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Please Help! (Year And A Half Problem)
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2 posts in this topic

Hello,

For about a year and a half now I have been dealing with a lot of itchiness and bumps. I am 22 years old and have had red bumps appear all over my legs, thighs, stomach, etc. At first I had a few times where it was only my fingers, but it has become more severe now and my fingers are normally the last to become itchy and covered in bumps. The elbows also seems to be a common spot for me but not as itchy there. I have attached pictures and could realllyyyy use some help if someone has had similar rashes and has since then found out what it was. I have been to doctors and they have told me general allergy to swimmers itch to random other things but none of them were 100% sure. Please please please let me know if you can help!!!! Thank you so much!!!!

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I have recently been diagnosed with celiac. Many doctors visits leading to the diagnosis all for the wrong thing. I get very itchy when I have a reaction. I will prevent me from sleeping it's so bad. I would also get some skin reaction but no full on rashes. Once I cut gluten thing improved drastically. But even as I write this I am once again struggling with itching. I also think partly because I finally figured out that I was chronically dehydrated because of the damage to my intestines. To counter that I started salt tablet and pedialite in addition to water which helped alot. Many of my diagnosis were as a result of web research. My doctor has been very supportive as well. I inform him of everything I do because it seems like there are dangers to everything including drinking too much water without adding electrolytes.

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    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
    • I was tested for the full panel, I believe. I had normal values for t-transglutaminase (ttg) igg,t-transglutaminase (ttg) iga, deamidated gliadin abs igg, deamidated gliadin abs iga, and immunoglobulin a qn serum.  
    • Going gluten free may be beneficial if you're among the roughly 10 percent of people who suffer from celiac disease, a genetic immune disorder, ... View the full article
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