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Possible Sudden Increase In Sensitivity?
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My husband, a sensitive celiac who seems to do fine as long as he only eats at home (gluten free kitchen), got glutened twice in two weeks over the holidays (not careful enough when visiting family) and now it seems like he might be more sensitive than he was before that--he's somehow gotten glutened twice again eating foods at home that have been fine for him in the past. Has anyone had a similar experience or does anyone know if that is possible? Thanks!

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The damage caused by the holiday glutenings may have caused damage making him sensitive to other proteins. Give it some time for healing. Try some probiotics. Keep a food journal to see if another protein sensitivity is involved.

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Thanks for the suggestions...we are keeping a food diary but just started yesterday. What other proteins are likely culprits?

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The top 8 "allergens" are the most likely suspects. eggs, soy, fish, shellfish, nuts, tree nuts, dairy(casein protein), and wheat (already excluded in the gluten free diet)

The most likely intolerance from gluten damage is casein. The tip of the villi is where the dairy is processed and that is where most of the damage is done from Celiac.

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I think of it like a newly formed scab. It is easy to bump it off and start the bleeding again. When I am damaged I am easily bothered until I am healed again. The damage could come from some very low level of contamination that doesn't bother me when I am healthy, or it can come from some other source, like a food item that is a little hard to digest.

It is nice to have some super safe foods to go back to when damaged. Then when I have healed I can go back to being more adventurous.

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this is really interesting...so would you say that right after being glutened, you can have reactions to other foods with the same symptoms as being glutened? We've been so confused trying to figure out what he could possibly have eaten at home to cause the 3rd and 4th apparent glutening episodes...

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That would depend on the symptoms. Certainly you can get stomach pain and diarrhea from lots of things. I had this with beets, for example. It is also possible that some minor cc that didn't bother him before might bother him if he is already glutened. I think that I have experienced that too. I have a variety of symptoms and when I get all of them I am pretty sure that I am glutened. Do you have some super safe foods that he can eat until he feels better?

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Right, that's what was confusing, because he did get all his usual glutening symptoms, and we just couldn't figure out why. We've been sticking to super, super safe foods for the last few days, and so far, so good. I guess it makes sense that his level of sensitivy to CC would fluctuate depending on the condition of his whole system --I was just panicking that it was a one-way street--that he might now ALWAYS be that sensitive, and then what on earth could he eat? (especially since he's a vegetarian...)

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I am a newly diagnosed Celiac - diagnosed in early January of this year. I went almost two weeks without getting glutened. When it did happen I had lots f sneezing, scratchy throat, bloating, horrible gas, and uncontrollable diarrhea. It took me a few day for me to figure out what caused the reaction. I found out through a friend that it was Miracle Whip - the modified food starch is what got me.

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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