Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

How Do You Avoid The Why Me Pity Party?
0

15 posts in this topic

Hi all, I'm one of the many with multiple food intolerances that arose kinda unexpectedly. Eating out and avoiding gluten is easy these days. Eating out and avoiding gluten, corn, soy, dairy, tomatoes, and chocolate is difficult. Well, difficult is probably an understatement. Eating out is best avoided.

Our family activities used to include a few things that I can no longer do...some restaurants that we loved, cooking we did together, and even something like going to the zoo has become more complicated for me as I must have food that I can eat picnic style for myself. Or the aquarium. Orthe kids museum. Or anywhere. No more baking cookies together.

Honestly, sometimes I do just want to eat a pizza! (I won't of course, as the dough, sauce, and cheese will all gang up on me!). It is just part of the mourning, I guess, for what used to be. There is a new reality for me and any slip makes me feel sick, even an unintentional slip. It seems like when I have lots of cooking time, and I live in a happy little bubble then all is good. But any kind of group activities cause anxiety. Eat at someone else's house? Let me bring my own food. Or, we design a menu together and I cross my fingers there won't be a slip with something like a spice jar or whatever. And then I'm the different one with sick guts. And when I do get sick, depression is a real component.

Sometimes, especially when feeling sick, I feel more sorry for myself than I like. These feelings do go away but they are not staying away. I mean, some people have very real problems and when I look at mine I wouldn't trade, KWIM? So I'm looking for more ways to cope with my new reality without any pity parties. What do you do?

1

Share this post


Link to post
Share on other sites


Ads by Google:

I raid my stash of peanut butter. :lol:

Eh, i understand ya somewhat. I can't do tomatos either and the smell sometimes... especially pizza...

In times like this, a nice big juicy apple, a big scoop of peanut butter, and a little honey help me over it. I also tell myself its just not worth it.

0

Share this post


Link to post
Share on other sites

Yeah, I also like dates with apples. I'm OK in my own kitchen. And if I always ate alone or with my immediate family that's ok too.

It's more the convenience and the community aspect of food that I miss. And it makes me wonder why I am the canary in the coal mine.

0

Share this post


Link to post
Share on other sites
So I'm looking for more ways to cope with my new reality without any pity parties. What do you do?

I come to these forums and vent . I have even been known to stomp my feet and pout ( on occasion ) :P

I allow my self to grieve the loss of a way of life and then embrace my new healthy way of life. I revel in my new health and well being .

Let your self grieve the loss ,it is a true loss and needs to be mourned. Then recognize the warrior in you that has brought you this far and allow that to carry you on.

Celiacs (diagnosed or not ) are among the strongest people you will ever have the privilege to know .

0

Share this post


Link to post
Share on other sites

Yeah, I also like dates with apples. I'm OK in my own kitchen. And if I always ate alone or with my immediate family that's ok too.

It's more the convenience and the community aspect of food that I miss. And it makes me wonder why I am the canary in the coal mine.

Oh yes, this. The convenience. By far yes.

0

Share this post


Link to post
Share on other sites




I understand - we all have those days, and it's ok to have them, and admit them. But then we have to move on and find things to replace what we are missing. Like making vegan gluten free cookies together. :)

0

Share this post


Link to post
Share on other sites

I come to these forums and vent . I have even been known to stomp my feet and pout ( on occasion ) :P

I allow my self to grieve the loss of a way of life and then embrace my new healthy way of life. I revel in my new health and well being .

Let your self grieve the loss ,it is a true loss and needs to be mourned. Then recognize the warrior in you that has brought you this far and allow that to carry you on.

Celiacs (diagnosed or not ) are among the strongest people you will ever have the privilege to know .

Love it! Just let the pout out and move on, eh? Great answer.

Sometimes I come here with the intention to vent and suddenly all I have to whine about seems like ... Well, like it is selfish or something.

0

Share this post


Link to post
Share on other sites

Oh yes, this. The convenience. By far yes.

YES!

I'm totally OK with never again eating at McDs, or Taco Bell, etc. but I would love to be able to eat SOMEWHERE! (And avoid gluten, corn, soy, dairy, tomatoes, peppers, chocolate...)

0

Share this post


Link to post
Share on other sites

I understand - we all have those days, and it's ok to have them, and admit them. But then we have to move on and find things to replace what we are missing. Like making vegan gluten free cookies together. :)

In a moment of strength I decided to go ahead and make Toll House cookies with my kids, that I was not going to let stupid gluten intolerance interfere with family activities. And, of course, it happened. That moment when a tiny bit of batter splashed on the back of my hand and I instinctively ate it! ARGH! I had been so careful until that moment! Fortunately I did not get as sick as I was getting before. (But I do NOT see that as a sign that I can eat gluten. More like I got lucky in a round of Russian Roulette.)

Next batch of cookies was paleo. For some unknown reason they made me sick. I really don't know what happened, but the next morning I was curled up in pain and miserable. The kids didn't like them, nor my husband, so they got tossed. Sad. Do you have a go-to vegan gluten-free (corn and soy free) recipe that you could share?

