Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

Celiac And Lupus Relationship And Possible Mimickers

2 posts in this topic

Hi everyone, I wanted to tell you all about an article that I came across as I was researching dsDNA and celiac correlation. When I had my testing done for celiac disease, my dsDNA was also detected which is a marker for SLE (Systemic Lupus Erythematosus) but my neurologist, family doctor and several other second opinions later, they all say I do not have lupus because of the low titer range being 1:10 and I never get the rashes nor joint pain association. I have had seizure type activity, photophobia, neuropathies, and weak muscles that I surely thought was lupus, however I never have had all of the criterion and things just didnt quite add up. I also tested positive for the deamidated gliadin peptide igG (DGP IgG) which indicates celiac disease.

In doing research I found an article wriiten about a woman, Margaret Romero, who was diagnosed with lupus nephritis, and she found out that she had the genes for gluten intolerance. Her story is pretty remarkable and I wanted to ask you guys if you have heard of her before and what you think about her story. I will attach a link but I am not sure what the rules are for posting for links, but here it is, I hope that you can read it and see her success.

I also found this study for those with lupus like symptoms and even diagnosis which turned out to be gluten sensitivity. I am not saying this is EVERY case because everyone is different. I think for learning and knowledge purposes it can be very informative. It also may offer some of us relief. I wonder if celiac really can be mistaken for lupus? Has this ever happened to anyone here? Thanks in advance and I really hope that it is okay that I am giving these links for others to read.


Share this post

Link to post
Share on other sites

Ads by Google:

Interesting links. I'm glad you posted them. :)

I suspect SLE could be a possibility for me, and I am waiting (and waiting) to see a rhuemy about it. I did not have a positive dsDNA, or any other antiautobodies that are normally screened for lupus. My only blood work was positive ANA titres (1:160) years ago but my recent one was considered negative (1:80). My SLE-like symptoms include arthritic joint pain that occurred on and off since my early 20's, ITP (thrombocytopenia), headaches, hair loss, fatigue, and a blush/rash over my cheeks and nose (but I also have some roseacea so it's hard to tell where that ends and the rash begins). I have a some neuropathy too but I think it's from a bad back.

So, I have some symptoms of SLE, and they actually got quite bad with a "flare-up" after I had been gluten-free for about 2 months, but now the symptoms are disappearing. I have less symptoms now than I did 9 months ago and I have no idea if it is just because this autoimmune problem (possible SLE) is waning or if it's because I have been gluten-free for 6 months or if it's because my hypothyroidism treatment is getting closer to optimal range. :huh:

It's possible that celiac disease is gave me Lupus like symptoms. I never experienced an immediate change in my SLE-like symptoms after consuming gluten except for my headaches; those seemed to happen a few hours after gluten. The arthitic like pain, face rash, and pain seem unrelated to gluten as far as I can tell. I know that my hair loss is related to gluten consumption because I started getting a lot of regrowth after eating gluten-free for a couple of months but then when I had an SLE like flare, it fell out again so it is linked to a couple of causes... Darn it... My problem is staying patient so I can give it enough time to be able to tell what is what! LOL


Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Forum Statistics

    • Total Topics
    • Total Posts
  • Topics

  • Posts

    • This is a great information piece on Celiac in Kids esp, followup care.
    • Hey all- just thought I would send an update. I worked out hard but not too long or too hard last week on Thursday- one hour pilates class (which isn't too strenuous to me) and then did squats and some other arm/back lifts. But i couldn't do my third set of squats because my quads were cramping up.I took my Glutamine twice that day, vegan protein and tried to eat more, I tried to avoid more than 1 drink for two days, and waited until I wasn't too sore anymore. and just did pilates reformer on friday.  So I did it! I paced myself well. I missed my normal Monday pilates reformer time (sinus infection now from my last cold ) But did make it on tuesday. Today I only had 1 hour of work out time (the child watch was closing!) so I busted out bench, straight leg dead lifts, upright row, reverse lunges with military press, and then finally squats. Let's just say i went pretty hard compared to last week and got 3 sets in for everything  it was great!. so now I am eating like a mad person, I didn't get any quad cramping this time so that was good. Maybe because I have been off dairy that i am absorbing stuff better who knows.  But I know i have to stay on track with my supplements and eating and not drinking.. much  
    • Cyclinglady -  Negative was also what I was thinking. The reference range at my lab does not give a negative, weak positive, and positive range, rather just a normal range. I just found that while scouring the internet. Seem like a lot of other people on here are give weak positive ranges as well. Anyways, I'm sure I'm reading way into this and it's nothing.  Very interesting that you never presented with a positive tTG IgA with such damage to your intestines.  No mention from my doctor concerning the low ferritin either. I only saw it when I was reading my own lab tests. Do you have any suggestions for what could be causing this? For the full celiac panel, is that something I should probably see a GI for? Thanks again for all your helpful suggestions!  
    • Kept the quote short for ease of reading but yeah I've cut a few people loose in the past few weeks after seeing their reactions. Fortunately balanced out by the positive, helpful comments on here though. Main reason for putting myself through this gluten challenge business isn't so much to get the diagnosis but more to find out just how bad the damage is (expecting the villi to be flat as pancakes so anything less will be a bonus). Over here in UK I can apparently get certain gluten-free foods on prescription with the official diagnosis too so that's the other reason I've been given for doing it. I'm hoping that having done the first week back and took the initial hit that the glutening symptoms may not be as bad for the next 3 weeks. Not quite sure how I've got through it at times but at least I know what the problems are caused by now whereas 6 months ago it was a complete mystery. Managed to summon up all my energy reserves for some sport last night, suffering for it today but forgetting about everything for a while makes it worth the pain!
    • I'd say that TTg IGA is negative and would not consider it a weak positive, but....I am not a doctor!  😏  I do know that each lab has different ranges and you should just compare your results with the ranges the lab uses (not from the Internet).  Your ferritin is low and your doctor should find the reason why it is low.  Again, celiac disease can not be ruled out until you have  the complete panel run.  Why?  I have never had a positive TTG test even in follow-up testing (biopsies: Marsh Stage IIIB).  I test positive ONLY to the DGP IGA.   Get the rest of the celiac panel.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
    • Most Online

    Newest Member