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Autoimmune Disease Comorbidities
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4 posts in this topic

Hi,

I am brand new to the forum and have been learning a lot about Celiac and gluten (from this forum and other places as well).

My question is: do most with Celiac disease have other autoimmune diseases as well? I experienced Toxic exposure while in the military and have a bunch autoimmune diseases that my family (even my twin brother) do not have:

- MS

- Fibromyalgia

- Allergies & Asthma

- Hashimoto's Thyroiditis (Autoimmune Hypothyroidism - had to have a complete thyroidectomy)

- Endometriosis (had a complete hysterectomy)

I have a ton of GI symptoms and have had them for the past 10-15 years. They seem to have gotten worse over the years. I don't deal with weight loss and am over the top of my weight range: 5'9" & 190 lbs. I was experimenting with Gluten Free foods but have added various Gluten (I had pizza yesterday and a leftover slice this evening). Both times have left me bloated, gassy, growly stomach and sometimes diarrhea. MS can effect bowels too (I have a completely neurogenic bladder). I am due for a colonoscopy and am going to have them do an endoscopy while they are at it.

It seems my autoimmune system is going after something and seems to turn on itself. Wondering if there are a lot of folks here with dual autoimmune diseases. I'm pretty sick of the GI stuff and would like to get to the bottom of it.

Thanks,

Diana

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Yes absolutely celiac runs with autoimmune diseases, but the fact is that once you have one autoimmune disease you are at risk for many others. Celiac in particular has a strong association with hashimotos and type 1 diabetes, I believe possibly lupus as well.

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Yes absolutely celiac runs with autoimmune diseases, but the fact is that once you have one autoimmune disease you are at risk for many others. Celiac in particular has a strong association with hashimotos and type 1 diabetes, I believe possibly lupus as well.

Yep. I have hypothyroidism, type 2 diabetes, diverticular disease (new dx), kidney failure (early, I hope) and allergies/asthma ( adult onset only). Stinks doesn't it? I think I posted elsewhere it is like our own immune systems are attacking one organ after another....:(. I already did heart and lung disease some years ago. Hope some things soon resolve for you to some extent, GKYgirl....

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It seems to be especially common amoungst those of us celiacs who lived undiagnosed, and therefore untreated, for many years (this is just a personal observation though). I know that the inflammation from gluten can exasperate other autoimmune disorders, I'm not sure if or how it actually triggers them to start.

As far as I can tell, I've had celiac my entire life. I developed Hashimoto's and ITP as a young adult. I think I might have a connective tissue problem (like Lupus) too.

I wanted to add, if you are getting tested for celiac (through endoscopy, blood work or both) you should continue to eat gluten until your tests are complete, otherwise you could end up with a false negative test.

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    • I havent used it, not much of a baker tbh, but this one looks good: http://alittleinsanity.com/gluten-free-pie-crust-recipe/
    • As you say, there's no test, it's diagnosed by exclusion, so there's no metrics to check to assess compliance other than anecdotal response to symptoms. Conversely, I've not seen anything that says that NCGI can resolved or be cured either.  This paper gives a good summation.  Basically, there's not much research period! That is changing though, I think there's research underway which could help give answers.
    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
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