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Ate Gluten And....nothing Happened? Totally Confused

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My daughter was diagnosed at 20 mos old. It's a long story but the short version is that she was diagnosed based off a negative blood test, inconclusive biopsy, and a very high risk genetic testing result along with her miraculous results going gluten-free. From the time she was born she had food intolerances to almost everything, horrific diaper rashes, distended belly, constant hunger, was not growing, and was just generally a miserable child. She was only 15 lbs at 2 yrs old (was 16 lbs at 6 mos old) and after being gluten-free for 6 weeks she was 20 lbs. Her acid reflux went away as did the distended belly, the constant hunger, the misery, and all the food intolerances. Then we also found out my hubby has celiacs disease as well.

So anyways long story longer, she's now 5 yrs old and yesterday was the first time since 20 mos old that she received anything more than contamination. We were at Cold Stone Creamery, where we've gone successfully before, and I stupidly let her get the cake batter ice cream. I was positive I had looked it up before and had been surprised it was a safe flavor so I didn't even ask. I really don't know what the heck I was thinking. Anyways they knew she was gluten-free because they know to mix it in a different container and not on the stone. After she had been eating for awhile they came running out and told us that flavor has gluten in it. I looked it up and yeah, it's def gluten with wheat flour.

So far nothing has happened? She ate at least 10 spoonfuls of it. I'm so confused. In the past when I was pretty sure she ate something contaminated she was in the bathroom before we could even leave (I think they took the bun off her patty but did not re-make it like they should have - of course I have no proof).

How could she eat that ice cream and have nothing happen? I know reactions can be delayed but this seems kind of crazy. She's running around & totally happy and fine. No side effects whatsoever.



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My guess (this is entirely a guess) is that she doesn't have the same damage and irritation in her gut as before so the reaction was not as strong (or noticeable).

Another guess is that the way she reacts has changed over the years and you haven't recognized the reaction for what it is. It could bother her skin, give her mouth sores, a headache, make her a bit tired... any number of things. It is quite common for the reaction to vary in it's presentation; just think of people who did not recognize their celiac symptoms for what they were until the stomach aches started and their symptoms resolved on the gluten-free diet... It's a possibility.

Or she got very lucky! :)


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I know a lady that was diagnosed with Celiacs as a child that stopped showing symptoms when she was about 5. Her family thought she had out grown it somehow and let her eat gluten from that point on. Later when she was 19, she started having intestinal bleeding because her lining was destroyed by the gluten all of those years, even though she did not show signs. I have read that in children the signs might go in remission for years, but reappear in their teens, just like in this woman. Perhaps that is why your daughter did not react. Children seem to be even harder to read with Celiacs and their test results, their reactions...everything.


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    • I have the same symptoms.  These symptoms have overlapped other issues that I have and have been left untreated for far too long. Now the pain has gotten worst. My GP believes it's my hiatal hernia.  I have pain below my breastbone, pressure pushing up my chest/throat, dizziness and nausea. 
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    • Hi Ironic Truth, Thanks for Replying. Wow I get bad joint pain too. So my opinion especially if he is eating gluten is to get him tested. I wish I had been tested when I was eating gluten 8 years ago .  I had tried 8 years ago initially to figure out what the heck was going on with me and my immune system. I started with a GP, went to Allergist/Immunologist etc. I gave up 4 doctors later when nothing seem to be found and you sense they start thinking lady you're a nut job . My cousin a diagnosed Celiac took over 2 years to be diagnosed and she is a nurse. My husband said for years "I think bread is bad for you" and in a desperate attempt to help myself -I gave up wheat after 2 weeks felt better 2 months later I went total gluten-free and felt very much better that was 4 years ago. So I have suspected NCGS or Celiac for a few years now. However getting someone to test you for it when you were classified IBS 20 years prior-well as is chronically heard on the forums here is perhaps the biggest challenge of all. One then just finally says ok I will just try this gluten-free thing myself. I was gluten-free for 3 1/2 years and improving. Then  I got gluten-ed in March of 2016 and I had worse symptoms then ever the joint pain arrived. I went to a new allergist who refereed me to another Allergist/Immunologist who deals with Celiacs and Food Intolerances. I did see a Rheumotologist in July 2016 since the muscle and joint pain was still lingering, who tested me and reported no antibodies. Back to the specialist who did more test and suggested the gluten challenge. It's likely me failing to complete 2 weeks caused it but the symptoms got real bad and I thought I'm going to have worse issues if I don't stop this.  Today my fingers are just starting to heal they were peeling during the gluten challenge among all the other symptoms I get, which I attribute to dehydration. The dry peeling fingers did not improve until I got the IV the day of the scope. Bizarrely I was looking forward to the scope hoping I'd get an IV with Meds and fluids becaus eI felt I needed it. I did see one abstract, I can't get my hands on the full article as you stated their is a link: Dig Dis Sci. 2005 Jan;50(1):126-9. Celiac disease and intestinal metaplasia of the esophagus (Barrett's esophagus). Maieron R1, Elli L, Marino M, Floriani I, Minerva F, Avellini C, Falconieri G, Pizzolitto S, Zilli M So I will pursue the path of monitoring the  Barrett's. Despite no official diagnosis for me, you are right Gluten is bad for me, I should avoid it, I will, and I'll stay on the forums. Good luck with you Boyfriend he is lucky to have you looking out for him.
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