Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Let's Be Trendy!


smpalesh

Recommended Posts

smpalesh Explorer

This is going to be a rant so sorry in advance if I offend anyone.

I am tired of gluten free being talked about as if it is just a choice. So many tv shows, talk shows, books, diet plans, etc all talk about avoiding gluten as a choice for weight loss or just to treat some bazillion symptoms you may be suffering from. Yes, it has led to more products being available which is great but it really causes negative repercussions for someone like me who actually HAS to avoid even the smallest crumb of gluten and will get seriously ill if I don't. Because when I say I have to eat gluten free I inevitably always get someone saying, "Oh yeah I (or my husband, my friend, my dog) have to eat gluten free but sometimes I just have a regular pizza because the gluten free one tastes bad." Or if I go to a restaurant and spend 10 minutes ordering my meal to make sure they understand exactly how careful they need to be when preparing my food they look at me as if I am overreacting and that I'm just one of those "trendy" dieters. I understand people can do whatever they want and go gluten-free and maybe it helps their health and that's great but when the idea is out there that you can just take a day off or just eat some gluten once in awhile it is seriously dangerous to those of us who have celiac and who react to microscopic amounts of gluten. People just aren't going to take us as seriously, or take as much care in preparing our food as they should, when they know multiple people that say they are also gluten-free but they ate a piece of birthday cake at a party and they were totally fine.

Okay rant over.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

In this case, its just better to let it in one ear and out the other. People who say things like this are not informed on how damaging gluten is those with an issue with it.

Link to comment
Share on other sites
Lisa Mentor

Ya know...I'm not a trend. Nor do I expect a restaurant to cater to me, but so glad when they do, or can or informed! I am responsible for my life and what I put into my mouth....trend or not.

When I eat at a restaurant, it's my choice. I don't put the weight of my health on the server, kitchen or management. They don't know the level of my awareness, nor would I expect them to be. If I get ill, I accept the responsibility.

Eight years ago, when I began my gluten free journey...there was a vast nothingness of gluten free product, or awareness. To say "we've come a long way baby" is an understatement!!!!!

I'm rather pleased. ;)

Link to comment
Share on other sites
GFinDC Veteran

A lot of people are trying the gluten-free diet these days. They don't all have celiac and they don't all understand it the way celiacs do or have the same medical reactions and concerns celiacs do. Maybe they have diabetes or maybe they have Crohn's disease and think it will help them. Maybe they have NCGI. Maybe they don't know why they are feeling bad but just want to try something to hopefully feel better. They have every right to try and feel better. If the gluten-free diet is what they choose to try and improve their health that's great. If they don't understand it the way celiacs do that is not surprising to me. If we can help them I think that's what we should do. They are like a bunch of lost puppies in a gluten filled landmine world. And they think eating cookies and pizza is ok! Such silly-heads! :blink::wacko::o:(:ph34r:

Link to comment
Share on other sites
Em314 Explorer

I generally think food trends/fad diets are ridiculous and kind of irritating, but I'll admit, with this, I'm kind of glad that going gluten-free is "trendy" now... it means there's more products out there that I can eat!

Link to comment
Share on other sites
nvsmom Community Regular

Yah, I'm glad I was diagnosed when gluten-free and low carbs is the trendy way to eat. I can't imagnie trying to eat gluten-free during the 80's and 90's when high carb, whole grains and low fat was the way to go... At least now I can find alternative flours or the occassional premade treat.

The trendiness will fade in a few years but hopefully the awareness and new products will stict around. :D

Link to comment
Share on other sites
GwenO Apprentice

I went gluten free in support of my daughter, who was diagnosed with celiac disease last summer. I tested negative, however, I feel a lot better - it's changed my life. I, of course, do understand the implications of ingesting small amounts of gluten for some people. I'm grateful for the trendiness, feeding an almost twelve year old is much easier because of it.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JAS2 Rookie

I went gluten free about 3 and a half weeks ago. I did it because I have not felt well for a very long time and have undergone almost every test there is, but no findings. I did not do the test, because I did not know you could not do it after going gluten free. I may get brave one day and start eating gluten again to have the test done. I am however thinking about converting my entire family to an either gluten light or gluten free diet as after reading the book "Wheat Belly" I have learned a lot about the dangers of wheat in particular and what it can do to those who do not have celiac. Not trying to be trendy, just trying to be healthy. I am so sorry that you have to deal with all the of hassles and hope that as time goes on and awareness spreads, things may get easier.

