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20 replies to this topic
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Advanced Community Member
Posted 04 February 2013 - 06:21 AM
Wow, this happens to me to! Do you think it is celiac related? Or a hypothyroid issue? What is your blood pressure like?One other thing I thought I would mention is that there are times when I feel also very dizzy right when I wake up and actually if I wake up too abruptly and get up, like to check on an upset child I pass out, and have done this a couple of times. It doesn't happen often but has happened a couple of times.
Advanced Community Member
Posted 04 February 2013 - 10:15 PM
"Migratory flight complete."
Posted 05 February 2013 - 08:29 AM
I don't know if this will help you or not, but some people with mild sleep apnea benefit from sleeping in an XL tee shirt with 3 tennis balls sewn down the back. You stick a ball in an athletic sock, stich it up, and repeat twice (at intervals) , then sew the sock onto the back of a tee shirt. I'm not even close to being Betty Crocker, but I made one of those. (Hand stitched.)
I looked for a link and found this U Tube thing. It's a sales pitch but it explains the reason, and gives you something to go on.
Dr's used to recommend sewing them vertically, it looks like this guy prefers horizontal, and coozie cups or cut up noodles vs. tennis balls.
The tennis balls are to prevent you from sleeping on your back so that your airways aren't as restricted by your uvula. (I probably didn't spell that correctly.) Anyway, that might be worth a try before you have to pay out of pocket for a CPAP or oxygen. If you qualified for insurance, I'm pretty sure your doctor would have ordered it. That doesn't mean that you don't have a sleep problem, just that insurance probably won't cover it.
Let us know if you give it a whirl how it turns out!
-Lisa
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
6/1/13 - Slowly trialing a few of the items above - haven't gotten any back, but some reactions have been less severe 
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
Advanced Community Member
Posted 05 February 2013 - 04:58 PM
Community Member
Posted 07 February 2013 - 03:13 PM
They had to put the settings to 23/18 in order to accomplish saturation to their satisfaction during my sleep study. The day following I vomited and had diarrhea most of the day - haven't been that sick in a long time, even with gluten. So I was definitely not interested in pursuing that avenue of unwellbeing. They took my blood gases before the study, but they should have taken them after the study.
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