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Dr. Stunned By My Results :)


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#1 Ann1231

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Posted 31 January 2013 - 10:15 AM

I have rheumatoid arthritis and have to have my blood drawn every six weeks to check for liver toxicity from the drugs. In 8 years they've always come back normal. In December they came back elevated. I stopped meds and mid-January was retested, they more than doubled! I had an ultrasound (normal) and other blood work done (normal). I did some research on my own and found that high liver enzymes can be the result of celiac. I had more tests done and then went 100% gluten free for a week. Dr. called with results. Liver tests were not only back to normal but were on the low side of normal! He said he really didn't expect the celiac to be the cause but it is! He was totally surprised, said that it's not a common "symptom" and he wasn't expecting positive results from it. Now, I stay 100% gluten free, and then I came home, put dinner in the crockpot and THEN realized the soup I used has wheat flour ..... *sigh*.... husband will have that, I will fix myself something different, lol! Old habits are going to be hard to break!
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hypothyroid
hypoglycemic (diagnosed 1997 but symptomatic since grade school)
fibromyalgia
rheumatoid arthritis (diagnosed January 2005)
peanut allergy

restarting gluten-free January 20, 2013

elevated liver enzymes + symptoms indicated celiac January 31, 2013. Dr. didn't want to run further tests due to other health complications

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#2 mushroom

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Posted 31 January 2013 - 10:38 AM

I am so glad to hear your liver miraculously "cured" itself in the absence of gluten. Unfortunately, rheumatologists are very slow to pick up the celiac connection. My rheumy here is on board; the one in Nevada totally pooh-poohed the idea, said he had never had a rheumatology patient with celiac. I looked him in the eye and asked him how many he had tested :ph34r: -- he said "None", so I asked him how he knew, and then I told him he could no longer say that because he had me :D

I was just thinking this morning of what a poster said yesterday about a comment, "Oh no, not another internet doctor!" and it occurred to me that without the internet so many of us would at least be undiagnosed, at the worst dead, without the internet, because we are the only ones interested enough in our bodies to do the research. Most of our doctors are content with what they already know, and use the excuse of "I was in medical school 40 years ago" to cover up the fact that they don't keep current, even in their own field.

Don't worry about those momentary lapses - they happen to the best of us. At least you realized it before you ate it. Just the other day I ordered a decaf coffee and a gluten free snack. My coffee arrived before the snack and came with an itsy bitsy cookie on the spoon. It got as far as my teeth and bitten in half before the lightbulb stage - here I had made sure my coffee was decaf and was eating a gluten cookie - the barista did not know I had ordered gluten free food!! :)
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Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

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Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

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#3 shadowicewolf

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Posted 31 January 2013 - 10:49 AM

You'd be surprised how damaging gluten can be.

I remember those last few weeks on gluten. I was sicker than a dog! Once i went off of it, the vomiting completely stopped and so did the "D". I was so ill during that time that i dropped about 40 lbs in little over a month. That is so NOT normal. I remember during that time i'd eat simple things, some plain tossed salad, water, lunchmeat, plain pasta (nothing added to it), sometimes milk. I'd also do waffles sometimes too. But one day i wanted to try some rasin bran. Yeah, that didn't go well. Eventually the plain pasta got to me as well (which really freaked me out because i ate a couple of bites and my stomach starated rolling and my mouth watering like mad).

Gluten eaters can keep their gluten.
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#4 nvsmom

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Posted 31 January 2013 - 04:06 PM

That's great that your liver responded so well... and so quickly!! I hope you continue to feel better. :)
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"Acceptance is the key to happiness."

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#5 GFinDC

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Posted 31 January 2013 - 07:59 PM

That's good news on the liver enzymes going down. But your doc is a little out of touch. Elevated liver enzymes are fairly common with celiac disease from my understanding. And they tend to return to normal after starting the gluten-free diet.
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Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul

#6 Ann1231

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Posted 01 February 2013 - 08:18 AM

I think my biggest struggle will be my husband, he's very much a "a little bit won't hurt you" type of person. I don't think he understands the seriousness of celiac and that a little bit WILL hurt me. So glad to have answers now.
  • 1
hypothyroid
hypoglycemic (diagnosed 1997 but symptomatic since grade school)
fibromyalgia
rheumatoid arthritis (diagnosed January 2005)
peanut allergy

restarting gluten-free January 20, 2013

elevated liver enzymes + symptoms indicated celiac January 31, 2013. Dr. didn't want to run further tests due to other health complications


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