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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Why The Symptom Rebound?
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6 posts in this topic

Hi, I was confirmed celiac by blood test back in June of 2012 and the first few weeks gluten-free I felt AMAZING. I had more energy than I ever thought possible, my memory was razor sharp and the brain fog was finally gone. It was like I was awake and alive for the first time in my life and I LOVED it.

The good times didn't last though. A few weeks go by and I'm back to having no energy, depression, anxiety, the works, even though I'm sure I've been gluten free other than 5 or 6 slip ups. I have such a strong reaction to gluten, numbness and tingling in my hands, extreme fatigue so that I can't even move, migraines, bloating, etc that I feel like I would know if I was accidentally eating gluten. I get horrible symptoms from even the smallest amount of CC so I don't think it could be that.

My question is, why have my symptoms returned and not improved in the last six months even though I had such great results to start? I take probiotics every day, workout 3 times a week, and eat mostly whole foods with only the occasional bag of doritos. I know I'm lactose intolerant and avoid dairy, but I do drink Silk or lactaid. I haven't had my vitamins levels checked yet, but I think maybe I should.

Any suggestions you have will be greatly appreciated. Hope is in short supply at the moment.

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Yes, I do think you should get your nutrient levels checked, vitamins, electrolytes, iron/ferritin, and also get your thyroid function checked, TSH, free T3 and free T4. Any deficiencies can really drag you down.

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You might try switching to a non-soy milk and dropping the Doritos for a bit a see if it helps.

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Hello,

My first thought was the Doritos... they contain monosodium glutamate which is made of gluten... possible when you first went gluten free, like others you cut out most things then started again... its tough to investigate all ingredients some times and for some people an exposure to gluten can cause huge effects even if its only a few times, kind of like starting over every time... keep your chin up, it gets easier...

Take care and keep in touch....

Lisarose

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Hello,

My first thought was the Doritos... they contain monosodium glutamate which is made of gluten... possible when you first went gluten free, like others you cut out most things then started again... its tough to investigate all ingredients some times and for some people an exposure to gluten can cause huge effects even if its only a few times, kind of like starting over every time... keep your chin up, it gets easier...

Take care and keep in touch....

Lisarose

MSG is not made of gluten in the US. Many people, with Celiac and without Celiac, have problems with MSG.

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