Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Test Results And Ranges
0

10 posts in this topic

Hi guys,

I was just wondering if anyone could help me out. I recently got an Anti-transglutaminase antibodies test, along with a few other things, and got a phonecall from the Doc today. I have an appointment in a few days for the results, and I was just wondering, when you guys got told your results, was it classed as urgent? Like did you get called in the same day? It's just I do suffer from health anxiety, and waiting for results has to be the worst part for me!! So I'm mainly just posting this to help allay some fears. Hopefully, someone diagnosed can let me know their experiences.

Also, I was wondering how to interpret the results? Like what are the ranges and stuff?

Thanks in advance.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Oh i understand that axiety. :)

No actually, i didn't find out until a week later.

Each lab does it just a bit differently. For example, my ttg IGA was 37 (with 1-19 normal, 20-29 low positive, 30+ high positive).

0

Share this post


Link to post
Share on other sites

It was at least a week for me too. Hang in there.

I believe my ttg IgA test had a 0-20 range too, anything above 20 was positive. Did the doctor check your total serum IgA too? That's the test to make sure you have enough IgA so your test could show an elevated ttg IgA (if you have it).

Use this time to eat your favourite "gluteny" snacks and finish off pastas or breads so if you need to make the switch to gluten-free eating, you'll be on your way. Good luck!

0

Share this post


Link to post
Share on other sites

Thanks very much for the replies :D has helped calm me down somewhat, Wednesday can't come fast enough to be honest, lol.

I just realised I think I got the name of the test wrong! I can't remember what the test was now (grr, damn memory), but I remember the Doctor saying that this is a "specific test for Celiac, and there isn't really a full panel," when I inquired about it. I think it was actually endomysial antibodies? Ah well thanks again guys, I guess I'll just have to wait and see :)

Edited by Jonoh
0

Share this post


Link to post
Share on other sites

Don't worry about the results, I know that is easier said than done but really Celiac is not that bad of a disease. Believe it or not anxiety can be a huge symptom of it and going gluten free often completely diminishes the angst from undiagnosed Celiac patients. What led you to Celiac testing?

0

Share this post


Link to post
Share on other sites




Thanks very much for the replies :D has helped calm me down somewhat, Wednesday can't come fast enough to be honest, lol.

I just realised I think I got the name of the test wrong! I can't remember what the test was now (grr, damn memory), but I remember the Doctor saying that this is a "specific test for Celiac, and there isn't really a full panel," when I inquired about it. I think it was actually endomysial antibodies? Ah well thanks again guys, I guess I'll just have to wait and see :)

are you in Canada?
0

Share this post


Link to post
Share on other sites

are you in Canada?

Nah, I'm from England :)

Don't worry about the results, I know that is easier said than done but really Celiac is not that bad of a disease. Believe it or not anxiety can be a huge symptom of it and going gluten free often completely diminishes the angst from undiagnosed Celiac patients. What led you to Celiac testing?

Yeah, I can vouch that anxiety surely does cause symptoms. If I do have celiac, I hope the anxiety will go on a gluten free diet. Being a health worrier, I've been spending waay too much time on google, lol. Celiac is the first disease which fits every last one of my symptoms, so I've asked the Doctor for it. I'm aware that it could be something completely different, but I did do a small gluten free break a while back, and I did seem to feel better. I dunno, I guess a part of me kinda wants it to be celiac, 'cause then at least it can be controlled by what I eat *sigh*

0

Share this post


Link to post
Share on other sites

A good number of us are non celiac gluten intolerant, or came back negative for celiac. Worth sticking around even if tests are negative, especially if you think a gluten-free diet might help. I had rthe whole symptoms match thing, and am doing way better gluten-free, despite negative tests, including genetic. am in the UK too :)

0

Share this post


Link to post
Share on other sites

A good number of us are non celiac gluten intolerant, or came back negative for celiac. Worth sticking around even if tests are negative, especially if you think a gluten-free diet might help. I had rthe whole symptoms match thing, and am doing way better gluten-free, despite negative tests, including genetic. am in the UK too :)

I didn't even take the idea of non-celiac gluten intolerance into account! Thanks for that, I'll definitely look it up. Does it cause the same symptoms of Celiac?

Just an update, I got my results. The celiac was negative, but it was an IGA test, so could have been so 'cause I'm IGA deficient, I dunno. I do have a deficiency in b12 and folic acid, so am on supplements for 2 months, will see if my b12 has gone up at the end of it to see if I'm having problems with absorption. I also got referred to a gastro, so we'll see what they have to say. I have a feeling I'm gonna have to get an endoscopy, never had one, and not looking forward to it :blink: lol.

0

Share this post


Link to post
Share on other sites

I am still mystified by which tests the nhs do. They are fond of the old biopsy though. It isn't nearly as bad as you probably think it will be. Remember to stay on the gluten until testing is done.

