I Need Some Advice
Posted 29 January 2013 - 08:42 AM
Posted 29 January 2013 - 10:48 AM
Stick to it.
Allergic to red food coloring.
Posted 29 January 2013 - 11:04 AM
Do not give up, because you are almost over the hump. Hang in there a little while longer and the siren song will stop and you will start feeling better, I promise you.
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
Posted 29 January 2013 - 12:19 PM
I had one week of bliss after beginning gluten free, so it is possible to have that too. After that week of bliss I suffered tummy noise, bloating, and aching feet. Not to mention fatigue and dizziness.
Keep checking everything you are eating and getting better at that. Some of my suffering came from mistakes which could have been prevented if I read every label. Did you know to read the label on bottled water? I found one with gluten once! I just left it by the pop machine.
Posted 29 January 2013 - 12:53 PM
I started eating gluten free 3 weeks ago. I have not been diagnosed with celiac, but have felt so sick (tired, nauseous, anxious, brain fog, depressed and weak) for so long that I decided to cut out gluten for a bit to see if it helped. My sister and I started at the same time and she is feeling great, even though she has cheated a few times and I am feeling worse then ever. I went out for breakfast today for my husband's birthday and before we even ate, I felt like I was going to pass out. Looking at the toast on the table it was the only thing I could think of eating and felt it would have made me feel better. I could barely eat my omelette. I want to cry all of the time and really have no energy and want to sleep. My stomach is also a little weird. I am very discouraged as everyone I have talked to who cut out or even cut down on gluten has said they have felt amazing. I am tempted to start eating gluten again, because maybe this diet just isn't the answer for me. Should I stick it out a little longer or give up?
I am sorry you feel so tired and ill. You may want to have your iron levels checked, you may be anemic or deficient in vitamins.
It sounds like you really need to see a doctor. Before I was diagnosed, I had similar symptoms but with severe stomach pain.
I had 2 negative blood tests, a negative stomach biopsy and finally a positive biopsy. It is very difficult to diagnose.
Try to stick with the diet, but I would avoid eating out at restaurants. I have found it very difficult to eat out without getting cross contaminated. The omelette you ate was probably prepared on a grill previously used to cook gluten containing foods, or the seasoning added could have been contaminated (I don't know for sure) but I do know that I have gotten sick from a crumb of wheat.
I hope you pursue your health issues with a doctor. Sometimes you really need to push. Best of luck!
Posted 30 January 2013 - 08:50 AM
"Acceptance is the key to happiness."
ITP - 1993
Celiac - June, 2012
Hashimoto's - August, 2012
Posted 30 January 2013 - 09:12 AM
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Posted 22 May 2013 - 01:17 PM
I could use some advice too. Flat feet? Anyone hear of flat feet associated with celiac or gluten problems? Its not me this time, one of my sons
Posted 22 May 2013 - 07:47 PM
For the first couple months, I felt very fatigued. I stopped exercising because I didn't have the energy. Once I tried to go to yoga and push through the fatigue, ...I ended up injuring myself. This went on for months. The closest thing I have felt to it was when I had a partially collapsed lung. So I deducted that my body was in repair-mode and it was taking literally all of my energy. Perhaps the same is true for you? I wasn't sleepy, but I was weary- if that makes sense. That's when I started searching this forum because I thought you were supposed to feel better right away! I am just now (after 9 months) getting to a place where my energy is more substantial most of the time. Some days I think: "This is what people feel like all the time? The things I could do with this energy!"
Definitely see a doctor and make sure nothing else is wrong as others have suggested. But, I would also suggest not eating that piece of toast! Eating it could potentially hurt you, assuming your self diagnosis is correct. Not eating it isn't gonna kill ya.
Best of Luck-
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