Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Aching Legs, Etc- Mystery Solved?!
0

5 posts in this topic

Hi all!

I've had a rough couple months!

In December, I was diagnosed with clostridium dificile (bacterial overgrowth/infection) after taking clindamycin for a tooth infection.

My recovery took about 3 weeks. I was finally off meds on Christmas day.

Since THEN, I've experienced almost daily severe anxiety attacks, and in recent weeks, the following:

Sores at corners of mouth. Would go away and re-appear.

Aching joints, mostly my right ankle/foot area. Sometimes left. And occasional soreness in calves/thighs/groin area as well. A light cramping sometimes. Sometimes aches in my wrist.

Feeling of weakness/numbness in my right leg and hand.

A few miscolored circular pinkish rash areas under each arm. Not DH. maybe 1/2 inch in diameter and barely raised. Starting to "dry" out.

Almost daily stomach aches (I can usually plan for it... around 5-6pm) and some reflux.

Whaddya all think??

I've been gluten-free since yesterday's breakfast and today has been almost without aches. A few on and off in my left leg but NOTHING in comparison! No weakness today, no stomach issues today...

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hi all!

I've had a rough couple months!

In December, I was diagnosed with clostridium dificile (bacterial overgrowth/infection) after taking clindamycin for a tooth infection.

My recovery took about 3 weeks. I was finally off meds on Christmas day.

Since THEN, I've experienced almost daily severe anxiety attacks, and in recent weeks, the following:

Sores at corners of mouth. Would go away and re-appear.

Aching joints, mostly my right ankle/foot area. Sometimes left. And occasional soreness in calves/thighs/groin area as well. A light cramping sometimes. Sometimes aches in my wrist.

Feeling of weakness/numbness in my right leg and hand.

A few miscolored circular pinkish rash areas under each arm. Not DH. maybe 1/2 inch in diameter and barely raised. Starting to "dry" out.

Almost daily stomach aches (I can usually plan for it... around 5-6pm) and some reflux.

Whaddya all think??

I've been gluten-free since yesterday's breakfast and today has been almost without aches. A few on and off in my left leg but NOTHING in comparison! No weakness today, no stomach issues today...

If you want testing you need to be eating gluten. Post c.diff infection you need probiotics, perhaps for ever. you also sound multi vitamin def.

good luck

0

Share this post


Link to post
Share on other sites

You might want to rule out Lyme disease...although this time of year that may not be an issue.??

0

Share this post


Link to post
Share on other sites

You might want to rule out Lyme disease...although this time of year that may not be an issue.??

I got tested for lyme last week, waiting on results. I am a hiker but I doubt that's the case

0

Share this post


Link to post
Share on other sites

If you want testing you need to be eating gluten. Post c.diff infection you need probiotics, perhaps for ever. you also sound multi vitamin def.

good luck

I was on probiotics for awhile. GI everything has seemed to have resolved for the most part. I know I need to eat gluten to be tested. This is just a test run to see how I'd feel. Rather see if there are results before I spend $$$$ on more testing.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,125
    • Total Posts
      919,501
  • Topics

  • Posts

    • First, do you have celiac disease?  I assume you do.  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
    • I honestly feel like both doctors think it's all in my head even though there is proof.  Yeah there was a point when I felt crazy.  That was when I was being shuffled from dr to dr being given individual diagnoses of my problems.  None of those diagnoses ever made me get better.  Seriously I was diagnosed with heart palpitations, neurocardiogenic syncope, I was given a butt load of steroids because a dr felt like I was producing too much adrenaline, freaking had a few tell me I was depressed, and the good ol IBS.  It seemed most wanted to push pills.  It's all just ridiculous!
    • I can't believe your doctors!!! You have a daughter who is dx'd already! Yet the ped doesn't want to test your other kids unless you have a dx????!!! Are you kidding me???!!! That's absurd!!! They have a first degree relative who has been dx'd with celiac already. There is no need to wait to see what you turn out to be!! And then, and then, and then....don't even get me started on your doctor!!! Does he have brain damage? Oh this is insane & ridiculous!  I have never heard of a disease that doctors are so unwilling to consider or test for OR to diagnose as this one! Usually they are hot to trot to make a dx but say the word celiac & they shake in their boots. Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!!!!!!!!!!!!!!!!!!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,161
    • Most Online
      1,763

    Newest Member
    Jashan8534
    Joined