Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Does Dh Always Itch?
0

11 posts in this topic

I've had spots that appear mostly on my hands, wrists, and arms for about 6-7 years now. I've also had them show up on my legs, tops of feet, my lip, elbows and occasionally my back. I always thought it was eczema or psoriasis, but am now wondering. The spots usually present as small, round dry spots that will grow in size but are typically barely raised. Generally, they don't itch much, are just very dry and rough. Occasionally, these areas will itch like crazy for a day or two, but then go back to just being a nuisance and quite unsightly. They are usually pink and dry, but sometimes will turn into a "lesion." When they are itchy, they are bright red/maroon. I never get the blisters that are typical of DH. My spots will last for months, and once they are gone the skin is white. Hence, I have lots of white spots up and down my arms. Biopsy of a spot on my leg was inconclusive, but doc said her gut feeling was that it's the early stages of psoriasis, that it can sometimes take years to fully develop. I've seen pics here that look very similar to mine, so now I wonder if I should have had it tested for DH (I know this must be done on clear skin adjacent to a lesion). But because it doesn't constantly itch, I also wonder if could be DH??

I have one area that I know has to be DH. It's at the top of my butt and tingles/itches before an eruption. While it's active, it itches like crazy, but can be tender if scratched or rubbed. It's always in the same place. If it rears its ugly head again, I will definitely call to have a biopsy done immediately.

Thank you for any thoughts.

0

Share this post


Link to post
Share on other sites


Ads by Google:

I have been gluten free for over 3 years. I still have a very small amount of lesions on my back and butt . They only itch to the maddening degree they used too if I get glutened or consume to much iodine .But I always can feel them .

0

Share this post


Link to post
Share on other sites

Mine only itched to the point of insanity while I was still consuming gluten. Once I stopped, it's like an itch that's constantly there in the background but not an acute, insatiable itch.

0

Share this post


Link to post
Share on other sites

Mine only itched to the point of insanity while I was still consuming gluten. Once I stopped, it's like an itch that's constantly there in the background but not an acute, insatiable itch.

You described it very well . I sure dont miss that madding want to rip your skin off itch at all

' shudders even thinking of it ' :ph34r:

0

Share this post


Link to post
Share on other sites

About 15 years ago, I developed an unbearably itchy rash over most of my body, that lasted almost a year. Thankfully, it eventually cleared up but after that, I would, from time-to-time, develop itchy patches and also experience major flare-ups 2 or 3 times a year that would last about a month or so. Last August, I developed a horrible, prickly, burning rash over large parts of my body that lasted 4 months (until December). After eating a muffin one day and experiencing a major flare-up shortly afterwards, I decided to go on a strict gluten-free diet. Within a week, I was almost rash-free! What a gift to be free of that horrible itch and to have soft, clear skin once more! But sadly, my joy was short-lived! For the last 3 weeks, I have been struggling with extremely itchy patches on my arms, hips, back and face - strangely, the rash always seems to return in the same places on my body. I had a biopsy done, which came back stating that the results were consistent with an allergy to medication! I was not taking any medication! No blood tests or any other tests have been done - the dermatologist and my family doctor did not seem to feel that it was necessary. The fact that the rash cleared up so quickly after eliminating gluten completely from my diet (I am hugely vigilant about this) suggests to me that I have a sensitivity to gluten. In addition, my digestion seems to have improved (very little bloating, gas, and constipation now), I have more energy, and I am experiencing much less joint stiffness and pain. But, why oh why, am I experiencing this dreadful rash again?! Thankfully, although it is still bumpy and very itchy, it does not seem to be as extensive (at least, not yet) as it was back in the fall! But, the mysterious rash continues to be very uncomfortable and, at times, I feel as if I am unable to cope. It is certainly a dreadful thing to have to live with, that is for sure! I am wondering if there is anything else I can do. Would taking a probiotic help? When people are sensitive to gluten, might there be other related foods that could also trigger attacks? If anyone has any suggestions, I would be very grateful.

