Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Does Anyone Else Experience This?

rebeccanicole88

By rebeccanicole88
in Dermatitis Herpetiformis

Recommended Posts

rebeccanicole88 Rookie
rebeccanicole88
Posted

Over the weekend I touched bread and then touched my neck. I broke out in hives. I have never broke out in hives from touching gluten. Not too long after that I started feeling sick. I fainted several hours later. I know hives is normal but does fainting happen if you come in contact with gluten? Has anyone else had this happen to them.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sisterlynr Explorer
sisterlynr
Posted

Not me. . . sorry can't help you. That would be horrible!

Link to comment
Share on other sites
shadowicewolf Proficient
shadowicewolf
Posted

Sounds like you've developed an allergy to it.

The fainting, however, is probably unrelated. Do you have issues with blood pressure? Low blood sugar?

Link to comment
Share on other sites
Carebear Apprentice
Carebear
Posted

Are you sure they were hives? Did they show up immediately or fairly soon after? It definitely sounds like an allergy, but I've had problems where i touch gluten and get a dry itch rash ~2 hours later. ick. I really hope you figure it out!

Link to comment
Share on other sites
rebeccanicole88 Rookie
rebeccanicole88
  • Author
Posted

It was immediately. I've been able to touch gluten products and not break out, as long as I wash my hands right after. Now it's gotten to the point that all I have to do is come in contact with it and a rash or hives develops. It use to be just being sick after consuming it. I found out I have low blood pressure. My blood sugar levels are normal.

Link to comment
Share on other sites
GFinDC Veteran
GFinDC
Posted

I got sick from smelling a woman's perfume once. She must have used a whole bottle of the stuff.

OK, so if it is an allergy, you can get tested by an allergist.

Pretty sure I saw that neck swelling thing on Vampire Diaries once...

Link to comment
Share on other sites
rebeccanicole88 Rookie
rebeccanicole88
  • Author
Posted

I am 100% off of gluten. I have made sure that I don't have any contact at all if I can help it. I still break out in these rashes. I don't know what could be causing it. The doctor says it's allergies. I am off gluten, chocolate, and anything with dyes or colors. It doesn't seem possible to live without breaking out in a rash. Sometimes I just wished I lived in a bubble. Does anyone else feel like that?

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted

I am 100% off of gluten. I have made sure that I don't have any contact at all if I can help it. I still break out in these rashes. I don't know what could be causing it. The doctor says it's allergies. I am off gluten, chocolate, and anything with dyes or colors. It doesn't seem possible to live without breaking out in a rash. Sometimes I just wished I lived in a bubble. Does anyone else feel like that?

Raising hands & jumping up & down here! Me, me, me, me, me --- where's my bubble? :lol:

Link to comment
Share on other sites
GFinDC Veteran
GFinDC
Posted

Hi Rebecca,

There is a rash associated with celiac disease called dermatitis herpetiformis (DH). There is section of the forum for DH with more info. So, yes, some people do get a rash from gluten.

Link to comment
Share on other sites
soyjoy318 Newbie
soyjoy318
Posted

I am 100% off of gluten. I have made sure that I don't have any contact at all if I can help it. I still break out in these rashes. I don't know what could be causing it. The doctor says it's allergies. I am off gluten, chocolate, and anything with dyes or colors. It doesn't seem possible to live without breaking out in a rash. Sometimes I just wished I lived in a bubble. Does anyone else feel like that?

Raising hands & jumping up & down here! Me, me, me, me, me --- where's my bubble? :lol:

Me too!! I definitely need a bubble!!

Been tested, and mine is gluten related! I've had to cut back on body washes and hair care products. I'm still learning...

Link to comment
Share on other sites
  • 2 weeks later...
Itch Be Gone Newbie
Itch Be Gone
Posted

I am 100% off of gluten. I have made sure that I don't have any contact at all if I can help it. I still break out in these rashes. I don't know what could be causing it. The doctor says it's allergies. I am off gluten, chocolate, and anything with dyes or colors. It doesn't seem possible to live without breaking out in a rash. Sometimes I just wished I lived in a bubble. Does anyone else feel like that?

Yes! I do! Sometimes I wonder how on earth I can continue to live the rest of my life going through this kind of hell! They can send probes to Mars but they can't figure out how to cure an unbearably itchy, burning, prickling rash! What's THAT all about?! :-/

Link to comment
Share on other sites
mushroom Proficient
mushroom
Posted

SoyJoy and Itch Be Gone, have you read the Dermatitis Herpetiformis thread through, and restricted your intake of Iodine? Many DH sufferers find that iodine really aggravates their rash.

Link to comment
Share on other sites
pricklypear1971 Community Regular
pricklypear1971
Posted

An immediate rash from touching gluten sounds more like an allergy than DH. I can touch gluten without a rash. I do gave itchy/swelling reactions to some topical items that may/may not contain gluten ....

