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Weak Positive Results
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So my 17 y/o daughter has an endoscopy scheduled in two weeks. These are her lab results, they seem confusing as to a clear diagnosis.

tTG IGA 5 - <4 normal

Gliadin (deamidated) AB (IGA) 7- normal <20

Immunoglobulin A 298 - 81-463 normal

Is this enough to call her celiac?

I'm not thrilled about a possible diagnosis as she will be moving away for college and I'm not sure how she's gonna deal w a limited diet when she's out w friends. She doesn't like pasta and doesn't really eat a lot of bread but I want an accurate endoscopy result, how much gluten is needed to get an accurate biopsy result?

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Welcome to the board, Marie. If your daughter has not been eating much gluten it could account for her relatively low (but still tTG positive) results. (You do not have to be positive on every test to be a celiac). I would give her as much gluten as she can tolerate in the next couple of weeks, although two weeks isn't long in the scheme of things for small intestinal damage (which is what they are looking for). However, if she has the antibodies in the blood she may have the damage already. The fact that she does not eat bread and pasta may be a reflection of their not agreeing with her??

Moving away to college, she does need a diagnosis, especially as I guess she will be living in the dorms the first year and on a food plan. Talk to her doctor about what it willl take for him to give her a diagnosis. You will need to check with the school about how they handle food for those who must eat gluten free. Some will allow fridge and microwave in the dorm, some will allow off-campus living, some insist on eating in the cafeteria. So you will need to explore this issue.

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Thank you for your response. I am trying to get her to eat more full on gluten items but she is already seing that her body doesn't like them. When she was little she would tell me that some things would give her a stomachache and I thought it was because she was trying to get what she wanted instead.

I did look at the university she's seriously looking at and they claim to offer a gluten free menu. I will get more in depth into it if she's diagnosed. She has been having a lot of GI pain, bloating and nonstop burping when her pain is worse. Her stomachache seems to respond to Prilosec. At this point I want a definitive diagnosis so we can move ahead and stop her suffering. She's going to children's in Los Angeles so I hope they have a better grasp on this diagnosis than your local GI.

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Bloating and non-stop burping/belching was my major presentation. On, and on, and on..... I was quite the windbag :lol: You are making all the right moves. Good luck and best wishes for an accurate diagnosis. :)

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
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