The NCGI symptoms are often very similar, but without the villi damage and antibodies. Still a fairly new area of research, but very interesting. My GI diagnosed me after negative tests including genetic, but strong response to gluten challenge and positive response to gluten-free.

Good luck with the next stage, ask lots of questions :)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,698
    • Total Posts
      921,787
  • Topics

  • Posts

    • When it's that high, it almost always means Celiac.  Sure, you can have Crohns, too.  Just like you can have Celiac and diabetes, the common cold or a hang nail.  I wouldn't jump to Chrohns.  I don't think the tTg really has anything to do with Chrohns?  Where did you see that?  Sometimes, a slightly elevate tTg can be elevated from other issues, but >100 is not a " slightly elevated" reading
    • Hi! I'm new here, and I'm looking for some information because I'm having a hard time finding it.  Over Labor Day weekend I got some kind of intestinal bug. I didn't think much of it until the D persisted once a day up til now. I tried a priobiotic but that didn't help much. I have bad anxiety and began to think that I was just anxious and stressed. No fever, no pain, all bloodwork is normal, so no infection or anemia. My mother has 5 siblings and 3 have celiac. One other one had a high result on a blood test but was never officially diagnosed and insists she doesn't have it. So I went to my local health fair and got the ttg-iga test, just in case. My result came back at >100. So I have called and scheduled a visit with a GI for next week. Aside from the recent intestinal issues I have never thought that I had any signs of celiac. I do have dermatographism and have had that since I was 20 (I am 28). I have severe anxiety. I had PUPPPS when I was pregnant with my daughter and it was miserable. It looks much like the skin rashes that celiacs have. Again, didn't think much of it. Because of my anxiety I am terrified that this high blood test is from something else, like crohn's. I don't have diabetes, my liver and thyroid numbers are fine. I think it's much more plausible that this is celiac because of my family history. But my anxiety says "what if it's crohns?" Does anyone have any insight? Is it true that the ttg iga can be elevated from crohns and not celiac? Is >100 pretty definitive of celiac? I didn't know if crohns was the cause if the number would be this high.  I'm just freaked out. 
    • This does say it is for NCGS....so not  for Celiacs.  There is a drug being developed that may actually break down the gluten in the stomach before it hits the intestines.  However, that is still in clinical trials.
    • could be from your neck, or it is, literally, in your head. perhaps a scan is needed.
    • The anxiety thing is there I take teas, and supplements along with CBD oil to help with it, and long walks and exercise when I get antsy. As for the human interaction it is a mix of other mental issues, and the way I feel about people who can eat gluten. If they are not eating I have no issue talking with people. I mentioned I have issues accepting them as the same species when I see them eating. My reaction to gluten is so ingrained in me that it is not a food but a poison, that watching others eat it causes a subconscious reaction where I find myself avoiding them and looking down on them like something from another planet. I end up disgusted with them and walking away, I will go out of my way to avoid people and places where foods like this are present. This is my TRAUMA part of the gluten exposure, and one of the big things I am trying to address in my life right now. I know it is irrational to do so but I end up doing it, I have never cared about others race, religion, or looks, but if I see them eating a gluten/poison, it somehow changes how I perceive them and interact with them and I hate this part about me. It is taking a lot of mental effort to try to smile and treat them as a human, and not something to be looked down upon in disgust. I just recall that mental state that gluten puts me in with my mind and body turning against me and not doing what I will it and the fear comes back. This diet is pretty much like mine, I take Doctors best Magnesium powder in a tea that is actually brewed with st johns wort (never thought much of it) , I use Liquid Health Stress & Energy along with the Neurologic Support they have, twice-three times a day for B vitamins(along with a bunch of other supplements) . I can not digest meats or carbs well, meats it is a issue with breaking them down same with egg yolks, I literally just burp up the undigested meats hours later. I have found the only way to eat them is to boil/slow cook them til they melt then blend them into a broth and have it with digestive enzymes so only do it with turkey bacon, longhorn, and salmon in small amounts in soups or for flavoring stock for stir frys.  As for Carbs like rice and potatoes I end up getting really gassy and bloated, same with sugars in any amount greater then like the size of my thumb give or take. Oats I only have gluten-free Harvest in about a tbsp amount when tasting recipes of stuff I sell at farmers markets. So I eat mostly fats and protein from egg whites, nuts, seeds, veggies, and vegan protein powders blends balanced for complete proteins. I have at least 1-2 dried fig, dates, handful of banana chips, or a 1/4 of a small fruit with meals for fruits.  My meals are mostly egg white and veggie omelettes, stir frys, and soups, Always with lots of fats and proteins in each meal. I have found having nutritional yeast to help with my mood and energy levels also and find someway of having it in meals often. I keep my foods on rotation and keep getting updated feed back on ratios with my dietician. I also have a rather odd list of foods I can not eat due to allergies/intolerance.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,704
    • Most Online
      3,093

    Newest Member
    Fbmb
    Joined