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Finally!
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Hey just wanted to thank everyone this has been a great resource over the last couple days as I start my journey of being gluten-free. Here is my story

I am 27

For the last 5 years I have suffered from terrible eczema. No one has been able to determine what was causing this, I had it on my arms, my face, legs, back, knees, private areas. It was soo itchy at times I couldn't sleep and I would constantly itch all day. I cannot begin to describe how much this has destroyed my confidence in myself and my body.

I finally had enough of the Dermatologist prescribing me hydrocortizone and telling me there is no cure, I tried a naturopath. Within an hour she was pretty certain that I had a gluten sensitivity using an allergy test that I have never seen or heard of (I thought she was crazy at first, but she nailed all the allergies that I know about cats etc.) She gave me some supplements to take and told me to go Gluten Free starting today and to see how I feel.

I am currently on day 2 of being Gluten Free... the itching has stopped, my skin shows some reduction of eczema but still I am amazed. I am currently having some of the withdrawal symptoms everyone mentions (brain fog, super tired, gassy).

I looked at the symptoms of being celiac and I cannot believe how much I have suffered since I was a small child that would link back to this

-Chronic Nose Bleeds since I was 5

-Anxiety (Has gotten worse since early 20's)

-Cannot gain weight (135 for the last 10 years)

-Insomnia at times

-Super tired after eating large meals

-Lack of energy

-Depression

-Canker sores randomly

-Extreme hunger and thirst

-Pins and needles in my feet and hands

-Eczema

Finally I think I have determined what has been causing me all this suffering over the last 20 years, I am excited to finally have control over my body!

I hope the results continue, and that I can get used to the prices of gluten-free bagels and bread :@ lol

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Hi,

Welcome to the forum! :)

Please decide if you are interested in getting diagnosed. If you are you need to keep eating gluten until the blood draw is done for the antibodie testing. After you stop eating gluten the antibodies in the bloodstream drop and the testing is no good. To get tested later means going back on gluten and that can be difficult and painful. So it is better to get the testing done first if you need a diagnosis. Some people need a diagnosis to keep their resolve strong, others don''t.

I borrowed this list from Lisa's post:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

Total Serum IgA

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Daytime 10:

Oh, eczema, I use to deal with that, but mine was in a few places only. I feel for you. The MD's inability to find the root cause made me to consider natural health care. I hope that you get consistently better, but you may experience bumps along the way. Keep up the good work and keep on toward recovery. There are many things you can do.

My eczema appeared in my late teens and went away in my 20's. I got on some suppliments my chiro recommended. I wore gloves with rabbit fur on my hands that year. I began to make homemade soap. My eczema went away and has never returned even when I stopped the supplements. I hope yours will go away and stay away, for sure!

Get well ***

Diana

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I don't think I am going to get diagnosed, I don't care honestly

I just woke up and I can already tell that this is working, my eczema shows a small reduction and the itching is rare compared to all the time! Just by listening to my body I can tell that this is what I should have done a long time ago.

Natural Medicine has definitely made an impression on me, I am beginning to think that Western Medicine is all about pushing drugs and making bonuses and money from Drug Companies. I cannot even begin to think about how much money I have spent on Hydrocortizone, Immunodepressants, Body Lotions, Creams all suppose to get rid of my eczema.

Eczema is treatable, its your body telling you that something is wrong inside with what your doing... ignoring it or covering it with drugs will not fix it.

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I agree! many times western medicine just seems to put adrug band-aid onto a symptoms and don't even address the cause... I think it's a very backwards system myself.

I hope you continue to feel better.

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yup, western medicines forte is acute care/trauma.

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    • That's great to hear you are feeling better Nightsky.  I really think when our GI systems are in distress already that it doesn't take much to set off symptoms.  Once I eliminated the other foods that cause me symptoms that helped a lot too.  And added some extra vitamin D to my diet and selenium. Many of us have developed reactions to other foods besides gluten and need to avoid them to keep symptoms at bay.  For me nightshades, carrots, soy, dairy, and celery all cause symptoms.  It took me awhile to figure out all those food culprits, but it made a big difference getting them out of my diet. But we are all individuals, and our bodies react individually.  So you may or may not have additional food intolerances develop. Celiac is one of those life journey things and we learn as we go.  Just keep the bottle of aspirin handy!
    • I know that Lea & Perrins Worcestershire Sauce  in the US is gluten free, I also know that in Canada it is NOT. This is a very reliable site: http://www.glutenfreedietitian.com/vinegar/ But it is in the US. I'm agast that the Irish Celiac Society says malt vinegar is gluten free.  I wouldn't use it. No sense taking any chance at all.
    • You should never have cut out gluten until you had the biopsy done. It's much worse to have to go back on after you've been off gluten for a while. There's no way I could ever do the gluten challenge after being off gluten for even a month because my reactions got so dramatically worse.  Stress definately can trigger celiac- before I was diagnosed - it got the worst after surgery and after a stressful time planning my daughters wedding. 
    • Hi not diagnosed celiac, Welcome to the forum! Your doctor should be sent to remedial celiac disease training.  Since that probably won't happen, I suggest you find a new doctor.  He doesn't know what he's doing when it comes to diagnosing celiac disease. You should not have gone gluten-free before completing all celiac disease testing.  The testing for celiac disease depends on the immune reaction being active.  Removing gluten before testing removes the antigen that causes the immune system to react, and lowers the chances of getting a correct test result dramatically.  The University of Chicago celiac disease center recommends: ******************************************** http://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/ Prior to blood testing we recommend 12 weeks of eating gluten. Prior to an endoscopic biopsy we recommend 2 weeks of eating gluten. In the case of a severe reaction to gluten, a medical professional may opt to shorten the 12-week challenge and move immediately to an endoscopic biopsy. May, 2013 ******************************************** So you will need to go back to eating gluten before your endoscopy.  That may cause worse symptoms than before when you were eating gluten.  So it would have been better to do all testing before going gluten-free. Can you search for a celiac disease support group in your area?  They exist in many parts of the USA and world.  They can be a good place to get a knowledgeable doctor recommendation.  There is also a doctors subsection of this forum where you can search to see if any doctors in your area were recommended.
    • Hi All, I'm new to this and very confused! I have Lea & Perrins WC sauce, it lists it's first ingredient as Malt Vinegar.  I have the Coeliac Society of Ireland Food List 2015 here, and it says "All Vinegars are Gluten Free including Malt Vinegar." Doesn't that mean that L&P Worcestershire sauce is safe?   Their website states " Lea & Perrins® Worcestershire Sauce is cholesterol free, fat free, preservative free, gluten free and has 80% less sodium than soy sauce. " I'm cooking for my coeliac niece, can't afford to make a mistake!
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