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Does Anyone Else Experience This?
#1
Posted 31 January 2013 - 09:59 PM
Chocolate Free since 2013
#2
Posted 31 January 2013 - 11:15 PM
Misdiagnosed DH symptoms for 30 years in the form of blisters on shoulders, scalp, sole of foot and lower back.
Type II Diabetes 1995 / Fatty liver biopsy 2001
Diagnosed with NH Lymphoma in 2007 metastasized to bones & Stage IV by 2008 - Chemotherapy in 2008
Breakout of rash from scalp to sole of feet. February 28, 2012
Iron deficiency anemia - July of 2012 / Osteoarthritis from shoulders down diagnosis. September 2012
2012 Rash was diagnosed as Eczema, Grover's Disease, Folliculitis per biopsies of the lesions. September 2012
PCP prescribed Dapsone and Gluten-Free diet on October 20, 2012 ~ Diagnosis of Celiac/Dermatitis Herpetiformis
Fifth Dermatologist seen noted DH on my chart per relief from Dapsone and diet. February 18, 2013
~Lyn~
#3
Posted 31 January 2013 - 11:27 PM
The fainting, however, is probably unrelated. Do you have issues with blood pressure? Low blood sugar?
Asperger's syndrome
Stress issues
Celiac
Allergic to red food coloring.
#4
Posted 31 January 2013 - 11:38 PM
#5
Posted 01 February 2013 - 09:52 AM
Chocolate Free since 2013
#6
Posted 01 February 2013 - 02:15 PM
OK, so if it is an allergy, you can get tested by an allergist.
Pretty sure I saw that neck swelling thing on Vampire Diaries once...
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul
#7
Posted 01 February 2013 - 08:46 PM
Chocolate Free since 2013
#8
Posted 02 February 2013 - 07:25 AM
I am 100% off of gluten. I have made sure that I don't have any contact at all if I can help it. I still break out in these rashes. I don't know what could be causing it. The doctor says it's allergies. I am off gluten, chocolate, and anything with dyes or colors. It doesn't seem possible to live without breaking out in a rash. Sometimes I just wished I lived in a bubble. Does anyone else feel like that?
Raising hands & jumping up & down here! Me, me, me, me, me --- where's my bubble?
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012
#9
Posted 02 February 2013 - 07:50 AM
There is a rash associated with celiac disease called dermatitis herpetiformis (DH). There is section of the forum for DH with more info. So, yes, some people do get a rash from gluten.
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul
#10
Posted 03 February 2013 - 11:13 AM
I am 100% off of gluten. I have made sure that I don't have any contact at all if I can help it. I still break out in these rashes. I don't know what could be causing it. The doctor says it's allergies. I am off gluten, chocolate, and anything with dyes or colors. It doesn't seem possible to live without breaking out in a rash. Sometimes I just wished I lived in a bubble. Does anyone else feel like that?
Raising hands & jumping up & down here! Me, me, me, me, me --- where's my bubble?
Me too!! I definitely need a bubble!!
Been tested, and mine is gluten related! I've had to cut back on body washes and hair care products. I'm still learning...
#11
Posted 14 February 2013 - 07:10 PM
I am 100% off of gluten. I have made sure that I don't have any contact at all if I can help it. I still break out in these rashes. I don't know what could be causing it. The doctor says it's allergies. I am off gluten, chocolate, and anything with dyes or colors. It doesn't seem possible to live without breaking out in a rash. Sometimes I just wished I lived in a bubble. Does anyone else feel like that?
Yes! I do! Sometimes I wonder how on earth I can continue to live the rest of my life going through this kind of hell! They can send probes to Mars but they can't figure out how to cure an unbearably itchy, burning, prickling rash! What's THAT all about?! :-/
#12
Posted 15 February 2013 - 12:48 AM
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
------------
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
#13
Posted 15 February 2013 - 08:17 AM
So I have allergies to some things, but the rash I get is from eating gluten (unless I play in desert plants, but that's a different rash).
You can have both celiac/DH and a wheat allergy. You may need to start on an oral allergy med to feel "safe" in places like grocery stores, etc. and you need to see an allergist.
Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND.
Responsive to iodine withdrawal for DH (see quote, above).
Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!
#14
Posted 15 February 2013 - 05:28 PM
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012
#15
Posted 16 February 2013 - 04:21 PM
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul
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