Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Back On Track (And What Next?)
0

4 posts in this topic

Hi All

Just wanted to check in with an "experiment" of mine. I wreacked havoc on my gut over the holidays (ccd, butter, horrible NYE sickness, ergh), and decided that in order to heal, I had to not take any risks.

So, I have cooked every last one of my meals at home for over 3 weeks, and only one meal out in the past 4 weeks at least (which my gut didn't like very much, but didn't seem to result in a glutening/soying, so that's good)

That means I know for (almost) certain that I haven't consumed any gluten, dairy, or soy in that time.

Verdict: Better. No horrid pains or bad brain fog after meals (still some mild sleepiness depending on how much I ate). I've had some constapation, but everything seems to be digesting.

I'm not 100% by any means (but it's the middle of the winter. Who isn't a little sluggish), and my stomach is still irritated by random things sometimes (bananas? whaa? and too much spice), and I've noticed that chocolate give me a bit of a headache (hopefully not a precursor to inheriting my dad's migraines), but mostly better.

So, what next?

I can't realistically never eat out again (I could. I know a lot of people here have to, but it's not worth it for me), but I can be extra careful of the places I choose and what I decide to have. Save it for date nights and travelling.

At this point, I don't think there's any other foods I need to cut out, though I aparently need to go easy on spice and acidic things, can't have more than a couple drinks at once, which tells me the gastritis that showed up on my endoscopy in the fall may not have completely healed? Since my first gastroentrolonogist visit was kind of a flop, should I try to see someone who will actually check things out again to see if it's healing or not?

Another question is now that I've gotten things straightened out again, would it be worth trying to reintroduce some things I've been avoiding, like quinoa (after last summer's horrific quinoa incident) and brown rice. I don't know if I'm intolerant to these, or just that my stomach wasn't in a state to handle them at the time?

Anyway, and advice or encouragement or whatever would be helpful.

If nothing else, I've saved lots of $ on food this month!

Thanks guys

Cheers

Peg

1

Share this post


Link to post
Share on other sites


And what next? Stay on track! :) Keep the throttle down but ease off on the corners.

Since your diet is working for you right now, stick with it. If you want to try adding thing back in, take it slow. Try adding one new thing per week. Being in a hurry to get sick again doesn't make a lot of sense. So take your time and add things slowly. Slowly, thoughtfully, prayerfully. Don't forget to bow and curtsy to strangers also. OK, joking a little bit. But, you get the idea no? It is fine to restrict your diet for a while, but then re-adding foods should be done slowly so you can detect problems easily. Eating out is easy, as long as you take your own food. :)

Sorry, gots a little sugar rush going on..

1

Share this post


Link to post
Share on other sites

Yeah, keep on track. I have had adventourous eating out many times lately. I sit in the parking lot of the fast food place my family is in. I eat in the car. Last time the temp outside was around 4 degrees F! Don't worry, I kept the heat going. Oh, the yummy food I have tantelized my family with while driving. I have a car oven and the sweet potato smell is pretty irresistable for weary travelors.

I have a box in my car with plates, plastic wear, napkins and salt. This helps avoid licking spaghetti straight off plates as happened once when I forgot forks.

When I leave for more than an hour I try to be sure to pack a meal. Hard boiled eggs in a carton, some nuts, or a foiled dinner prevent me from getting desperate. This helps me keep on track.

I am glad to hear you are doing well. I don't know about adding things back yet. I still have alot of healing to do.

Diana

0

Share this post


Link to post
Share on other sites

Thanks guys

I might be brave enough to attempt quinoa again, and maybe a bite of cheese, but soy and I will never be friends again. Ever.

My man and I went out for dinner on Saturday and they were pretty accomodating, though I had to send my curry back when it came out with the chapati stuck in it. It took sufficiently enough time to come back out, and aside from a bit of D later that night (likely due to spicyness and that I didn't have any digestive enzymes on me), I'm doing just fine. (this is day 3 post-eat out, and haven't been hit by horrid grumpiness, so i'd say I'm in the clear) Yay!

