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Finally!
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Hey just wanted to thank everyone this has been a great resource over the last couple days as I start my journey of being gluten-free. Here is my story

I am 27

For the last 5 years I have suffered from terrible eczema. No one has been able to determine what was causing this, I had it on my arms, my face, legs, back, knees, private areas. It was soo itchy at times I couldn't sleep and I would constantly itch all day. I cannot begin to describe how much this has destroyed my confidence in myself and my body.

I finally had enough of the Dermatologist prescribing me hydrocortizone and telling me there is no cure, I tried a naturopath. Within an hour she was pretty certain that I had a gluten sensitivity using an allergy test that I have never seen or heard of (I thought she was crazy at first, but she nailed all the allergies that I know about cats etc.) She gave me some supplements to take and told me to go Gluten Free starting today and to see how I feel.

I am currently on day 2 of being Gluten Free... the itching has stopped, my skin shows some reduction of eczema but still I am amazed. I am currently having some of the withdrawal symptoms everyone mentions (brain fog, super tired, gassy).

I looked at the symptoms of being celiac and I cannot believe how much I have suffered since I was a small child that would link back to this

-Chronic Nose Bleeds since I was 5

-Anxiety (Has gotten worse since early 20's)

-Cannot gain weight (135 for the last 10 years)

-Insomnia at times

-Super tired after eating large meals

-Lack of energy

-Depression

-Canker sores randomly

-Extreme hunger and thirst

-Pins and needles in my feet and hands

-Eczema

Finally I think I have determined what has been causing me all this suffering over the last 20 years, I am excited to finally have control over my body!

I hope the results continue, and that I can get used to the prices of gluten-free bagels and bread :@ lol

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Hi,

Welcome to the forum! :)

Please decide if you are interested in getting diagnosed. If you are you need to keep eating gluten until the blood draw is done for the antibodie testing. After you stop eating gluten the antibodies in the bloodstream drop and the testing is no good. To get tested later means going back on gluten and that can be difficult and painful. So it is better to get the testing done first if you need a diagnosis. Some people need a diagnosis to keep their resolve strong, others don''t.

I borrowed this list from Lisa's post:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

Total Serum IgA

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Daytime 10:

Oh, eczema, I use to deal with that, but mine was in a few places only. I feel for you. The MD's inability to find the root cause made me to consider natural health care. I hope that you get consistently better, but you may experience bumps along the way. Keep up the good work and keep on toward recovery. There are many things you can do.

My eczema appeared in my late teens and went away in my 20's. I got on some suppliments my chiro recommended. I wore gloves with rabbit fur on my hands that year. I began to make homemade soap. My eczema went away and has never returned even when I stopped the supplements. I hope yours will go away and stay away, for sure!

Get well ***

Diana

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I don't think I am going to get diagnosed, I don't care honestly

I just woke up and I can already tell that this is working, my eczema shows a small reduction and the itching is rare compared to all the time! Just by listening to my body I can tell that this is what I should have done a long time ago.

Natural Medicine has definitely made an impression on me, I am beginning to think that Western Medicine is all about pushing drugs and making bonuses and money from Drug Companies. I cannot even begin to think about how much money I have spent on Hydrocortizone, Immunodepressants, Body Lotions, Creams all suppose to get rid of my eczema.

Eczema is treatable, its your body telling you that something is wrong inside with what your doing... ignoring it or covering it with drugs will not fix it.

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I agree! many times western medicine just seems to put adrug band-aid onto a symptoms and don't even address the cause... I think it's a very backwards system myself.

I hope you continue to feel better.

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yup, western medicines forte is acute care/trauma.

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    • Thanks for replying. You've been very helpful and given me some ideas of trying a few foods in small amounts. I wish I had rotated food months ago then it might not have got so bad. Thanks again and I wish you well.
    • Until my recent blood test results I've been having cinnamon and mint tea in the mornings, which seemed to have a positive effect calming the digestive system (and tastes good too!)  After the first step of diagnosis with high Iga TTg I took at look at the cinnamon sticks I make the tea with and it says "packed in a factory that may contain wheat, corn etc. etc." so that I guess would sound alarm bells for many I reckon. That said I'd imagine the way most of these herbs and spices are harvested isn't exactly gluten-free friendly yet I've seen quite a few recipes using it. How are people getting around this as I can't see any specific gluten-free certified cinnamon products out there? Really could do with my tea back P.S. I also have chamomile tea using the raw flowers which may have a similar background but seem to be less of a risk somehow?
    • If I do have to go back on gluten for a bit it'll at least be a temporary relief from the withdrawal symptoms (or at least what I hope are just withdrawal symptoms). Today's returning malady is acid reflux, something I'd thought I'd seen the back of recently. Really need that to calm down as PPIs the doctor gave before were evil medication and caused 10x more problems, possibly the worst I've ever felt whilst on those so won't be going back there! Although the scales seem to have stabilised in terms of weight loss in myself I feel like I'm wasting away at present, what with the random pulling sensations in muscles and tender head area I'm just scared for what other illnesses may be laying in wait related to the celiac genes  Think I'll head back for the ESR and CRP blood tests next week as the shoulder and temple pains are really worrying me right now, could just be the gluten intolerance but the other options are terrifying if not caught early. So much uncertainty, apart from the fact that none of this ever gets fully better (if at all)...
    • You're welcome! Good luck! And if you get nowhere there, remember, the higher you go, the nicer they get. Skip straight up to the top brass.
    • I'm sorry you've been having such a rough time.  I'm thinking you may have accidentally ingested something containing gluten, and that's what caused your reaction.  A lot of people will react quite severely to even a tiny bit of gluten.  That's why there is so much on here about avoiding cross contamination.  Even though you've been diagnosed with NCGS, you still need to live as though you have actual celiac disease, and be very careful not to cheat.  Your body will punish you for it.  :/  In the meanwhile, nurture yourself kindly and gently, just as you would after a severe bout of food poisoning or intestinal infection.  Comfort foods, like broths and soups and smoothies.  You might want to avoid lactose for a few months too.  Sometimes we lose our ability to digest lactose when our intestines are damaged and vulnerable like yours is right now.   And remember healing takes time.  So does learning the gluten free lifestyle.  Expect some setbacks occasionally.  You WILL get better!
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