Link to comment
Share on other sites
mushroom Proficient

I went gluten free about 3 and a half weeks ago. I did it because I have not felt well for a very long time and have undergone almost every test there is, but no findings. I did not do the test, because I did not know you could not do it after going gluten free. I may get brave one day and start eating gluten again to have the test done. I am however thinking about converting my entire family to an either gluten light or gluten free diet as after reading the book "Wheat Belly" I have learned a lot about the dangers of wheat in particular and what it can do to those who do not have celiac. Not trying to be trendy, just trying to be healthy. I am so sorry that you have to deal with all the of hassles and hope that as time goes on and awareness spreads, things may get easier.

You can still do the test, and there is even a chance of it still being positive; there is just less of a chance of it being accurate than there would be if you were still eating gluten.

Link to comment
Share on other sites
islandmomma Newbie

You can still do the test, and there is even a chance of it still being positive; there is just less of a chance of it being accurate than there would be if you were still eating gluten.

You know, I am finally regretting that I gave up tv altogether nearly two years ago and avoided talk shows for many years before. Perhaps if I had watched I would have become better informed about this issue... Who knew I could still become part of a 'trend'? LOL

Link to comment
Share on other sites
cap6 Enthusiast

When I order out I always say that I am celiac, that gluten free is not a fad for me and that I will get sick if I eat any gluten. Said with a smile and a few questions on how they deal with cross contamination and there usually isn't a problem. The fad is good and bad for us celiacs......

Link to comment
Share on other sites
Pegleg84 Collaborator

It's definitely a double-sided issue. I also have problems with those who eat gluten free, but don't take it seriously. If they are doing it to help their health, then it should be all or nothing.

At the same time, the level of awareness is so much better than it was even couple years ago. I can usually say "gluten-free" and they have some idea what I'm talking about, though even then at restaurants I have to be very diligent to make sure they follow through with requests (I said no bread, not bread on the side, or stuck in my curry, thank you. And no, couscous is NOT gluten-free...)

However, Wheat Belly's popularity might be getting out of control. As much as not eating wheat or gluten might help all kinds of non-celiacs, throwing yourself into a limited diet, or changing so much without a good reason can also be dangerous. Your gut might go, hey, that bread was treating me just fine. What are you doing throwing all this new stuff at me all of a sudden.

Trying out the gluten-free diet is always worth a shot, but if people don't feel any difference in a couple weeks, then likely the best thing is to just keep eating healthy, whole foods and grains.

For us, this is not a fad. It's a life-long prescription.

Link to comment
Share on other sites
Em314 Explorer

Trying out the gluten-free diet is always worth a shot, but if people don't feel any difference in a couple weeks, then likely the best thing is to just keep eating healthy, whole foods and grains.

Erhm... kind of a short timeframe, no?

The ideal thing is for them to communicate with their doctors... if they have health insurance, access to doctors, and can afford to do so. if not... I do agree the fad diet aspect is obnoxious, but it's hard to blame people for wanting to feel better.

Link to comment
Share on other sites
~**caselynn**~ Enthusiast

Ya know...I'm not a trend. Nor do I expect a restaurant to cater to me, but so glad when they do, or can or informed! I am responsible for my life and what I put into my mouth....trend or not.

When I eat at a restaurant, it's my choice. I don't put the weight of my health on the server, kitchen or management. They don't know the level of my awareness, nor would I expect them to be. If I get ill, I accept the responsibility.

Eight years ago, when I began my gluten free journey...there was a vast nothingness of gluten free product, or awareness. To say "we've come a long way baby" is an understatement!!!!!

I'm rather pleased. ;)

Agreed! I always speak up to the server and make sure we're on the same page but in the end it's on me. I made the conscious decision to eat out, so I live and learn. I have a favorite, dependable spot in my hometown, the chef is a friend and he knows his stuff! I wish everyone had a favorite like that, and although its trendy, more and more gluten-free spots are coming out! That is great for us! (Please do your homework before eating just anywhere )

The trend issue is a double edge sword to me, it's annoying but it has opened more resources for us Celiacs!! And that makes me wicked happy! We have come a long way!

Link to comment
Share on other sites
killernj13 Enthusiast

Yes, we can enjoy it being trendy but trends end. Our dietary restrictions do not.

