Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Dr. Stunned By My Results :)
0

6 posts in this topic

I have rheumatoid arthritis and have to have my blood drawn every six weeks to check for liver toxicity from the drugs. In 8 years they've always come back normal. In December they came back elevated. I stopped meds and mid-January was retested, they more than doubled! I had an ultrasound (normal) and other blood work done (normal). I did some research on my own and found that high liver enzymes can be the result of celiac. I had more tests done and then went 100% gluten free for a week. Dr. called with results. Liver tests were not only back to normal but were on the low side of normal! He said he really didn't expect the celiac to be the cause but it is! He was totally surprised, said that it's not a common "symptom" and he wasn't expecting positive results from it. Now, I stay 100% gluten free, and then I came home, put dinner in the crockpot and THEN realized the soup I used has wheat flour ..... *sigh*.... husband will have that, I will fix myself something different, lol! Old habits are going to be hard to break!

1

Share this post


Link to post
Share on other sites


Ads by Google:

I am so glad to hear your liver miraculously "cured" itself in the absence of gluten. Unfortunately, rheumatologists are very slow to pick up the celiac connection. My rheumy here is on board; the one in Nevada totally pooh-poohed the idea, said he had never had a rheumatology patient with celiac. I looked him in the eye and asked him how many he had tested :ph34r: -- he said "None", so I asked him how he knew, and then I told him he could no longer say that because he had me :D

I was just thinking this morning of what a poster said yesterday about a comment, "Oh no, not another internet doctor!" and it occurred to me that without the internet so many of us would at least be undiagnosed, at the worst dead, without the internet, because we are the only ones interested enough in our bodies to do the research. Most of our doctors are content with what they already know, and use the excuse of "I was in medical school 40 years ago" to cover up the fact that they don't keep current, even in their own field.

Don't worry about those momentary lapses - they happen to the best of us. At least you realized it before you ate it. Just the other day I ordered a decaf coffee and a gluten free snack. My coffee arrived before the snack and came with an itsy bitsy cookie on the spoon. It got as far as my teeth and bitten in half before the lightbulb stage - here I had made sure my coffee was decaf and was eating a gluten cookie - the barista did not know I had ordered gluten free food!! :)

0

Share this post


Link to post
Share on other sites

You'd be surprised how damaging gluten can be.

I remember those last few weeks on gluten. I was sicker than a dog! Once i went off of it, the vomiting completely stopped and so did the "D". I was so ill during that time that i dropped about 40 lbs in little over a month. That is so NOT normal. I remember during that time i'd eat simple things, some plain tossed salad, water, lunchmeat, plain pasta (nothing added to it), sometimes milk. I'd also do waffles sometimes too. But one day i wanted to try some rasin bran. Yeah, that didn't go well. Eventually the plain pasta got to me as well (which really freaked me out because i ate a couple of bites and my stomach starated rolling and my mouth watering like mad).

Gluten eaters can keep their gluten.

0

Share this post


Link to post
Share on other sites

That's great that your liver responded so well... and so quickly!! I hope you continue to feel better. :)

0

Share this post


Link to post
Share on other sites

That's good news on the liver enzymes going down. But your doc is a little out of touch. Elevated liver enzymes are fairly common with celiac disease from my understanding. And they tend to return to normal after starting the gluten-free diet.

0

Share this post


Link to post
Share on other sites




I think my biggest struggle will be my husband, he's very much a "a little bit won't hurt you" type of person. I don't think he understands the seriousness of celiac and that a little bit WILL hurt me. So glad to have answers now.

1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,345
    • Total Posts
      920,489
  • Topics

  • Posts

    • I am sorry that you are sick!   Unfortunately, all celiac testing requires you to be on gluten.  😔.   Testing is usually not over until you get an actual diagnosis, but it appears that you may very well have celiac disease.    Here is more information: http://www.cureceliacdisease.org/screening/ http://theceliacmd.com/2015/06/six-reasons-to-test-for-celiac-disease-before-starting-a-gluten-free-diet-3/ in the meantime, you can eliminate dairy products temporarily.  It may provide some relief.  
    • Karen, the iodine test was a test for DH used in the 'olden' days. Iodine would be swabbed onto a spot and then it would be covered with a bandage. If someone had DH the iodined area would break out in lesions. I don't know how but we do know iodine can activate the antibodies. That is why some of us with DH have to avoid iodine in foods until the antibodies have cleared the dermis. OP, if you haven't been tested for celiac you should be and if you have active lesions a biopsy done next to a lesion by a DH knowledgable dermatologist may help in diagnosis.
    • The gluten-free diet (GFD) is the only validated treatment for celiac disease (celiac disease), but despite strict adherence, complete mucosal recovery is rarely ... View the full article
    • What's an " iodine test"?  Haven't heard doctors doing that to diagnose DH.
    • Hello! I've just been given my blood results and told they are highly suggestive of coeliacs but will have to wait till next month to see the gastroenterologist and who knows how much longer for a biopsy. My igA, igG and tissuetrans igA were all over 250 and tissuetrans igG was the only one that was normal. These results don't mean much to me yet but I'm told they are very high. I'm now quite fearful of how much damage I've gone to myself. I've had stomach problems for 25 years (just turned 40) and have often steered clear of too much bread and pasta for how bloated it made me feel but the symptoms were always vague and inconsistent so I kept eating. I had a couple of boats of gastro in the past few months (thanks kids) which I took a lot longer than normal to recover from which looking back may have been related. Then last Friday I had a blowout with wine, cheese, crackers, pizza and chocolate cake. I'm sure I've probably had blowouts like that before but I have never felt so sick before and am still slowly recovering. This is what finally prompted me to go back to my GP after being fobbed off so many times over the years. So I guess my question and my concern is whether there is still  chance of a false positive with levels like this? I worry what else it might be if not coeliac. I'm also worried that I may have done so much damage to myself that I will have several disorders going on! I'm also still recovering from last Friday and wondering when I'm going to feel better. I've stayed off gluten and dairy since my blood result a couple of days ago but feel like I'm allergic to food in general.  Thankyou!!    
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,415
    • Most Online
      1,763

    Newest Member
    Ails123
    Joined