0

Share this post


Link to post
Share on other sites




About 15 years ago, I developed an unbearably itchy rash over most of my body, that lasted almost a year. Thankfully, it eventually cleared up but after that, I would, from time-to-time, develop itchy patches and also experience major flare-ups 2 or 3 times a year that would last about a month or so. Last August, I developed a horrible, prickly, burning rash over large parts of my body that lasted 4 months (until December). After eating a muffin one day and experiencing a major flare-up shortly afterwards, I decided to go on a strict gluten-free diet. Within a week, I was almost rash-free! What a gift to be free of that horrible itch and to have soft, clear skin once more! But sadly, my joy was short-lived! For the last 3 weeks, I have been struggling with extremely itchy patches on my arms, hips, back and face - strangely, the rash always seems to return in the same places on my body. I had a biopsy done, which came back stating that the results were consistent with an allergy to medication! I was not taking any medication! No blood tests or any other tests have been done - the dermatologist and my family doctor did not seem to feel that it was necessary. The fact that the rash cleared up so quickly after eliminating gluten completely from my diet (I am hugely vigilant about this) suggests to me that I have a sensitivity to gluten. In addition, my digestion seems to have improved (very little bloating, gas, and constipation now), I have more energy, and I am experiencing much less joint stiffness and pain. But, why oh why, am I experiencing this dreadful rash again?! Thankfully, although it is still bumpy and very itchy, it does not seem to be as extensive (at least, not yet) as it was back in the fall! But, the mysterious rash continues to be very uncomfortable and, at times, I feel as if I am unable to cope. It is certainly a dreadful thing to have to live with, that is for sure! I am wondering if there is anything else I can do. Would taking a probiotic help? When people are sensitive to gluten, might there be other related foods that could also trigger attacks? If anyone has any suggestions, I would be very grateful.

I have to extremely careful about the amount of iodine I consume.

0

Share this post


Link to post
Share on other sites

I have to extremely careful about the amount of iodine I consume.

Thank you. I will do check this out. Really appreciate your suggestion.

0

Share this post


Link to post
Share on other sites

I'd say if you don't have the itch, sting and burning (like being in a nettle patch) the rash isn't DH.  It also presents on both sides of the body.  It's weird but true.

 

You may want to consider the breakout at the tailbone area could be Shingles.  My doctor told me that if the nerves in that area are inflamed, Shingles can pop out.  I usually had Shingles run along my sciatica nerve (on thigh) but I first broke out at the tailbone area.

0

Share this post


Link to post
Share on other sites

About 15 years ago, I developed an unbearably itchy rash over most of my body, that lasted almost a year. Thankfully, it eventually cleared up but after that, I would, from time-to-time, develop itchy patches and also experience major flare-ups 2 or 3 times a year that would last about a month or so. Last August, I developed a horrible, prickly, burning rash over large parts of my body that lasted 4 months (until December). After eating a muffin one day and experiencing a major flare-up shortly afterwards, I decided to go on a strict gluten-free diet. Within a week, I was almost rash-free! What a gift to be free of that horrible itch and to have soft, clear skin once more! But sadly, my joy was short-lived! For the last 3 weeks, I have been struggling with extremely itchy patches on my arms, hips, back and face - strangely, the rash always seems to return in the same places on my body. I had a biopsy done, which came back stating that the results were consistent with an allergy to medication! I was not taking any medication! No blood tests or any other tests have been done - the dermatologist and my family doctor did not seem to feel that it was necessary. The fact that the rash cleared up so quickly after eliminating gluten completely from my diet (I am hugely vigilant about this) suggests to me that I have a sensitivity to gluten. In addition, my digestion seems to have improved (very little bloating, gas, and constipation now), I have more energy, and I am experiencing much less joint stiffness and pain. But, why oh why, am I experiencing this dreadful rash again?! Thankfully, although it is still bumpy and very itchy, it does not seem to be as extensive (at least, not yet) as it was back in the fall! But, the mysterious rash continues to be very uncomfortable and, at times, I feel as if I am unable to cope. It is certainly a dreadful thing to have to live with, that is for sure! I am wondering if there is anything else I can do. Would taking a probiotic help? When people are sensitive to gluten, might there be other related foods that could also trigger attacks? If anyone has any suggestions, I would be very grateful.