0

Share this post


Link to post
Share on other sites

In a moment of strength I decided to go ahead and make Toll House cookies with my kids, that I was not going to let stupid gluten intolerance interfere with family activities. And, of course, it happened. That moment when a tiny bit of batter splashed on the back of my hand and I instinctively ate it! ARGH! I had been so careful until that moment! Fortunately I did not get as sick as I was getting before. (But I do NOT see that as a sign that I can eat gluten. More like I got lucky in a round of Russian Roulette.)

Next batch of cookies was paleo. For some unknown reason they made me sick. I really don't know what happened, but the next morning I was curled up in pain and miserable. The kids didn't like them, nor my husband, so they got tossed. Sad. Do you have a go-to vegan gluten-free (corn and soy free) recipe that you could share?

I did that with almond butter. As soon as it went into my mouth, I realized my mistake. Spit it right out and rinsed my mouth. Thankfully no problems.

I just tell myself that everyone has problems to deal with. Some of us seemingly more than others.

I don't really miss any foods any more because I know how sick they make me. But... I do really miss the ease of the old days. Being able to eat something and not have to worry about what was in it.

0

Share this post


Link to post
Share on other sites

In a moment of strength I decided to go ahead and make Toll House cookies with my kids, that I was not going to let stupid gluten intolerance interfere with family activities. And, of course, it happened. That moment when a tiny bit of batter splashed on the back of my hand and I instinctively ate it! ARGH! I had been so careful until that moment! Fortunately I did not get as sick as I was getting before. (But I do NOT see that as a sign that I can eat gluten. More like I got lucky in a round of Russian Roulette.)

Next batch of cookies was paleo. For some unknown reason they made me sick. I really don't know what happened, but the next morning I was curled up in pain and miserable. The kids didn't like them, nor my husband, so they got tossed. Sad. Do you have a go-to vegan gluten-free (corn and soy free) recipe that you could share?

your reaction still could have been from the toll house cookies , my reaction to gluten can be a long a 26 hours later

( edit to add " sorry they are not vegan ** ) If you can tolerate peanut butter ,eggs and sugar you can have the BEST cookies ever!!

.1033249144001_1751940342001_th-1728947557001.jpg?pubId=1033249144001spacer.gif

Original recipe makes 1 dozen

  • 1 cup peanut butter
  • 1 cup white sugar

  • 1 egg
  • Directions
  • Preheat oven to 350 degrees F (180 degrees C).
  • Combine ingredients and drop by teaspoonfuls on cookie sheet. Bake for 8 minutes. Let cool. Recipe doesn't make very many, so you could double recipe as you desire.

0

Share this post


Link to post
Share on other sites

Love it! Just let the pout out and move on, eh? Great answer.

Sometimes I come here with the intention to vent and suddenly all I have to whine about seems like ... Well, like it is selfish or something.

not selfish, self preserving big difference ♥

0

Share this post


Link to post
Share on other sites

Hey THANKS for the recipe! I'll have to try it. Egg is fine, fortunately.

I made the paleo cookies many days after the toll house were made. I ate a total of four cookies the first day and succumbed to the fetal position the next morning. About a week later I tried one cookie to see what would happen. Sick again, not as bad. I even tried one more time just to be sure. It is weird, though, because the ingredients should all be OK for me. Maybe the almond flour was too old? I just don't know anymore.

your reaction still could have been from the toll house cookies , my reaction to gluten can be a long a 26 hours later

( edit to add " sorry they are not vegan ** ) If you can tolerate peanut butter ,eggs and sugar you can have the BEST cookies ever!!

.1033249144001_1751940342001_th-1728947557001.jpg?pubId=1033249144001spacer.gif

Original recipe makes 1 dozen

  • 1 cup peanut butter
  • 1 cup white sugar

  • 1 egg
  • Directions
  • Preheat oven to 350 degrees F (180 degrees C).
  • Combine ingredients and drop by teaspoonfuls on cookie sheet. Bake for 8 minutes. Let cool. Recipe doesn't make very many, so you could double recipe as you desire.

0

Share this post


Link to post
Share on other sites

not selfish, self preserving big difference ♥

Yes. Thank you. I need to do this. In fact I will probably start a thread right now!