I stopped watching The Today Show when they fired Ann Curry and replaced her with Savannah Guthrie. During a story on the gluten free trend she called celiac disease a trendy disease and roll her eyes. I've tweeted her for to make a public apology and wrote a complaint to NBC at the time of the interview.

Link to comment
Share on other sites
Pegleg84 Collaborator

There is no such thing as a "trendy" disease. I know some people who are trying out the gluten-free diet to see if it makes a difference in their health, but they usually drop it after a few weeks if nothing significant happens. But if you're going to do the gluten-free diet, you'd better go all the way. I was sitting in a coffee shop one day and a girl ordered a latte with almond milk, got a gluten-free muffin, and I thought, oh, she's just like me... until she also took a sample of a gluteny treat out on the counter (which either means a cheater, someone doing it "cause it's healthy", or maybe cause that gluten-free muffin looked really good...). I was this close to ragging her out...

yeah, a few weeks is a short time frame for recovery from Celiac/Gluten Intolerance, but I was thinking more of people who do it just to see if it makes a difference for other things.

If someone suspects they could have Celiac, they should get tested. Really, anyone with a family history should be screened.

I think we need to educate restarants. chefs, servers, etc on what Celiac and gluten-free really means, how to accomodate it, and that it's a serious illness, not a personal preference.

Link to comment
Share on other sites
JNBunnie1 Community Regular

I totally understand the frustration that comes from dealing with the 'fad diet' attitude, both

from those who are participating in it as a fad diet, and the effect it has on those who serve

in restaurants and the like. I have lost count of the people who've said something along the

lines of 'Well, so-and-so doesn't have to be that careful.'

I have definitely gone into a number of places and been told that while a food that's advertised

as gluten free has 'no gluten ingredients', they have done nothing further to ensure it's safety.

For example, a bakery that uses gluten free recipes, but uses the same mixers, bakes in the

same room as gluten, and so on. I think of those as the 'Dominos' places. While it is my job to

make sure I stay safe, it's still frustrating to be met with this attitude so frequently. I religiously

patronize those places that do get it, and I tell them why, and I bring friends, and I leave as

many positive reviews as possible wherever possible.

If anything, as frustrating as being dismissed as having a 'trendy disease' is, it is nice that

there are so many products on the market now, so I just try to be thankful for that.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Nacina's topic in Related Issues & Disorders
      1

      14 year old with Celiac & EOE still suffering...

    2. - Nacina posted a topic in Related Issues & Disorders
      1

      14 year old with Celiac & EOE still suffering...

    3. - trents replied to Fluka66's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Waiting for urgent referral.

    4. - Fluka66 replied to Fluka66's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Waiting for urgent referral.

    5. - Moodiefoodie replied to Moodiefoodie's topic in Related Issues & Disorders
      9

      Joint swelling when ill even on gluten-free diet


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,063
    • Most Online (within 30 mins)
      7,748

