and so on. Interesting quesion
  • 0

#5 ravenwoodglass

ravenwoodglass

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 13,678 posts

Posted 29 January 2013 - 06:13 AM

There are some folks with celiac who have no intestinal damage at all. Folks with DH are an example of this. While most of the attention to celiac damage is focused on the damage to the GI system it is an autoimmune disease that can impact pretty much any organ in the body. So IMHO yes it can be impacting folks before the GI symptoms appear. A couple examples of symptoms not often thought to be celiac related would be migraines, psychiatric issues like depression and anxiety, joint and muscle pain and skin problems like rashes. Many don't realize they are celiac related until after celiac diagnosis when the problems disappear gluten free.
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#6 mushroom

mushroom

    Mushroom

  • Advanced Members
  • PipPipPipPipPipPip
  • 9,448 posts

Posted 29 January 2013 - 12:07 PM

Many don't realize they are celiac related until after celiac diagnosis when the problems disappear gluten free.


Or when they don't entirely disappear, but are so much better. I didn't even know what my 'rash' was for all those years and didn't explore it because it didn't bother me, until it suddenly exploded into full-blown psoriasis :unsure:
  • 0
Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

#7 Em314

Em314

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 112 posts

Posted 30 January 2013 - 04:59 AM

I for sure don't have an answer to that one but just wanted to say it's a really good question!

I wonder that myself because my own case of gluten intolerance came on quite suddenly last year. I was happily eating all the wheat I wanted before that... or so I thought.

To my understanding, food allergies can genuinely come and go, basically out of nowhere. I'm not super-clear on whether you "always have celiac" but don't necessarily know until some kind of triggering event, or if you just have the predisposition for it and don't actually have the disease until it's triggered, either.

I suspect more often than not, people who are diagnosed celiac "had" the disease before they had overt symptoms of it, but that doesn't answer the core question. I know my more obvious symptoms got a whole lot worse after a period of intense stress, but personally, in retrospect, I suspect I've always had the disease, but that it was less severe/more "silent"/had diferent symptoms when I was younger.
  • 0
Diagnosed celiac December 2012 (bloodwork + endoscopy). Gluten-free since.


0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: