Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

How Do You Avoid The Why Me Pity Party?
0

15 posts in this topic

Hi all, I'm one of the many with multiple food intolerances that arose kinda unexpectedly. Eating out and avoiding gluten is easy these days. Eating out and avoiding gluten, corn, soy, dairy, tomatoes, and chocolate is difficult. Well, difficult is probably an understatement. Eating out is best avoided.

Our family activities used to include a few things that I can no longer do...some restaurants that we loved, cooking we did together, and even something like going to the zoo has become more complicated for me as I must have food that I can eat picnic style for myself. Or the aquarium. Orthe kids museum. Or anywhere. No more baking cookies together.

Honestly, sometimes I do just want to eat a pizza! (I won't of course, as the dough, sauce, and cheese will all gang up on me!). It is just part of the mourning, I guess, for what used to be. There is a new reality for me and any slip makes me feel sick, even an unintentional slip. It seems like when I have lots of cooking time, and I live in a happy little bubble then all is good. But any kind of group activities cause anxiety. Eat at someone else's house? Let me bring my own food. Or, we design a menu together and I cross my fingers there won't be a slip with something like a spice jar or whatever. And then I'm the different one with sick guts. And when I do get sick, depression is a real component.

Sometimes, especially when feeling sick, I feel more sorry for myself than I like. These feelings do go away but they are not staying away. I mean, some people have very real problems and when I look at mine I wouldn't trade, KWIM? So I'm looking for more ways to cope with my new reality without any pity parties. What do you do?

1

Share this post


Link to post
Share on other sites


I raid my stash of peanut butter. :lol:

Eh, i understand ya somewhat. I can't do tomatos either and the smell sometimes... especially pizza...

In times like this, a nice big juicy apple, a big scoop of peanut butter, and a little honey help me over it. I also tell myself its just not worth it.

0

Share this post


Link to post
Share on other sites

Yeah, I also like dates with apples. I'm OK in my own kitchen. And if I always ate alone or with my immediate family that's ok too.

It's more the convenience and the community aspect of food that I miss. And it makes me wonder why I am the canary in the coal mine.

0

Share this post


Link to post
Share on other sites
So I'm looking for more ways to cope with my new reality without any pity parties. What do you do?

I come to these forums and vent . I have even been known to stomp my feet and pout ( on occasion ) :P

I allow my self to grieve the loss of a way of life and then embrace my new healthy way of life. I revel in my new health and well being .

Let your self grieve the loss ,it is a true loss and needs to be mourned. Then recognize the warrior in you that has brought you this far and allow that to carry you on.

Celiacs (diagnosed or not ) are among the strongest people you will ever have the privilege to know .

0

Share this post


Link to post
Share on other sites

Yeah, I also like dates with apples. I'm OK in my own kitchen. And if I always ate alone or with my immediate family that's ok too.

It's more the convenience and the community aspect of food that I miss. And it makes me wonder why I am the canary in the coal mine.

Oh yes, this. The convenience. By far yes.

0

Share this post


Link to post
Share on other sites

I understand - we all have those days, and it's ok to have them, and admit them. But then we have to move on and find things to replace what we are missing. Like making vegan gluten free cookies together. :)

0

Share this post


Link to post
Share on other sites

I come to these forums and vent . I have even been known to stomp my feet and pout ( on occasion ) :P

I allow my self to grieve the loss of a way of life and then embrace my new healthy way of life. I revel in my new health and well being .

Let your self grieve the loss ,it is a true loss and needs to be mourned. Then recognize the warrior in you that has brought you this far and allow that to carry you on.

Celiacs (diagnosed or not ) are among the strongest people you will ever have the privilege to know .

Love it! Just let the pout out and move on, eh? Great answer.

Sometimes I come here with the intention to vent and suddenly all I have to whine about seems like ... Well, like it is selfish or something.

0

Share this post


Link to post
Share on other sites

Oh yes, this. The convenience. By far yes.

YES!

I'm totally OK with never again eating at McDs, or Taco Bell, etc. but I would love to be able to eat SOMEWHERE! (And avoid gluten, corn, soy, dairy, tomatoes, peppers, chocolate...)

0

Share this post


Link to post
Share on other sites

I understand - we all have those days, and it's ok to have them, and admit them. But then we have to move on and find things to replace what we are missing. Like making vegan gluten free cookies together. :)

In a moment of strength I decided to go ahead and make Toll House cookies with my kids, that I was not going to let stupid gluten intolerance interfere with family activities. And, of course, it happened. That moment when a tiny bit of batter splashed on the back of my hand and I instinctively ate it! ARGH! I had been so careful until that moment! Fortunately I did not get as sick as I was getting before. (But I do NOT see that as a sign that I can eat gluten. More like I got lucky in a round of Russian Roulette.)

