Nervous About Results
Posted 30 January 2013 - 07:27 PM
Over the course of my life I have brought up some of my symptoms to doctors and always end up with negative results. They usually ended the conversation with start a healthy diet, exercise and wanting to prescribe some form of medicine. I have been given anti-depressants, ADD meds etc. Non seem to help.
Late November 2012 my constipation got so bad that I was having to take about 3 laxitives to feel some form of relief. After confiding in a friend, she advised that I see a endocrinologist, perhaps it might by hypothyroidism. Met with the Doc who was rather a skeptic about my symtoms. He did blood work found, thyroid to be fine but did find vitamin D dificiency, high cholestrol, and elevated platelets in my blood. He prescribed vitamine D pills and suggested I see a GI doc.
Met with GI....I really liked him didnt make me feel like a pyscho that was making up symptoms. He did more blood test, and today I had a endoscopy and colonoscopy. I have to wait 2 weeks for results, by the time I woke up from recovery doc was gone but told my friend that everything looked good. I read the report he gave me, which has pictures and found colon to be normal, except for hemmoroid.....
Endo has the following:
ESOPHAGUS: The Z line was visualized at 36 cm from the entry site and appeared slightly irregular, Ring w associated, mild, mucosal edema and erythema; Bx done.
STOMACH: There was a diminutive sliding hiatus hernia visible in the stomach. Mildly diffuse erythematous mucosa was found in the antrum. Forceps biopsy performed.
DUODENUM: The duodenum appeared to be normal.
I WOULD LOVE SOME FEEDBACK IF ANYONE HAS ANY SUGGESTIONS OR CAN HELP ME UNDERSTAND THE ENDO RESULTS LISTED ABOVE.
The doc prescribed a reflux medicine.....I'm just afrad that they will once again just mask the problem by applying bandaid.
Sorry for the lengthy post but I am desparate. I am tired of feeling like I am making this up. Even as I conclude this email my arms feel like I have just run a race.....extremely fatigued.
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Posted 31 January 2013 - 08:37 AM
I can't help you with the GI report language, but I can tell you this part of our story. Our oldest son was 16 at the time of his endoscopy, his only symptoms (that we realized at the time) were short stature and delayed puberty. Never any digestive issues. The GI doc spoke with me immediately after the procedure and said that VISUALLY, everything looked normal, but they had taken several biopsies. And the biopsies are where they found that he did indeed have celiac. We went gluten-free with him and he grew over 7 inches in less than 2 years!
I hate to say it, but I think it's a relief for many to get a diagnosis of celiac disease. Those two words can explain YEARS of pain, lots of doctor visits, and many misdiagnoses. I hate that this disease is unfamiliar to so many doctors, but it's the root of so many diseases and ailments that are -- and those familiar ailments are the ones that get treated while the real culprit goes undetected.
Hang in there and continue to be your own advocate. I think you could be on the right track!
Posted 31 January 2013 - 02:28 PM
Best wishes on your results and do share them with us if you would care to. Did you get back the results of your celiac blood work?
Welcome to the forum and let us know how we can help you.
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
Posted 31 January 2013 - 06:40 PM
I know there is a chance that it will be totally negative, but all that means is that you you might be one of the 25% who ends up with a false negative test, or that you are not a celiac... BUT you could have non-celiac gluten intolerance (NCGI) which means that gluten is causing all of the same nasty symptoms that celiac causes, but without the autoimmune damage (we think). Either way, it could be time to consider a gluten-free trial of about 6 months to see if that helps. Give it a few months. I also had "c" and it took a few months of eating gluten-free for it to START improving; at 6 months in, it is still slowly getting better.
I also wanted to know if you knew your thyroid results? Doctors are notorious for just testing the TSH and then not even considering a thyroid problem if a patient has symptoms (as you know, you really do have the symptoms) and the TSH falls in the normal range, or near it. My doctors mismanaged my hypothyroidism for about 15 years because they would only test TSH, and when my TSH did go out of range they did not consider treatment... they would just retest it until it came back to the top of the normal range (a 6 up here).
For a complete thyroid test, the doctor should look at (at least) TSH, Free T4, Free T3, and TPO Ab. Most people feel best when TSH is near a 1, TPO AB is almost nonexistant, and Free T4 and T3 are near the 75% mark of the reference range for that lab. If these tests weren't done, you should have them done... in my humble non-medical opinion.
"Acceptance is the key to happiness."
ITP - 1993
Celiac - June, 2012
Hypothyroid - August, 2012
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