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Adult Acne And Inflammation
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Hi, I'm new here. I don't have Celiac disease but I'm pretty sure I am gluten intolerant. My stomach pains go away when I eliminate gluten. I've done some on and off gluten-free diet over the past few months. I've recently been on a strict gluten-free diet for a couple weeks now. I've been tested for arthritis which came back negative. However, I do have inflammation in the body and is slowly getting worse (I'm only 32 so my tests results shouldn't be that of a 50 year old). I have recently been experiencing acne (sometimes cystic) on the face, scalp, chest and back for many months. It seems to get worse when I eat gluten foods or it could be coincidental. Does anyone know if this is related to being gluten intolerant or something else? Or perhaps I need to give my body more time to heal?

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Not saying that acne is dermatitis herpetiformis or not..but there are some postings on that board that might be helpful to you. I think your on to something with the gluten free diet helping your skin but I recommend you seeing your doctor to confirm!! I've struggled with horrible skin rashes & acne for years and am finally finding relief on a gluten free diet. But I wish I had gotten diagnosed prior to going off gluten - I see my MD next month - so I'm hopeful my results/improvement will be proof enough but I'm not sure. Good luck to you.

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Most peeps here also eliminate gluten from shampoo and other hygeine/cosmetic products. I will end up completely miserable if wheat has been in any makeup or shampoo I have used.

Some acne can be caused by vitamin defiency. Zinc is one found in water, and associated with acne breakouts when there is a defiency.

If you think the skin eruptions are DH, please get a biopsy ASAP. If gluten really is the problem, you won't want to go back to eating it.

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I had "acne" all my life on the back, back of the neck, Chest, forehead, Shoulders, and upper arms. Do you know what it was after 20 years of chasing it... It was "Eosinophilic folliculitis". Caused by very high histamine levels and high Eosonphils (allergic reaction). Less that a week on the aniti histamine Zyrtec 95% of my sores were gone, give that stuff a test run and see how you go.

It's not going to cure you quickly and you will need to cut out all your allergic foods, (probably milk protein and grains are the main ones) but if it clears up on Zyrtec you will at least know what you're dealing with.

For me going Gluten free stopped my stomach pain... for a while but the problem runs deeper than that once the damage is done.

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Ok that is really interessting because my daughter has Eosinophilic Esophagitus. Guess what there is a connection between Celiac and EE.

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All of my biopsies have been negative. I'm wondering if I should eliminate more than just gluten (like grains and dairy). I am on Claritin but I'm not sure if that is the same chemical in Zyrtec. I am unfamiliar with what ingredients contain gluten that might be hiding in my shampoo, cosmetics, etc. Can I find that out on this forum? Thanks all for your help!

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check out "acne inversa" ...

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Hi prizm, I'm a 25 year old woman who started getting acne, REALLY bad acne, around age 19. It was incredibly frustrating to have had perfectly clear skin all through puberty and then to be hit with acne as an adult! In addition to the acne, my face began taking on a red, flushed sort of look that got worse and worse over the years. Like you, I chased cures, everything from eating garlic to tetracycline to coconut oil to clearasil, and nothing worked. I finally made the gluten connection a couple of years ago, and went completely gluten-free almost a year ago.

 

I want to scream this into a megaphone for every person suffering with acne: My acne cleared up within 24 hours of being off gluten. Seriously. 24 hours. Of course, it took the remaining blemishes another few days to heal themselves, but the flushing stopped, and the new breakouts stopped. I could not believe that all those years of dreading looking in the mirror and feeling bad about myself and wondering "what's wrong here?" could have been avoided had I known just to stop eating gluten. 

 

Early on, I did a couple of experiments (eating a pastry or having a beer) and within an hour I could feel those painful bumps forming under my skin again.

 

Go gluten free for a month and see the difference in your skin (not to mention the rest of your body, if gluten is indeed the cause of your suffering). :) 

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I have to take zinc supplements to maintain a clear complexion. I think I had DH which cleared up after eliminating gluten but to keep clear of acne I have to take zinc somewhat regularly.

I have Psoriatic Arthritis which is diagnosed though symptoms of inflammation markers, skin conditions and the like not like RA where it is up front in a blood test. Look into elimination diets to figure out your trigger foods. I have virtually no joint pain anymore. I know it's a pain to go further than gluten but in time after being gluten free you can start adding more foods later. Now, I only eliminate gluten, oranges, fresh tomatoes and soy and limit sugar, dairy, grain, alcohol and it is working great. Good luck.

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    • It sure is, it really is. 
    • shellyb, I have info. for you & you may yet be able to get an official dx from your dermatologist as she sounds like she would be willing to learn. If you are dx'd with dh it is definitive & no other testing is needed. You don't need to see a GI. Im in FL & have had a long day watching Tropical Storm Hermine & making preparations for it's track which is over where I live. I'm tired! I will have links for you to reputable medical info. on the rash but it make take me till tomorrow or even longer if we lose power.  I'll be back as soon as I can. Question: You're on Dapsone now? How long have you been on it? How is it working for you? Are you getting the proper testing at regular intervals to make sure it isn't doing bad things to you? Were you gluten free before the skin biopsy?
    • Thank you so much for your quick response, GFinDC. While I wouldn't be completely opposed to another skin biopsy, I already had 4 done (3 were done prior to my dermatologist suspecting DH) so I don't love the idea of  yet another hole and scar on my body. Plus, fortunately I don't have any fresh lesions now, which I believe is needed for the biopsy. I wish I would have known to see a GI before going gluten free but I was so desperate to get any relief that I started that and Dapsone as soon as my doctor mentioned it to me.  My rash is definitely symmetrical and I have it in all of the "classic" DH spots although it basically spread over my entire body. As much as I'd like a more formal diagnosis, I really don't think I can go through all of that again. It was so bad that not only was I getting no sleep but I had to change my sheets every morning because there was blood all over them. Sorry, TMI. The worst part is that this all developed during my ninth month of pregnancy and got much worse after I delivered my baby. So not only was I dealing with this insanely itchy rash but I had a newborn and a toddler to take care of.  My daughters' pediatrician did mention doing DNA testing on me first and then my daughters to see if there's any concern that they may be susceptible. I may just go that route for now. I was just curious if others have had similar test results to mine and how did their doctors treat it? Thanks again!
    • Hey guys, the last year and a month of transitioning to totally gluten free was hard, but I now seem to be healthy. The first six months I got horrible cramps that would suddenly come and hit hard, but I really havent seen any of those since about February-March. One thing that I wouldnt say has gotten better is my psyche. I was always sort of an anxious person (hard not to be when you dont feel well yet you have "IBS" and you're just "nervous", which all of you probably know), but I am borderline hermit now. I finally went to the doctor today and was prescribed prozac, so hopefully that helps, but I was just wondering about you guys? Thanks  
    • Thank-you, thank-you! I am so relieved to have input from others who have experience with celiac disease. I'm not sure what I'm going to do about the school cafeteria. I'll ask our very nice and experienced Cafe Mgr for realistic info and details. My primary concern is the safety of my daughter and packing a lunch will not be that big a deal, even though she prefers the fresh prep instead of lunchbox offerings. Sigh. It sounds as if the 504 is unquestionably the preference over the IHCP, since the 504 is binding and follows the student through his/her academic career. I have a meeting with the admin team on Tuesday. Until then, I'm reading lots so i can be informed. And, dkader, I sent you a private message via the blog's feature. I'd certainly love to read the 504 info you have squirreled away. Thank-you so much!
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