Next batch of cookies was paleo. For some unknown reason they made me sick. I really don't know what happened, but the next morning I was curled up in pain and miserable. The kids didn't like them, nor my husband, so they got tossed. Sad. Do you have a go-to vegan gluten-free (corn and soy free) recipe that you could share?

0

Share this post


Link to post
Share on other sites

In a moment of strength I decided to go ahead and make Toll House cookies with my kids, that I was not going to let stupid gluten intolerance interfere with family activities. And, of course, it happened. That moment when a tiny bit of batter splashed on the back of my hand and I instinctively ate it! ARGH! I had been so careful until that moment! Fortunately I did not get as sick as I was getting before. (But I do NOT see that as a sign that I can eat gluten. More like I got lucky in a round of Russian Roulette.)

Next batch of cookies was paleo. For some unknown reason they made me sick. I really don't know what happened, but the next morning I was curled up in pain and miserable. The kids didn't like them, nor my husband, so they got tossed. Sad. Do you have a go-to vegan gluten-free (corn and soy free) recipe that you could share?

I did that with almond butter. As soon as it went into my mouth, I realized my mistake. Spit it right out and rinsed my mouth. Thankfully no problems.

I just tell myself that everyone has problems to deal with. Some of us seemingly more than others.

I don't really miss any foods any more because I know how sick they make me. But... I do really miss the ease of the old days. Being able to eat something and not have to worry about what was in it.

0

Share this post


Link to post
Share on other sites

In a moment of strength I decided to go ahead and make Toll House cookies with my kids, that I was not going to let stupid gluten intolerance interfere with family activities. And, of course, it happened. That moment when a tiny bit of batter splashed on the back of my hand and I instinctively ate it! ARGH! I had been so careful until that moment! Fortunately I did not get as sick as I was getting before. (But I do NOT see that as a sign that I can eat gluten. More like I got lucky in a round of Russian Roulette.)

Next batch of cookies was paleo. For some unknown reason they made me sick. I really don't know what happened, but the next morning I was curled up in pain and miserable. The kids didn't like them, nor my husband, so they got tossed. Sad. Do you have a go-to vegan gluten-free (corn and soy free) recipe that you could share?

your reaction still could have been from the toll house cookies , my reaction to gluten can be a long a 26 hours later

( edit to add " sorry they are not vegan ** ) If you can tolerate peanut butter ,eggs and sugar you can have the BEST cookies ever!!

.1033249144001_1751940342001_th-1728947557001.jpg?pubId=1033249144001spacer.gif

Original recipe makes 1 dozen

  • 1 cup peanut butter
  • 1 cup white sugar

  • 1 egg
  • Directions
  • Preheat oven to 350 degrees F (180 degrees C).
  • Combine ingredients and drop by teaspoonfuls on cookie sheet. Bake for 8 minutes. Let cool. Recipe doesn't make very many, so you could double recipe as you desire.

0

Share this post


Link to post
Share on other sites

Love it! Just let the pout out and move on, eh? Great answer.

Sometimes I come here with the intention to vent and suddenly all I have to whine about seems like ... Well, like it is selfish or something.

not selfish, self preserving big difference ♥

0

Share this post


Link to post
Share on other sites

Hey THANKS for the recipe! I'll have to try it. Egg is fine, fortunately.

I made the paleo cookies many days after the toll house were made. I ate a total of four cookies the first day and succumbed to the fetal position the next morning. About a week later I tried one cookie to see what would happen. Sick again, not as bad. I even tried one more time just to be sure. It is weird, though, because the ingredients should all be OK for me. Maybe the almond flour was too old? I just don't know anymore.

your reaction still could have been from the toll house cookies , my reaction to gluten can be a long a 26 hours later

( edit to add " sorry they are not vegan ** ) If you can tolerate peanut butter ,eggs and sugar you can have the BEST cookies ever!!

.1033249144001_1751940342001_th-1728947557001.jpg?pubId=1033249144001spacer.gif

Original recipe makes 1 dozen

  • 1 cup peanut butter
  • 1 cup white sugar

  • 1 egg
  • Directions
  • Preheat oven to 350 degrees F (180 degrees C).
  • Combine ingredients and drop by teaspoonfuls on cookie sheet. Bake for 8 minutes. Let cool. Recipe doesn't make very many, so you could double recipe as you desire.

