Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Why The Symptom Rebound?


texmatt21

Recommended Posts

texmatt21 Newbie

Hi, I was confirmed celiac by blood test back in June of 2012 and the first few weeks gluten-free I felt AMAZING. I had more energy than I ever thought possible, my memory was razor sharp and the brain fog was finally gone. It was like I was awake and alive for the first time in my life and I LOVED it.

The good times didn't last though. A few weeks go by and I'm back to having no energy, depression, anxiety, the works, even though I'm sure I've been gluten free other than 5 or 6 slip ups. I have such a strong reaction to gluten, numbness and tingling in my hands, extreme fatigue so that I can't even move, migraines, bloating, etc that I feel like I would know if I was accidentally eating gluten. I get horrible symptoms from even the smallest amount of CC so I don't think it could be that.

My question is, why have my symptoms returned and not improved in the last six months even though I had such great results to start? I take probiotics every day, workout 3 times a week, and eat mostly whole foods with only the occasional bag of doritos. I know I'm lactose intolerant and avoid dairy, but I do drink Silk or lactaid. I haven't had my vitamins levels checked yet, but I think maybe I should.

Any suggestions you have will be greatly appreciated. Hope is in short supply at the moment.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Yes, I do think you should get your nutrient levels checked, vitamins, electrolytes, iron/ferritin, and also get your thyroid function checked, TSH, free T3 and free T4. Any deficiencies can really drag you down.

Link to comment
Share on other sites
ravenwoodglass Mentor

You might try switching to a non-soy milk and dropping the Doritos for a bit a see if it helps.

Link to comment
Share on other sites
Lisarose Newbie

Hello,

My first thought was the Doritos... they contain monosodium glutamate which is made of gluten... possible when you first went gluten free, like others you cut out most things then started again... its tough to investigate all ingredients some times and for some people an exposure to gluten can cause huge effects even if its only a few times, kind of like starting over every time... keep your chin up, it gets easier...

Take care and keep in touch....

Lisarose

Link to comment
Share on other sites
kareng Grand Master

Hello,

My first thought was the Doritos... they contain monosodium glutamate which is made of gluten... possible when you first went gluten free, like others you cut out most things then started again... its tough to investigate all ingredients some times and for some people an exposure to gluten can cause huge effects even if its only a few times, kind of like starting over every time... keep your chin up, it gets easier...

Take care and keep in touch....

Lisarose

MSG is not made of gluten in the US. Many people, with Celiac and without Celiac, have problems with MSG.

Link to comment
Share on other sites
gatita Enthusiast

Also maybe test for SIBO? My new GI doc thinks I have it, and this study seems to show a lot of Celiacs who still have symptoms after going gluten-free have it: Open Original Shared Link

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Bayb replied to Bayb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Trying to read my lab results

    2. - Aussienae replied to Aussienae's topic in Coping with Celiac Disease
      65

      Constant low back, abdominal and pelvic pain!

    3. - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    4. - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    5. - mishyj replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,222
    • Most Online (within 30 mins)
      7,748

    Smith-Ronald
    Newest Member
    Smith-Ronald
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Bayb
      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
    • Aussienae
      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain. 
    • trents
      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
    • trents
      What kind of stool test was done? Can you be more specific? 
    • mishyj
      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
×
×
  • Create New...