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Reflux Is Killing Me!


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27 replies to this topic

#16 flowerqueen

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Posted 31 January 2013 - 03:43 PM

Could you enquire fom where you collect your medication from? If they don't know, they should be able to put you in touch with the manufacturer of the medication. I hope you get some answers soon.
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Under active thyroid; diabetic; hiatus hernia; acid reflux; dairy intolerant; arthritis; sciatica due to spine degeneration; diagnosed with coeliac disease November 2011; fibromyalgia; allergic to Thyme & MSG and alcohol. Allergic to TCP antiseptic, and plasters. Taking medication for severe muscle spasms in upper back.
Despite all, remaining positive!

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#17 flowerqueen

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Posted 02 February 2013 - 03:38 PM

I was having really bad acid reflux and also realized that I had an issue with salt. When I started reducing the salt in my diet I no longer get the acid reflux! I couldn't believe it!


That's very interesting! I will have to try that!
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Under active thyroid; diabetic; hiatus hernia; acid reflux; dairy intolerant; arthritis; sciatica due to spine degeneration; diagnosed with coeliac disease November 2011; fibromyalgia; allergic to Thyme & MSG and alcohol. Allergic to TCP antiseptic, and plasters. Taking medication for severe muscle spasms in upper back.
Despite all, remaining positive!

#18 islandmomma

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Posted 02 February 2013 - 05:58 PM

flowerqueen I've been wondering about that. I am not sure how to find out which drugs have gluten???

Just google it. There is a website that lists almost all meds that are gluten free or not and I found it on a simple google search a couple of weeks ago but did not save it. I then dropped two pills from my daily regimen of 15 pills a day lol and already feel better with everything I am doing.... can't get a simple doctor's appointment until two weeks from now but, so far, I seem to be doing better with my own choices than he has in many many months...

Good luck!
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#19 mushroom

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Posted 02 February 2013 - 07:49 PM

And if Dr. Google can't answer your question, get the name of the manufacturer from the pharmacy and call them. The name of the site is glutenfreedrugs.com :)
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Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

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#20 Juliebove

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Posted 03 February 2013 - 02:52 AM

Went to doc today. He put me on carafate and set up a GI consult. I have not seen a specialist since we moved here 2 years ago. He fussed at me about not going to see GI doc. He said I should be having an EGD every 6 mos to a year. He said esp since I have Barrett's esophagus. Waiting on scheduling.

However, I took the carafate and was waiting an hour before eating when I became acutely ill. Severe stomach cramps, diarrhea, vomiting, fainting. That is what happens every time I'm glutened. Coincidence? If I had accidentally glutened myself before this morning, it could explain why my reflux is so bad...

Now I feel incompetent. Anybody see a nutritionist?


I take Carafate. Not sure if it helps because I normally have no symptoms. Just the damage. I couldn't take any other GERD meds. Not only did they actually give me symptoms but caused severe migraines and weird dreams.

I do have to watch my diet. Can eat no chocolate now, ever. It is really the only thing that ever caused symptoms.

Can't say if the Carafate is gluten-free or not because gluten isn't an issue for me. I do find that laying on my left side really helps.
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#21 lil'chefy

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Posted 04 February 2013 - 07:05 AM

I have been gluten-free for 2 years now. I'm careful, but have glutened myself a couple of times. The last time was just before Christmas, when I had to get IV fluids from dehydration. I was vomiting and having diarrhea so much in only 4 hrs that I needed 2 bags of fluids just to get my blood pressure back up to somewhat normal.

First off, it seems that most other celiacs primarily have diarrhea. Is vomiting normal?

Second, I was told I have Baretts esophagus at the time of diagnosis because of severe gerd. Anyone else have this?

My biggest concern ( for the moment) is that no matter my diet, I have horrible reflux. I take 40 mg of prilosec every morning, and sometimes end up taking another 20 later in the day just to be able to keep food down. Lately it seems to be getting worse and worse.

Someone please tell me what else I can do to help with this. I am miserable.

This is so scary for me to read!!!!!! My mother had THE exact same stuff! Baretts and all. Have you had an EGD? My Mom developed malignant neuro endocrine tumors. It turns out they were treating her for severe GERD b/c of reflux symptoms, but in a last ditch effort, they found out she was making NO stomach acid, and in fact was making WAY too much gastrin, which provides a perfect environment for cancerous tumprs to grow! Ask your doctor immediately to test your gastrin levels. Run don't walk to the Dr.! People die from barrett's and it is supposed to be a drinker and a smoker's disease. If that doesn't explain you, then be very wary! Also, if the anacids aren't doing the job, then stop taking them! Get you AA checked and your gastrin levels checked! Hurry!
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#22 lil'chefy

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Posted 04 February 2013 - 07:05 AM

I have been gluten-free for 2 years now. I'm careful, but have glutened myself a couple of times. The last time was just before Christmas, when I had to get IV fluids from dehydration. I was vomiting and having diarrhea so much in only 4 hrs that I needed 2 bags of fluids just to get my blood pressure back up to somewhat normal.

First off, it seems that most other celiacs primarily have diarrhea. Is vomiting normal?

Second, I was told I have Baretts esophagus at the time of diagnosis because of severe gerd. Anyone else have this?

My biggest concern ( for the moment) is that no matter my diet, I have horrible reflux. I take 40 mg of prilosec every morning, and sometimes end up taking another 20 later in the day just to be able to keep food down. Lately it seems to be getting worse and worse.

Someone please tell me what else I can do to help with this. I am miserable.

