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Why The Symptom Rebound?


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5 replies to this topic

#1 texmatt21

 
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Posted 29 January 2013 - 03:17 PM

Hi, I was confirmed celiac by blood test back in June of 2012 and the first few weeks gluten-free I felt AMAZING. I had more energy than I ever thought possible, my memory was razor sharp and the brain fog was finally gone. It was like I was awake and alive for the first time in my life and I LOVED it.

The good times didn't last though. A few weeks go by and I'm back to having no energy, depression, anxiety, the works, even though I'm sure I've been gluten free other than 5 or 6 slip ups. I have such a strong reaction to gluten, numbness and tingling in my hands, extreme fatigue so that I can't even move, migraines, bloating, etc that I feel like I would know if I was accidentally eating gluten. I get horrible symptoms from even the smallest amount of CC so I don't think it could be that.

My question is, why have my symptoms returned and not improved in the last six months even though I had such great results to start? I take probiotics every day, workout 3 times a week, and eat mostly whole foods with only the occasional bag of doritos. I know I'm lactose intolerant and avoid dairy, but I do drink Silk or lactaid. I haven't had my vitamins levels checked yet, but I think maybe I should.

Any suggestions you have will be greatly appreciated. Hope is in short supply at the moment.
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#2 mushroom

 
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Posted 29 January 2013 - 04:56 PM

Yes, I do think you should get your nutrient levels checked, vitamins, electrolytes, iron/ferritin, and also get your thyroid function checked, TSH, free T3 and free T4. Any deficiencies can really drag you down.
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Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

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Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

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#3 ravenwoodglass

 
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Posted 30 January 2013 - 06:59 AM

You might try switching to a non-soy milk and dropping the Doritos for a bit a see if it helps.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#4 Lisarose

 
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Posted 30 January 2013 - 02:36 PM

Hello,
My first thought was the Doritos... they contain monosodium glutamate which is made of gluten... possible when you first went gluten free, like others you cut out most things then started again... its tough to investigate all ingredients some times and for some people an exposure to gluten can cause huge effects even if its only a few times, kind of like starting over every time... keep your chin up, it gets easier...
Take care and keep in touch....
Lisarose
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#5 kareng

 
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Posted 30 January 2013 - 02:38 PM

Hello,
My first thought was the Doritos... they contain monosodium glutamate which is made of gluten... possible when you first went gluten free, like others you cut out most things then started again... its tough to investigate all ingredients some times and for some people an exposure to gluten can cause huge effects even if its only a few times, kind of like starting over every time... keep your chin up, it gets easier...
Take care and keep in touch....
Lisarose


MSG is not made of gluten in the US. Many people, with Celiac and without Celiac, have problems with MSG.
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LTES

 
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#6 gatita

 
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Posted 30 January 2013 - 06:58 PM

Also maybe test for SIBO? My new GI doc thinks I have it, and this study seems to show a lot of Celiacs who still have symptoms after going gluten-free have it: http://www.ncbi.nlm....pubmed/12738465
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Diagnosed with wheat hates me 4/13





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