Even so, I'll be keeping my eating out pretty occasional and cautious.

Cheers

Peg

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      102,702
    • Total Posts
      914,492
  • Topics

  • Posts

    • Do this, scientists! (experiment to confirm/deny the existence of "leaky gut")
      Good idea! Add also the lactulose - mannitol test, to confirm they are/are not experiencing leakyness in the gut, then correlate the results with the symptoms (obviously digestive symptoms would have to be excluded, because diarrhea and bloating will probably be present anyway, due to having damaged intestines). You see, ironically it would be "gluten-free challenge", because possibly systemic symptoms ("leaky gut syndrome")  and GI symptoms start after going IV fluids -> gluten-free (instead of "gluten challenge", which would be gluten-free -> gluten).
             
    • "Pre-Celiac" & scared
      PPIs should not affect your digestion of gluten one way or another. Many folks with celiac disease may have villous damage without obvious symptoms. Others eventually get symptoms after the disease is "activated," but exactly how or why this happens is not yet clearly understood. Biopsies are generally done after someone has symptoms, and likely already has villous damage, so I would imagine your doctor must be necessarily a bit vague about whether you might have "inactive" or "active" celiac disease. The gold standard is to get a biopsy while still eating gluten, and then another after being on a gluten-free diet for some time, to assess whether you heal without gluten in your system. Positive genes and blood work, AND villous atrophy would seem like fairly strong evidence, but that's up to your doctor to determine. If you feel comfortable sharing your test results on the forum, some folks here can give you their two cents. But listen to your doctor! Glutenease might help your digestion, but if you have an autoimmune reaction to gluten, it won't prevent the possible damage that comes with gluten mistakes. Research on l-glutamine is somewhat supportive for healing, but it's not a panacea.  You will read about various levels of sensitivity and prudence here and elsewhere. Eventually you'll come up with a plan that you consider is "safe," but hopefully will still let you get out in the world. Read up on gluten-free groceries and how to deal with restaurants safely, and you ought to be able to find a happy "middle-path" between prudence and paranoia. I'm one of the fairly sensitive/paranoid types at this point in my life. I personally don't worry too much about possibly breathing in gluten, but on the other hand I wouldn't eat anything that's been out where flour is in the air. Nor would I use a shared toaster or fryer. Again, it's important that you form a lifestyle approach that is informed about the risks but still a good life! Most importantly, work with your medical team to determine if you in fact have celiac disease.
    • Second Panel has come back...advice?
      We are utilizing the "our kitchen is completely gluten free" and DEFINITELY checking every label every time methods. SO glad to hear my DGP should drop!!!! 
    • Celiac in 10 month old?
      Without reference ranges for the IgA there's no telling wether the IgA or tTG are anything worth while.  I think your best bet is to wait on a call from them for interpretation. I know that's hard but really, they are the ones with all the necessary information.  
    • Celiac in 10 month old?
      Hello all, new to this site!  My 10 month old son was referred to an endocrinologist as he has consistently failed to chart in both weight and height.  After discussing his symptoms with the endocrinologist (fussiness after eating, diarrhea) she suggested it could be Celiac disease.  She ordered several blood tests to which I have received results that I am not quite sure how to interpret (and of course I haven't heard back and she hasn't returned my messages).  The following abnormal test results I received: Immunoglobulin A:  Less than 8 mg/dl IgA TTG Antibody:  Negative (I've read this can be a false negative if he is IgA deficient?) SGOT/AST:  93 U/L (standard 25-55) SGPT/AST:  49 U/L (standard 13-45) IgF-1/Somatomedin-C:  Less than 25 ng/ml (standard for age range 16 days to 1 year is 55-327) Any insight into what these results mean would be extremely helpful and appreciated!  Also, my son has been exclusively breastfed; if he does, in fact, have Celiac disease is gluten transferred through breast milk? 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      59,739
    • Most Online
      1,763

    Newest Member
    larnotlars
    Joined