Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Glutened...or Paranoid?
0

7 posts in this topic

Hi All,

I've been diagnosed with celiac disease and have been gluten-free for a year now. Last night I went to my Mom's house for dinner (as I do on a regular basis). She normally makes "regular" recipes for everyone, and then my own special gluten-free version for me (e.g. scalloped potatoes with regular flour for everyone else, and a special pot made for me that is gluten-free). Everything I ate last night was TECHNICALLY gluten-free by ingredients. However about 10-15 minutes after I ate I started to feel really sick. I got a bad headache, I was so nauseous and dizzy and just felt awful. I ended up coming home and going straight to bed. I couldn't even see straight. Today I woke up and feel like I'm hung over (even though I don't drink) and am weak and irritable. I've never had noticable digestive symptoms or otherwise before. Even before I went gluten-free, the only symptoms I had were from malnutrition/malabsorption of my food. I wouldn't feel sick after eating a piece of bread, for instance. So this is all new to me. Could this possibly be a reaction to gluten?? Or am I just paranoid?? Also, does this make sense that I would react like this to a, probably, minor cross-contamination when I never reacted to eating full blown wheat/etc before?

Thanks for any replies...

1

Share this post


Link to post
Share on other sites


Ads by Google:

It could be gluten. Could be a bit of food poisoning or stomach virus.

I used to try to cook gluten-free and regular at the same time. It's very hard to do. You forget and use the same measuring spoon from the gluten flour to the gluten-free flour . You have 2 pots of pasta going and use the spoon from one in the other without thinking, and on and on. She could have drained all the potatoes in her colander she uses for gluteny pasta. It's hard to know.

1

Share this post


Link to post
Share on other sites

It doesn't sound unreasonable that you could have been glutened. It sounds like how my daughter reacts to even just a little cross contamination.

0

Share this post


Link to post
Share on other sites

Interesting. Thanks guys. I don't know if it would be food poisoning, since no one else got sick, but I guess there's a chance.

I guess it's hard to say. I worried right away "maybe I've been glutened!!" but I also didn't want to jump to conclusions. The good news is that I'm feeling better today. I just wondered if those were some signs I could look out for in the future. Has anyone ever done anything possibly stupid like take a bit of regular cake or something just to see what your reaction would be?? Or is that just crazy talk?

0

Share this post


Link to post
Share on other sites

Interesting. Thanks guys. I don't know if it would be food poisoning, since no one else got sick, but I guess there's a chance.

I guess it's hard to say. I worried right away "maybe I've been glutened!!" but I also didn't want to jump to conclusions. The good news is that I'm feeling better today. I just wondered if those were some signs I could look out for in the future. Has anyone ever done anything possibly stupid like take a bit of regular cake or something just to see what your reaction would be?? Or is that just crazy talk?

Food poisoning can hit anywhere from hours to days after exposure...
0

Share this post


Link to post
Share on other sites




You were glutened. I have celiac, diagnosed 6months ago. Sounds like you caught yours early because of how you describe your symptoms. I did not have digestive problems for a long time but eventually did. The way you describe what happened describes many months for me until finally diagnosed. I would say don't try to figure it out because you can't. Anytime you eat in a group setting you increase you chance just because there is more people. I tell my family not to make something for me because there is always someone there that is a "picker"...they gotta try everything, and they use the same spoon. I have watched my family accidentally cross contaminate my gluten free meals. Their response is sorry and I am done eating. And these are the ones I saw. So that is a gluten hang over, it is real and I still get it. I also think you can refuse the symptoms with water and electrolytes'

1

Share this post


Link to post
Share on other sites

Well, I had a simalar response last evening to eating somewhere else. I brought my own food. My foods were lamb, kelp noodles, and an almond muffin. All of the foods I have been okay in the past. All foods made at home from scratch. I am having some for lunch, but not the ones I took alongs, but some I left home. I am thinking that rules out a problem with the particular foods.

On the way home I felt a pain in my abdomen and nausea, I also swelled up my abdomen and had general other swelling.

To heat the foods I placed them in a toaster oven. They were in a stainless steel small bowl with a lid. I put foil over the lid to keep it together in trainsit. I also had noodles cooked in a stainless steel pot which we brought from home. I rewashed a stainless fork that I used.

Some possible problems I could conceive of is:

The well used potholder I used dropped bits onto my lid which spilled into my meat as I removed the lid. Or

The stirring spoon touched something in the kitchen and went back into the pot.

Or the paper plate I used may have had gluten flour settle upon it in its history.

I am not saying that everyone has to be this careful, but it sure seems like I better be really careful.

I didn't have all of these symptoms in my glutenful days either. But I think my body is better able to complain. I mean I couldn't hear it complaining when it complained all of the time. Now, I have a peaceful existence contrasted with groanings. Does that make any sense?

Diana

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,091
    • Total Posts
      920,311
  • Topics

  • Posts

    • Thanks for posting this Adrien, it's a great list and I and others will appreciate the effort and the thought behind it. I loved my time in Malaysia and I'm glad I sampled all the food I could whilst I was still on an unrestricted diet. The good thing is that, like you say, some of the nice Malay foods are still ok. As a backpacker I survived on a lot of nasi goreng and laksa, nice to think if I return there I could still do the same Terima kasih!
    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
    • Thanks for sharing with me.  I really appreciate it.  Honestly, after a glutening last summer (still do not know what glutened me), I did not eat out for a year!  The risk was too great as my healing time took 3 months (for symptoms to subside) and six months to regain lost weight.  Our recent vacation to Europe was worth the risk  as we traveled with our entire extended family, but we were extra cautious and ate only at celiac-approved places.  Otherwise, we "dined" at markets or ate the food we brought from home.  Thankfully, we did not get glutened (at least we don't think so!)  
    • I do not struggle with this and I was brought up the same way as you. I don't struggle because for many years off & on we didn't have a bathtub, only showers as well as this being therapy or medicinal for the skin - heck even for the muscles as I age. I figure I've earned my right to luxuriate or medicate with baths any time I've a mind to. My husband saw just how bad my dh got & NEVER begrudges me a nice long soak in the big soaking tub we now have.
    • Hi, No, I do not have celiac  disease. I have an ankylosing spondylitis which is an auto-immune disease provoking an inflammation of the joints. Under the advice and supervision of my doctor and the professor at the hospital I follow a gluten free & casein free diet, which is extremely successful in preventing inflammatory events. And I've been doing so, strictly, for more than 6 years. So I'm not Celiac, but I can tell you that I react strongly every time I take gluten even in small amounts. Even soya sauce, which according to this website has an almost zero dose of gluten, is a lot too much for me. Nevertheless I allow myself to eat food which has been processed in a factory which processes gluten. To conclude, I would say that when you are travelling, especially in a country where celiac disease is scarcely known, you should be twice as careful as when you're going out at home. In the end you can never guarantee that the cook has cleaned his pan after using soya sauce and so on... You can only bet
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,121
    • Most Online
      1,763

    Newest Member
    Sambud
    Joined