This is so scary for me to read!!!!!! My mother had THE exact same stuff! Baretts and all. Have you had an EGD? My Mom developed malignant neuro endocrine tumors. It turns out they were treating her for severe GERD b/c of reflux symptoms, but in a last ditch effort, they found out she was making NO stomach acid, and in fact was making WAY too much gastrin, which provides a perfect environment for cancerous tumprs to grow! Ask your doctor immediately to test your gastrin levels. Run don't walk to the Dr.! People die from barrett's and it is supposed to be a drinker and a smoker's disease. If that doesn't explain you, then be very wary! Also, if the anacids aren't doing the job, then stop taking them! Get you AA checked and your gastrin levels checked! Hurry!
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#23 shadowicewolf

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Posted 04 February 2013 - 07:15 AM

I take Carafate. Not sure if it helps because I normally have no symptoms. Just the damage. I couldn't take any other GERD meds. Not only did they actually give me symptoms but caused severe migraines and weird dreams.

I do have to watch my diet. Can eat no chocolate now, ever. It is really the only thing that ever caused symptoms.

Can't say if the Carafate is gluten-free or not because gluten isn't an issue for me. I do find that laying on my left side really helps.


I can't take the meds either. I became "intolerent" to them. Outside of tums, there really isn't much i can take.
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#24 CommonTater

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Posted 05 February 2013 - 01:48 PM

I have a major problem with acid reflux. I still can't eat spicy food, can't eat any tomato based food like spaghetti sauce and can't drink coffee. I also end up taking 2 prilosec a day, one morning, one evening. I hope at some point it calms down! They had me on Nexium but my insurance refused to pay it after a year.
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After many years of suffering from Late Stage Lyme Disease I became Gluten intolerant and I'm extremely sensitive.


#25 shadowicewolf

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Posted 05 February 2013 - 05:37 PM

I have a major problem with acid reflux. I still can't eat spicy food, can't eat any tomato based food like spaghetti sauce and can't drink coffee. I also end up taking 2 prilosec a day, one morning, one evening. I hope at some point it calms down! They had me on Nexium but my insurance refused to pay it after a year.


Nexium is not meant to be a long term solution. It can do more harm then good.

Doesn't surprise me that those foods would set ya off. Those are ones that are generally connected to it.

Have you tried removing all reflux meds? I ask because when i finally went "cold turky" on them (do not suggest this) that it finally started to die down for me (over a course of a few months). Now, I still on occasion get it, but its nothing that a really starchy food and a nice big glass of water can't fix. Sometimes it goes beyond that, but its rare.
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#26 Opa3

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Posted 06 February 2013 - 07:20 AM

To date, chocolate, spices, tomato sauce, caffiene, salt (something new!), and fatty foods were mentioned. We should also avoid citrus fruits, mint, vinegar and alcohol.
To date, Rx's lansoprazol, carafate and omeprazole (aka: Prilosec) were mentioned.

My input to this very interesting topic follows;
I was Dx'ed with AR/GERD in Sept, 2007 having indulged in foods as listed. I started out with Aciphex and later used Famotidine off and on for 5 years.
In Dec, 2012, I had an endoscopy which resulted in mildly active chronic peptic duodenitis with villous abnormality and minimal squamous features of reflux. Negitive for H. pylori. My GI Doc Rx'ed 40 mg omeprazole, 30 minutes before breakfast. Based on my history with AR, one/day for the REST OF MY LIFE was recommended. It's safe, he said.

The pathology report also stated "early feature of fundic gland polyp noted." Taking PPI's (ie: omeprazole @ 20mg) long term(1,2-5 years) therapy develops these stomach polyps. Ref: thedoctorsdoctor.com/diseases/stomach_fundicglandpolyp, page 6 (of 18). I tried to link the address but didn't work.?????

I read the Patient Information Leaflet from Mylan Pharma (April, 2012) that came with my omeprazole Rx. The common side efects are headaches, abdominal pain, nausea, vomiting, gas, respiratory system events ( not explained) and fever. Also mentioned ..... may have an increased risk of fractures of the hips, wrist or spine. PPI's can inhibit the absorption of calcium, Vit. B12 and iron. Low magnesium can occur with PPI's within 3 months to 1 year. PPI's can destroy good gut bacteria causing C.Diff. Need to take probiotics with treatment.

The leaflet also states Tell Your Doctor about all the medicines you take. It lists 19. Among them is "products that contain IRON."

Omeprazole treatment(Rx or OTC) should be 4-8 weeks only. To date, my symptoms are stomach pain and gas. I will tolerate them for 8-12 weeks and stop. I will make a greater effort to avoid AR/GERD foods. Now that is the SAFEST thing we can do for ourselves. I'm 68 and my mom is 90. If God grants me another 22 years on a lifetime of PPI's, I'll die of stomach cancer.

Truely a profound title," Reflux Is Killing Me." OTC users beware.
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#27 CommonTater

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Posted 06 February 2013 - 07:35 AM

Nexium is not meant to be a long term solution. It can do more harm then good.

Doesn't surprise me that those foods would set ya off. Those are ones that are generally connected to it.

Have you tried removing all reflux meds? I ask because when i finally went "cold turky" on them (do not suggest this) that it finally started to die down for me (over a course of a few months). Now, I still on occasion get it, but its nothing that a really starchy food and a nice big glass of water can't fix. Sometimes it goes beyond that, but its rare.


Yes i did stop for a time but the ref;ux was so bad i couldn't stand it. You can't take enough Tums in 24 hours to help. After taking 2 it would return within an hour and burn all the way into my throat.
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After many years of suffering from Late Stage Lyme Disease I became Gluten intolerant and I'm extremely sensitive.


#28 shadowicewolf

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Posted 06 February 2013 - 07:39 AM

Yes i did stop for a time but the ref;ux was so bad i couldn't stand it. You can't take enough Tums in 24 hours to help. After taking 2 it would return within an hour and burn all the way into my throat.


Oh i know the feeling, trust me.
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