0

Share this post


Link to post
Share on other sites

I have been gluten free for 2 1/2 years. I still have DH outbreaks but they are not as severe as they used to be.  I am very sensitive to iodine. It will cause an outbreak within hours. I used to break out all over but now it seems to be confined to my arms and across my shoulders and back and on my buttocks but in a much smaller area than it used to.  I was one of those who seemed to improve immediately and couldn't figure out why I would have major breakouts for no apparent reason.  I believe  I have had this build up under my skin for so many years that it will take many years to get rid of it.  I had skin issues, allergies as a child & I am now 60 yrs old. I also had the migraines, joint issues, asthma, seasonal allergies, etc for all these years. I so look forward to the day that I do not itch.  Don't give up hope, for some of us it just takes longer.

0

Share this post


Link to post
Share on other sites

About 15 years ago, I developed an unbearably itchy rash over most of my body, that lasted almost a year. Thankfully, it eventually cleared up but after that, I would, from time-to-time, develop itchy patches and also experience major flare-ups 2 or 3 times a year that would last about a month or so. Last August, I developed a horrible, prickly, burning rash over large parts of my body that lasted 4 months (until December). After eating a muffin one day and experiencing a major flare-up shortly afterwards, I decided to go on a strict gluten-free diet. Within a week, I was almost rash-free! What a gift to be free of that horrible itch and to have soft, clear skin once more! But sadly, my joy was short-lived! For the last 3 weeks, I have been struggling with extremely itchy patches on my arms, hips, back and face - strangely, the rash always seems to return in the same places on my body. I had a biopsy done, which came back stating that the results were consistent with an allergy to medication! I was not taking any medication! No blood tests or any other tests have been done - the dermatologist and my family doctor did not seem to feel that it was necessary. The fact that the rash cleared up so quickly after eliminating gluten completely from my diet (I am hugely vigilant about this) suggests to me that I have a sensitivity to gluten. In addition, my digestion seems to have improved (very little bloating, gas, and constipation now), I have more energy, and I am experiencing much less joint stiffness and pain. But, why oh why, am I experiencing this dreadful rash again?! Thankfully, although it is still bumpy and very itchy, it does not seem to be as extensive (at least, not yet) as it was back in the fall! But, the mysterious rash continues to be very uncomfortable and, at times, I feel as if I am unable to cope. It is certainly a dreadful thing to have to live with, that is for sure! I am wondering if there is anything else I can do. Would taking a probiotic help? When people are sensitive to gluten, might there be other related foods that could also trigger attacks? If anyone has any suggestions, I would be very grateful.

I was diagnosed with DH before Celiacs and suffered from the skin rash for 5 years before being diagnosed.  Even after switching to a gluten free diet, the rash persisted.  My dermatologist suggested going on Dapsone and within hours of my first dose, the itching began to subside.  This May, I will have been on Dapsone for one year and it has been my saving grace from itching and the awful blisters. 

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,657
    • Total Posts
      921,628
  • Topics

