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daytime10

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daytime10 Newbie

Hey just wanted to thank everyone this has been a great resource over the last couple days as I start my journey of being gluten-free. Here is my story

I am 27

For the last 5 years I have suffered from terrible eczema. No one has been able to determine what was causing this, I had it on my arms, my face, legs, back, knees, private areas. It was soo itchy at times I couldn't sleep and I would constantly itch all day. I cannot begin to describe how much this has destroyed my confidence in myself and my body.

I finally had enough of the Dermatologist prescribing me hydrocortizone and telling me there is no cure, I tried a naturopath. Within an hour she was pretty certain that I had a gluten sensitivity using an allergy test that I have never seen or heard of (I thought she was crazy at first, but she nailed all the allergies that I know about cats etc.) She gave me some supplements to take and told me to go Gluten Free starting today and to see how I feel.

I am currently on day 2 of being Gluten Free... the itching has stopped, my skin shows some reduction of eczema but still I am amazed. I am currently having some of the withdrawal symptoms everyone mentions (brain fog, super tired, gassy).

I looked at the symptoms of being celiac and I cannot believe how much I have suffered since I was a small child that would link back to this

-Chronic Nose Bleeds since I was 5

-Anxiety (Has gotten worse since early 20's)

-Cannot gain weight (135 for the last 10 years)

-Insomnia at times

-Super tired after eating large meals

-Lack of energy

-Depression

-Canker sores randomly

-Extreme hunger and thirst

-Pins and needles in my feet and hands

-Eczema

Finally I think I have determined what has been causing me all this suffering over the last 20 years, I am excited to finally have control over my body!

I hope the results continue, and that I can get used to the prices of gluten-free bagels and bread :@ lol

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GFinDC Veteran

Hi,

Welcome to the forum! :)

Please decide if you are interested in getting diagnosed. If you are you need to keep eating gluten until the blood draw is done for the antibodie testing. After you stop eating gluten the antibodies in the bloodstream drop and the testing is no good. To get tested later means going back on gluten and that can be difficult and painful. So it is better to get the testing done first if you need a diagnosis. Some people need a diagnosis to keep their resolve strong, others don''t.

I borrowed this list from Lisa's post:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

Total Serum IgA

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1desperateladysaved Proficient

Daytime 10:

Oh, eczema, I use to deal with that, but mine was in a few places only. I feel for you. The MD's inability to find the root cause made me to consider natural health care. I hope that you get consistently better, but you may experience bumps along the way. Keep up the good work and keep on toward recovery. There are many things you can do.

My eczema appeared in my late teens and went away in my 20's. I got on some suppliments my chiro recommended. I wore gloves with rabbit fur on my hands that year. I began to make homemade soap. My eczema went away and has never returned even when I stopped the supplements. I hope yours will go away and stay away, for sure!

Get well ***

Diana

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daytime10 Newbie

I don't think I am going to get diagnosed, I don't care honestly

I just woke up and I can already tell that this is working, my eczema shows a small reduction and the itching is rare compared to all the time! Just by listening to my body I can tell that this is what I should have done a long time ago.

Natural Medicine has definitely made an impression on me, I am beginning to think that Western Medicine is all about pushing drugs and making bonuses and money from Drug Companies. I cannot even begin to think about how much money I have spent on Hydrocortizone, Immunodepressants, Body Lotions, Creams all suppose to get rid of my eczema.

Eczema is treatable, its your body telling you that something is wrong inside with what your doing... ignoring it or covering it with drugs will not fix it.

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nvsmom Community Regular

I agree! many times western medicine just seems to put adrug band-aid onto a symptoms and don't even address the cause... I think it's a very backwards system myself.

I hope you continue to feel better.

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frieze Community Regular

yup, western medicines forte is acute care/trauma.

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    • trents
      Welcome to the forum, @SuzanneL! Which tTG was that? tTG-IGA? tTG-IGG? Were there other celiac antibody tests run from that blood draw? Was total IGA measured? By some chance were you already cutting back on gluten by the time the blood draw was taken or just not eating much? For the celiac antibody tests to be accurate a person needs to be eating about 10g of gluten daily which is about 4-6 pieces of bread.
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      I am not sure where you are going, but we have articles in this section which may be helpful: https://www.celiac.com/celiac-disease/gluten-free-travel/ 
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