0

Share this post


Link to post
Share on other sites

I don't have a particular recipe. I generally google and try. :)

Actually, if you can do eggs, it's fairly easy - find a regular recipe and replace the milk (if there is some) with a milk sub.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,365
    • Total Posts
      920,552
  • Topics

  • Posts

    • Well, I am stressed to the max. I just spent 3 days in the hospital with D and stomach pain, dizziness, chest pain, generally unwell. Then another trip to the ER on top of that. My protein was low and my RBC and hemoglobin dropped below normal in 3 days. Not terribly low, but below normal. I also had metabolic acidosis which still confuses me. I usually eat every 2-3 hours despite it causing pain to keep my energy up and was unable to eat that frequently in the hospital. I usually carry protein with me and had been taking liquid iron which I stopped a few weeks ago because my new endo is not a fan of iron supplements. As soon as I got home from the hospital I started with my protein drinks and blackstrap molasses for iron.  I now have bilateral mild pleural effusions and a nodule on my left lung, which hopefully is nothing, but was not there on a CT back in March. In addition, my left adrenal gland, which also appeared normal in March, is calcified and the report indicates this is most likely due to a previous bleed or infection. My colon appears tortuous (whatever that means) and we are waiting on colon/endo biopsies. I have been gluten-free since March except for cc so expect the biopsies to again be negative.  My primary care is useless. I am in the process of getting a new one I will see on the 7th but need the current one to fill out FMLA paperwork because I both physically and mentally need time to recover. I will have to go off of payroll for 2 weeks but I think I need to. I called the primary's office today to discuss the hospital tests which she does NOT have yet and to ask if we should/could start a low dose of prednisone because my body is attacking itself. My thyroid on ultrasound is also abnormal though my bloodwork thus far is normal. But it hurts on that side. The only reason the ultrasound was ordered is because I asked for it in the first place. The only reason I have started seeing an endocrinologist is because I found one myself. Anyway...I broke down in tears on the phone eith her today and she told me I was having a "manic episode". I have no history of mania. I only recently started taking xanax to help me cope with the stress of being sick. I was not sick until I did this stupid gluten challenge over the winter. My mother was in town and spoke with the doctor on the phone as well who was trying to get my mom to take me to a psych hospital. She also threatened to send the police to check on me. My mother assured her I was in no danger and we hung up the phone in complete shock. Admittedly, I was in tears when I called her and probably sounded like a fucking mess. But I believe I referenced the dropping iron, protein, fluid near lungs, enlarged thyroid and attacked adrenal gland then literally said "my body is attacking itself and I need help" to which she said, "I think you are manic". Lovely. If I was a mess before that phone call it was 10x worse when we hung up.  Anyway, this is the first night it has been extremely difficult to sleep. I admit my thoughts about my odd symptoms keep me up often recently. I mean, who the hell bleeds from or gets an infected adrenal gland?! I am sure it was another time I begged my primary for help. On a side not, the NP at the ER told me the primary should be putting these pieces together and communicating with my other doctors better. He then stated that he used to go to the same practice but left because the practice got too big and like a business. So I got some validation from that chat.  A melatonin or a .25 xanax usually does the trick for me to sleep but I am so disturbed about my interaction today, stressed at my health, stressed that my ex has our son so much because I am always sick (bless him for coming through), stressed that I have to go back to this awful doctor because I will need the FMLA paperwork before I see the new doc on the 7th.  8 months ago, I took a multivitamin when I remembered it and that was it.  End rant. Maybe now that it is off my chest I can finally sleep. 
    • Hi DKH0614, I use aspirin, Pepto Bismol, and peppermint tea or Altoids peppermints.  Pepto Bismol has a soothing effect on the gut.  Pepto Bismol also has aspirin in it.  Peppermint is helpful for relaxing smooth muscle tissue and getting gas out of the stomach. As per KarenG, you may be reacting to dairy.  Dairy has a sugar called lactose in it that some people with celiac have a hard time digesting.  You could try avoiding dairy for a few weeks to see if that helps.  Or try taking lactaid type pills when you eat dairy. It doesn't take very much gluten to cause an immune system reaction.  So it is important to avoid even traces of gluten if possible.  The stuff is hard to avoid sometimes if people around you don't understand how much a small amount of it can affect your body. Let us know if we can help with any  more questions, or if you have concerns we haven't addressed. And welcome to the forum! Also, if you subscribe to the thread (notify me of replies) you'll get an email when people respond to your thread.    
    • After a year and half, if you are eating gluten-free, you shouldn't be having pain from Celiac.  Perhaps you need to find out what is really causing your issues?  Dairy/ lactose is an obvious first place to look.
    • Hi! I am 15 and have been diagnosed with celiac disease for about a year and a half now and I am woundering what do some of y'all use to relive some of the abdominal pains that come along with celiac/gluten allergies?  ( Ibuprofen,  Tylenol, etc.) 
    • Hi Laurabella, Yes, you could have celiac disease!  It is important to keep eating gluten until all testing is completed, including an endoscopy with biopsy samples if the doctor recommends it.  The doctors usually do want the endoscopy.  The biopsy samples of the small intestine lining (4 to 6 samples) are checked for microscopic damage that indicates celiac disease.  Gall bladder problems can happen with celiac disease.  Your pain could also be from intestinal damage in any part of the small intestine. Some things you could try while you are waiting for your tests to be completed are stopping all dairy, and taking peppermint tea for gas in the stomach.  Celiac disease damage makes it hard to digest dairy sugar (lactose) and that can cause bloating and pain.  Constipation and diahrea are also possible fun symptoms. Welcome to the forum!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,439
    • Most Online
      1,763

    Newest Member
    DKH0614
    Joined