So I have allergies to some things, but the rash I get is from eating gluten (unless I play in desert plants, but that's a different rash).

You can have both celiac/DH and a wheat allergy. You may need to start on an oral allergy med to feel "safe" in places like grocery stores, etc. and you need to see an allergist.

Link to comment
Share on other sites
squirmingitch Veteran
squirmingitch
Posted

I sort of gave the wrong impression in my statement. Yes, I feel like living in a bubble but not b/c touching gluten affects me. It's because I've been having such a rough time with a dh flare & my skin is torn up from it. I feel like living in a bubble of perfect temp., moisture, & whatever it takes to not aggravate the dh.

Link to comment
Share on other sites
GFinDC Veteran
GFinDC
Posted

If you live in a bubble I get to poke you with a stick! Right ? Please, please.. :D

Link to comment
Share on other sites
squirmingitch Veteran
squirmingitch
Posted

Awright gluten-free you can poke my bubble with a stick. Just beware of what you pop. It may explode all over you! :lol: :lol: :lol:

Link to comment
Share on other sites
rebeccanicole88 Rookie
rebeccanicole88
  • Author
Posted

Thanks everyone. What is iodine? I'm planning on talking to my doctor. It doesn't matter how much I shower or wash my face. My face, my neck, and my chest is always broke out in a rash. The last doctor I saw told me "you have an allergy"

Link to comment
Share on other sites
squirmingitch Veteran
squirmingitch
Posted

Gluten fires up dh rashes; iodine fans the flames.

For a low iodine diet see:

Open Original Shared Link

Of course you have to cut the gluten out of the low iodine diet.

Link to comment
Share on other sites
rebeccanicole88 Rookie
rebeccanicole88
  • Author
Posted

That leaves a lot of food I can't eat. Can my doctor check for that allergy. I already have cut out chocolate completely as I think it was causing the inside of my mouth to break out.

Link to comment
Share on other sites
squirmingitch Veteran
squirmingitch
Posted

If you think you have dh then many of us have to go low iodine to bring it under control. What I'm talking about is not an allergy to iodine but something that can make the dh flare or flare worse. So, technically, in this instance, NO, your doc can not test it like it's an allergy.

Hey, I am both gluten-free & low iodine ---- lots of foods I'm not eating. Lots of us do this. Sucks but the alternative sucks worse.

Link to comment
Share on other sites
cahill Collaborator
cahill
Posted

Hey, I am both gluten-free & low iodine ---- lots of foods I'm not eating. Lots of us do this. Sucks but the alternative sucks worse.

true dat !

For those of us with thyroid issues and DH it becomes a wonderful <_< ( sarcasm ) balancing act

Link to comment
Share on other sites
rebeccanicole88 Rookie
rebeccanicole88
  • Author
Posted

Thank you I will look into the iodine. It seems like this rash is getting worse everyday

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,183
    • Most Online (within 30 mins)
      7,748
    Bernadine
    Newest Member
    Bernadine
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Finding out I’m coeliac whilst pregnant

      By Beverage · Posted

      Sounds like you are in the UK. With blood numbers that high, I thought docs in UK would give an official diagnosis without the biopsy. You should ask about that, so you can get support faster.  I'd try to find and print out anything that supports that in your country, get another appointment and take all of it with you. Even in the US now, some docs are doing this, my 19 year old step granddaughter got an official diagnosis here in US with just blood results a few months ago.
    • Beverage
      Seeking Gluten-Free Advice for My Trip to South Korea!

      By Beverage · Posted

      Is soy sauce in Korea also made from wheat like it usually is in US? I'd be concerned that even if asking about gluten, they would not be aware of or think of some like that. 
    • trents
      Not Sure What to Think

      By trents · Posted

      That's a good idea. It can at least establish the potential for developing celiac disease and can help people decided between a celiac diagnosis and NCGS (Non Celiac Gluten Sensitivity). And it doesn't require a gluten challenge and can be had without a doctor's prescription.
    • awright24
      Anyone had endoscopy with a cold/cough???

      By awright24 · Posted

      I have my endoscopy on Thursday, has anyone had the procedure done with a cough? I don't have a continuous cough, but every now and then throughout the day I have sort of coughing episodes. They are a lot better than they were but I called endoscopy and they said to speak to my gp and my gp got back to me and said I need to ask endoscopy if its ok if I have it done still.  Help!
    • MMH13
      Not Sure What to Think

      By MMH13 · Posted

      Thank you so much, everyone. For the moment my doctor just has me taking iron but hopefully we can reconnect soon. I'm going to look into genetic testing, too. Great advice all around and I appreciate it--and you can bet I'm going off the PPIs!
×
×
  • Create New...