0

Share this post


Link to post
Share on other sites

not selfish, self preserving big difference ♥

Yes. Thank you. I need to do this. In fact I will probably start a thread right now!

0

Share this post


Link to post
Share on other sites

I don't have a particular recipe. I generally google and try. :)

Actually, if you can do eggs, it's fairly easy - find a regular recipe and replace the milk (if there is some) with a milk sub.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      102,671
    • Total Posts
      914,356
  • Topics

  • Posts

    • Smoothie King
      I have had one or two and was fine.  I don't have an issue with dairy.  If I remember right, most smoothies are gluten-free.
    • Lower left abdominal, left pelvic & other random pains
      I can not say as I have never gone to one or researched the topic.    I would bet that an acupuncturist would be a better choice.  I found it helpful with pain management for a shoulder injury.  It allowed me to heal faster and to do all the things physical therapy therapist wanted me to do without using drugs.  But, finding the root cause of your pain is more important in the long run.  
    • Teeth And Gum Problems
      At age 32, I was told I had severely receding gums and my dentist thought it was very odd. I had the burning mouth syndrome. I could barely eat anything with salt. Then I grew ill. I started to eat soda crackers and water and even that was causing pain in my stomach. One day my boss said, "maybe you have celiac disease."  I'd never heard of it. I stopped eating gluten and got tested. Of course, my tests came back negative, probably because I had not been eating gluten. My gastroenterologist couldn't figure it out and told me to stop looking at the Internet. Over time and without the gluten my inflamed gums, sore mouth and overall mouth sensitivity disappeared, as did my pain in my stomach, my joints and even my dry eye disease. Years passed and I started eating gluten again, ended up in the hospital with severe asthma. The allergist suggested another round of tests and we found I have celiac disease. Recently, I've been under a lot of stress and reached for my go to comfort food, bread. My gums are so inflamed that they even broke open. How stupid of me. But yes, gum inflammation is definitely a severe side effect of gluten for me. My whole mouth hurts and my teeth are now beyond sensitive. My tongue is getting that burning sensation back too. I'm pretty sure my throat is swollen as it is hard to swallow. I'm not quite sure why in the world I would do this to myself when I know what happens. Stay away from gluten folks!!! I know better. Shame on me.  
    • Lower left abdominal, left pelvic & other random pains
      UPDATE: I got my Celiac Disease (celiac disease) tests back and they were all negative which comforts me and also kind of confuses me more. They ran several Celiac tests and are mailing me all the paperwork. Next visit is with the Gastroenterologist at the beginning of March. I kind of feel so discouraged that I don’t have a diagnosis yet but relieved and selfish at the same time. Ironically a few days ago I ran into an old friend/colleague of mine and she has Non-celiac gluten sensitivity (NCGS) and had the exact same symptoms as me, which was a ray of hope that this might be the issue, but I’ve still not been “officially” diagnosed.  Eliminating the gluten from my diet has helped in eliminating almost all of my bloating and most of the other random pains too, but this lower left abdominal dull ache is still bothering me. My friend/colleague expressed that her aches in that location took several months to eventually feel better. I think I’ve also noticed that dairy and a few other of the cross-reactive foods do actually bother me and I will be needing to cut them out till I heal as well. My friend/colleague thought that after a month, at which point my GI Doc appointment will be, that I should notice some sort of pain difference in my lower left abdomen as long as I don’t get cross-contaminated by accident if I am actually suffering from NCGS. Since I still seem to exhibit some occasionally bloating, gas, diarrhea, constipation and my lower left dull ache but nothing else still makes me wonder. No fever. No blood in stool. No acute pain. No vomiting. No nausea. No shortness of breath. No loss of appetite. No headaches. Not tired. Don’t drink nor smoke. And when I sleep on my back the dull ache seems to vanish. And the PCP ruled out other organ issues that they normally check for. Hoping the GI Doc will do an ultrasound or sonogram, upper GI, endoscopy or colonoscopy or whatever, but I’m confused because if I don’t have celiac disease isn’t it true that none of these tests will detect NCGS? After taking my wife to the ER recently for what she thought was a heart attack which was, thankfully, only a hiatal hernia, that has left us with over a 10k hospital bill. Not sure how much insurance will cover yet and our money tree burned down years ago. So disappointed that there’s still no test for NCGS. My aches all seemed to have reached a pinnacle within a week or less last Thanksgiving. Is that how fast everyone else’s symptoms manifested as well? Thank you.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      59,694
    • Most Online
      1,763

    Newest Member
    KSvancity
    Joined