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      READ FIRST: Super Sensitive Celiacs Disclaimer   09/23/2015

      This section of the forum is devoted to those who have responses to gluten beyond the experience of the majority of celiacs. It should not be construed as representative of the symptoms you are likely to encounter or precautions you need to take. Only those with extreme reactions need go to the lengths discussed here. Many people with newly diagnosed celiac disease have a condition known as leaky gut syndrome, which can lead to the development of sensitivity to other foods until the gut is healed - which may take as long as one to three years. At that time they are often able to reincorporate into their diet foods to which they have formerly been sensitive. Leaky gut syndrome leads many people to believe they are being exposed to gluten when they are in fact reacting to other foods.
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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Possible Sudden Increase In Sensitivity?
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9 posts in this topic

My husband, a sensitive celiac who seems to do fine as long as he only eats at home (gluten free kitchen), got glutened twice in two weeks over the holidays (not careful enough when visiting family) and now it seems like he might be more sensitive than he was before that--he's somehow gotten glutened twice again eating foods at home that have been fine for him in the past. Has anyone had a similar experience or does anyone know if that is possible? Thanks!

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The damage caused by the holiday glutenings may have caused damage making him sensitive to other proteins. Give it some time for healing. Try some probiotics. Keep a food journal to see if another protein sensitivity is involved.

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Thanks for the suggestions...we are keeping a food diary but just started yesterday. What other proteins are likely culprits?

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The top 8 "allergens" are the most likely suspects. eggs, soy, fish, shellfish, nuts, tree nuts, dairy(casein protein), and wheat (already excluded in the gluten free diet)

The most likely intolerance from gluten damage is casein. The tip of the villi is where the dairy is processed and that is where most of the damage is done from Celiac.

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I think of it like a newly formed scab. It is easy to bump it off and start the bleeding again. When I am damaged I am easily bothered until I am healed again. The damage could come from some very low level of contamination that doesn't bother me when I am healthy, or it can come from some other source, like a food item that is a little hard to digest.

It is nice to have some super safe foods to go back to when damaged. Then when I have healed I can go back to being more adventurous.

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this is really interesting...so would you say that right after being glutened, you can have reactions to other foods with the same symptoms as being glutened? We've been so confused trying to figure out what he could possibly have eaten at home to cause the 3rd and 4th apparent glutening episodes...

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That would depend on the symptoms. Certainly you can get stomach pain and diarrhea from lots of things. I had this with beets, for example. It is also possible that some minor cc that didn't bother him before might bother him if he is already glutened. I think that I have experienced that too. I have a variety of symptoms and when I get all of them I am pretty sure that I am glutened. Do you have some super safe foods that he can eat until he feels better?

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Right, that's what was confusing, because he did get all his usual glutening symptoms, and we just couldn't figure out why. We've been sticking to super, super safe foods for the last few days, and so far, so good. I guess it makes sense that his level of sensitivy to CC would fluctuate depending on the condition of his whole system --I was just panicking that it was a one-way street--that he might now ALWAYS be that sensitive, and then what on earth could he eat? (especially since he's a vegetarian...)

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I am a newly diagnosed Celiac - diagnosed in early January of this year. I went almost two weeks without getting glutened. When it did happen I had lots f sneezing, scratchy throat, bloating, horrible gas, and uncontrollable diarrhea. It took me a few day for me to figure out what caused the reaction. I found out through a friend that it was Miracle Whip - the modified food starch is what got me.

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