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Celiac And Lupus Relationship And Possible Mimickers
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Hi everyone, I wanted to tell you all about an article that I came across as I was researching dsDNA and celiac correlation. When I had my testing done for celiac disease, my dsDNA was also detected which is a marker for SLE (Systemic Lupus Erythematosus) but my neurologist, family doctor and several other second opinions later, they all say I do not have lupus because of the low titer range being 1:10 and I never get the rashes nor joint pain association. I have had seizure type activity, photophobia, neuropathies, and weak muscles that I surely thought was lupus, however I never have had all of the criterion and things just didnt quite add up. I also tested positive for the deamidated gliadin peptide igG (DGP IgG) which indicates celiac disease.

In doing research I found an article wriiten about a woman, Margaret Romero, who was diagnosed with lupus nephritis, and she found out that she had the genes for gluten intolerance. Her story is pretty remarkable and I wanted to ask you guys if you have heard of her before and what you think about her story. I will attach a link but I am not sure what the rules are for posting for links, but here it is, I hope that you can read it and see her success. http://celiaccorner.com/celiac-gluten-free-blog/surviving-a-dual-diagnosis-of-lupus-and-gluten-sensitivity/

I also found this study for those with lupus like symptoms and even diagnosis which turned out to be gluten sensitivity. http://ard.bmj.com/content/63/11/1501.full I am not saying this is EVERY case because everyone is different. I think for learning and knowledge purposes it can be very informative. It also may offer some of us relief. I wonder if celiac really can be mistaken for lupus? Has this ever happened to anyone here? Thanks in advance and I really hope that it is okay that I am giving these links for others to read.

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Interesting links. I'm glad you posted them. :)

I suspect SLE could be a possibility for me, and I am waiting (and waiting) to see a rhuemy about it. I did not have a positive dsDNA, or any other antiautobodies that are normally screened for lupus. My only blood work was positive ANA titres (1:160) years ago but my recent one was considered negative (1:80). My SLE-like symptoms include arthritic joint pain that occurred on and off since my early 20's, ITP (thrombocytopenia), headaches, hair loss, fatigue, and a blush/rash over my cheeks and nose (but I also have some roseacea so it's hard to tell where that ends and the rash begins). I have a some neuropathy too but I think it's from a bad back.

So, I have some symptoms of SLE, and they actually got quite bad with a "flare-up" after I had been gluten-free for about 2 months, but now the symptoms are disappearing. I have less symptoms now than I did 9 months ago and I have no idea if it is just because this autoimmune problem (possible SLE) is waning or if it's because I have been gluten-free for 6 months or if it's because my hypothyroidism treatment is getting closer to optimal range. :huh:

It's possible that celiac disease is gave me Lupus like symptoms. I never experienced an immediate change in my SLE-like symptoms after consuming gluten except for my headaches; those seemed to happen a few hours after gluten. The arthitic like pain, face rash, and pain seem unrelated to gluten as far as I can tell. I know that my hair loss is related to gluten consumption because I started getting a lot of regrowth after eating gluten-free for a couple of months but then when I had an SLE like flare, it fell out again so it is linked to a couple of causes... Darn it... My problem is staying patient so I can give it enough time to be able to tell what is what! LOL

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    • Below is copied & pasted from this thread:   My celiac doctor is Dr. Syed Jafri, in Webster, TX (just south of Houston -- basically the Clear Lake City area), saved my LIFE.  I would recommend him to the whole, entire world.  I was desperately ill, and am still struggling, and he's a wonderful, sweet man who listens and is very proactive in helping you solve whatever problems you're having.  I wish all doctors were like him.  I have to fight and struggle with too many doctors to just listen to me and what I live with, day in and day out.  He's not like that.  Good luck to you.     There are recommendations on this thread too:  
    • I never worried about cross contamination because i was originally told i was just intolerant. after going gluten free i felt so much better up until this last march. dairy and fructose have been giving me problems but both lactose and fructose test came back negative.  this is what my gi doctor emailed me today 
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    • Don't freak out worrying about other maladies yet. You would be absolutely amazed at the things that can/will resolve on the gluten free diet. Some take longer than others -- neurological seem to take the longest for most people but really, I guarantee, there will be things you had no idea or expectation of resolving will. There were tons for me and then there were things I sort of "woke up one day" & said, "hey, that's gone and that & that & that". Other, larger things had taken my attention so I hadn't paid attention to the smaller things until...... On the other hand, not everything is related to celiac but I bet you wouldn't find a handful of celiacs who didn't say something very similar to what I said above. Yes, thyroid problems are common with celiac but I'll also tell you there are/have been people on here who were hypothyroid before dx but after being gluten-free for a while they actually went back to normal thyroid numbers. My husband is one (yes, we both are celiac - it happens). He was on synthroid for 20 years or more. Guess what? He's not on it anymore. We've had his thyroid panel done several times since about a year gluten-free & he is no longer hypothyroid. 
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