    Nacina
    Newest Member
    Nacina
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
    • Nacina
      Hello, I am a 45 year old mom, who was diagnosed at 29 with Celiac. My now 14 year old son was diagnosed just before his 4th birthday. Needless to say, we are old pros with the diet. He was experiencing some issues, overall health took a major plummet a year ago, and through a bit of work, was diagnosed with EOE. Tried diet alone, but his follow up endoscopy didn't show the improvements his DR. wanted to see, so I tried the medication. (Steroid). He became extremely backed up, and they had him taking Miralax daily. His health plummeted. He is a straight A honor's 8th grader who plays club soccer very competitively. His health continued to decline and at 13 had a colonoscopy and another upper gi. (He was still compacted even with the prep). I finally pulled him off all meds and mira lax, after reading much negative literature online, and put him on a gut detox diet and took him to a nutrition response dr. Finally things have improved. However...over a year later and he is having relapse stomach pain, debilitating stomach pain. Missing a day of school a week, to three this week. This is where we downward spiral with him. He says it doesn't feel the same as when he has gotten backed up before. He is eating prunes, taking his supplements, drinking water...all of the things. Yet, he is feeling horrible. Pain is abdomen, headache, lethargy, diarrhea . He is on a strict gluten dairy, egg free diet. He has adapted well in regards to diet. But I feel like we are missing something here. He is too active, too outgoing to be feeling sick all of the time. His Bilirubin is constantly high. His white blood count always runs slightly low. His vitamin D was very low last time he ran tests, (last month) when he was sick for a week. His celiac markers show negative, so it isn't that. His last endoscopy showed no Eosinaphils in his esophagus.  I have taken him to multiple Ped. Gastro specialists. They run tests, and we get zero answers. I meticulously go through labs, hoping to make some sense and maybe catch something. Any thoughts or ideas would greatly be appreciated. 
    • trents
      But if you have been off of wheat for a period of weeks/months leading up to the testing it will likely turn out to be negative for celiac disease, even if you actually have celiac disease. Given your symptoms when consuming gluten, we certainly understand your reluctance to undergo  the "gluten challenge" before testing but you need to understand that the testing may be a waste of time if you don't. What are you going to do if it is negative for celiac disease? Are you going to go back to merrily eating wheat/barley/rye products while living in pain and destroying your health? You will be in a conundrum. Do I or do I not? And you will likely have a difficult time being consistent with your diet. Celiac disease causes inflammation to the small bowel villous lining when gluten containing grains are consumed. This inflammation produces certain antibodies that can be detected in the blood after they reach a certain level, which takes weeks or months after the onset of the disease. If gluten is stopped or drastically reduced, the inflammation begins to decrease and so do the antibodies. Before long, their low levels are not detectable by testing and the antibody blood tests done for diagnosing celiac disease will be negative. Over time, this inflammation wears down the billions of microscopic, finger-like projections that make up the lining and form the nutrient absorbing layer of the small bowel where all the nutrition in our food is absorbed. As the villi bet worn down, vitamin and mineral deficiencies typically develop because absorption is compromised. An endoscopy with biopsy of the small bowel lining to microscopically examine this damage is usually the second stage of celiac disease diagnosis. However, when people cut out gluten or cut back on it significantly ahead of time before the biopsy is done, the villous lining has already experienced some healing and the microscopic examination may be negative or inconclusive. I'm not trying to tell you what to do I just want you to understand what the consequences of going gluten free ahead of testing are as far as test results go so that you will either not waste your time in having the tests done or will be prepared for negative test results and the impact that will have on your dietary decisions. And, who are these "consultants" you keep talking about and what are their qualifications? You are in the unenviable position that many who joint this forum have found themselves in. Namely, having begun a gluten free diet before getting a proper diagnosis but unwilling to enter into the gluten challenge for valid testing because of the severity of the symptoms it would cause them.
    • Fluka66
      Thank you very much for your reply. I hadn't heard of celiac disease but began to notice a pattern of pain. I've been on the floor more than once with agonising pain but this was always put down to another abdominal problem consequently I've been on a roundabout of backwards and forwards with another consultant for many years. I originally questioned this diagnosis but was assured it was the reason for my pain. Many years later the consultant gave up and I had a new GP. I started to cut out certain food types ,reading packets then really started to cut out wheat and went lactose free. After a month I reintroduced these in one meal and ended screaming in agony the tearing and bloating pain. With this info and a swollen lymph node in my neck I went back to the GP.  I have a referral now . I have also found out that acidic food is causing the terrible pain . My thoughts are this is irritating any ulcers. I'm hoping that after a decade the outlook isn't all bad. My blood test came back with a high marker but I didn't catch what it was. My GP and I have agreed that I won't go back on wheat just for the test due to the pain , my swollen lymph node and blood test results.  Trying to remain calm for the referral and perhaps needed to be more forceful all those years ago but I'm not assertive and consultants can be overwhelming. Many thanks for your reply . Wishing you all the best.
    • Moodiefoodie
      Wow! Fascinating info. Thanks so much! I really appreciate the guidance. @Spacepanther Over the years I have had rheumatologists do full lab work ups on me. They told me they had screened me for arthritis, lupus, and Lyme disease (all negative). In addition to joint pain and stiffness I had swelling in both knees that later moved to my elbow as well.  I also experience stiffness and pain in my neck and shoulders when it flares. I vomited fairly often growing up, but there wasn’t a real pattern to it and I didn’t know it wasn’t normal (thought people caught stomach viruses often).  I don’t usually have stomach symptoms immediately after eating gluten that I notice.  The only other joint condition I know of is fibromyalgia. Good luck! Hope you can get it figured out. I only assumed my joint symptoms were due to the celiac’s because it is under control for the most part on a gluten-free diet.  The rheumatologist also mentioned that some inflammatory/autoimmune diseases can be slow-moving and not detectable until they progress.
×
×
  • Create New...