  • Posts

    • Hi, you can try reporting your own post.  That should alert the site admin of your request.  I don't think they can delete your posts, but changing your user name may be possible.
    • Hi Pablito, Welcome to the forum! You are right, you should keep eating gluten  until the tests are all done.  The skin problems you describe ma be a condition only celiacs get.  The condition is called dermatitis herpetiformis (DH for short),  DH causes an itchy rash that is usually symetrical on the body.  You get the rash on both arms or legs etc.  It makes little blisters on the skin.  They are caused by IgA antibodies in the skin.  There i a test for DH where they take a small skin sample (biopsy) from the skin next to a blister and check it for IgA antibodies.   If they find DH, then you have celiac disease.  The 2 conditions are never separate.  there is a section of this forum dedicated to dermatitis herpetiformis with lots more information. The usual diagnostic process is to do a celiac antibodies blood test first, and then an endoscopy to test for damage to the gut lining.  But with DH, it is better to get the skin biopsy done instead of the endoscopy. Celiac disease is passed on in genes, so your children should be tested also if you are diagnosed.
    • Research Celiac Ataxia for potential diagnosis. Look at Milk and dairy for potential head and sinus related issues.  I stopped dairy and I can breathe now! Saturated fat may also be a problem, but it's mostly dairy!
    • It is best not to try and do this on your own. Talk to your allergist. Not all will deal with food intolerances but if yours doesn't find one who will.  Mine had me fill out a very detailed diet questionaire and tested for true allergies before he gave me my starting point. I will admit I wasn't real happy with my starting point since none of my usual foods were on it. He said that I was most likely to react to foods I ate the most so most of the 5 I either rarely ate or didn't really like. The prescribed starting point he formulated was designed to make sure I had adaquate nutrition and enough calories.   It took about 2 weeks before a lot of my tummy issues resolved and I was then able to start adding foods in one at a time for a week before moving on to the next.  He said food intolerance reactions can take up to a week to show up so I had to be sure it was a full week between food additions. I did have to call three offices before I found a doctor who could do the formulation of the diet but this guy truely saved my life. Out of all the doctors I had seen, including specialists in big hospitals, he was the one responsible for finally realizing I was celiac. He of course referred me back to my clueless GI doctor who confirmed the diagnosis by almost killing me with a gluten challenge. I should note that some of my intolerance (not gluten of course) did resolve after I had healed. Even dairy which I hadn't been able to have for years! I hope you can get some answers and are able to heal soon.
    • I'm 43 years old. I'm married and have two teen daughters. After all these years it was one of my daughters who tonight said to me: "you probably have Celiac disease" after hearing my wife and I talking about all the pimples I always get on my arms. I never heard of the disease but I have heard about a lot of people having gluten allergies and didn't know they were the same thing. So I started looking it up on the internet. Turns out I have had all the symptoms all my life and no one has ever said anything about it possibly being Celiac disease. When I was a kid my doctor gave me prescriptions to antibacterial soaps to use for the arm pimples. Hibitane I think was one of them. And I've always had swollen looking ankles as long as I can remember. All my life people have noticed it. As a kid and teen I played lot's of sports and have broken my ankles and sprained them so my mom and I brushed it off at that and so did my family doctor when I was young.  But I always thought it was weird that the swelling continued all these years.  I have had a bloated feeling stomach all my life too and chronic diarrhea. My stomach is always hard and swollen feeling. Not ever knowing what that stuff was related too so I have never mentioned the bloat or diarrhea to a doctor. Just kind of embarrassing I guess. As my wife and I were reading about Celiac Disease on the internet together tonight she pointed out to me that that's probably why these symptoms almost all went away when I did a very low carb diet for about a year straight to lose weight a couple years ago. I had solid bowel movements, no bloat, ankle swelling went down but I thought the improvements were from weight loss and just eating healthier . But perhaps in reality it probably had a lot more to do with not eating all the wheat products/gluten products. So tomorrow I will be seeing my doctor to talk to him about it and to ask for the blood tests. I have read that I should continue eating gluten though until my testing is done. So that is crappy but I guess it's better to know for sure. Something else I think I should point out too is that I get headaches quite a bit after having big meals. Now I am thinking that may have something to do with the gluten too. I have read that some people with Celiac also get headaches with the other symptoms. It's great to see there is a forum like this to help people out with these issues. If I test positive for Celiac I will for sure be following this forum closely for advice and diet/nutrition help.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,657
    • Most Online
      3,093

    Newest Member
    pablito
    Joined