Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Fatigue?
0

5 posts in this topic

I was diagnosed with celiac six months ago, and have been on the gluten free diet ever since. It’s definitely been a bumpy ride, and for the most part, I’m feeling much better-- with the exception that I am often tired. I thought going gluten free was supposed to give you more energy?

I eat well, not many processed foods, lots of protein, and have ruled out other intolerances. My vitamins are all good.

In addition to being tired, my metabolism has changed a lot and I have to eat a lot more than I used to to stay full, and I get hungry much more often. When I exercise, if I burn too many calories, I get exhausted and have to spend the whole next day eating to make up for it.

Does anyone have any experience with fatigue/changes in metabolism after being diagnosed? Doctor says I look fine, but I’m not sure if this is part of the recovery process or not.

Thanks!

0

Share this post


Link to post
Share on other sites


Ads by Google:

My fatigue was not helped when I went gluten-free, but I found out I had hypothyroidism and that kept my energy lower than most. Could that be affecting you too?

0

Share this post


Link to post
Share on other sites

You seem to have ruled out all of my steps to a clear mind free of fatigue. I get fatigued when I am constipated. Are you beyond any withdrawl? Do you have a gluten free house?

0

Share this post


Link to post
Share on other sites

When I exercise, if I burn too many calories, I get exhausted and have to spend the whole next day eating to make up for it.

Does anyone have any experience with fatigue/changes in metabolism after being diagnosed? Doctor says I look fine, but I’m not sure if this is part of the recovery process or not.

Do you eat carbs? If you eat only proteins you'll have less energy. That said, I'm 3,5 months on GFD and I also feel fatigued the day after exercise. Maybe you're just not 100 percent recovered yet?

0

Share this post


Link to post
Share on other sites

I know what you're talking about. The need for more calories after working out is normal; however, it's either exaggerated for AI people or a part of the adrenals being off...

I know I have adrenal problems, not just because I'm AI (celiac, Hashimotos, endometriosis) but because I had very sudden onset of problems after undergoing steroid treatment for DH.

My doctor discussed exercise with me. Yes, I need it. Yes, it helps me feel 100% better. But I walk a fine line between enough/too much. She told me no more than every other day, or not to exceed what made me "not tired the next day". And it is a fine line.

The hungriness for me is part of the adrenal issue. And sadly enough, to support adrenals you need to eat often enough not to get really hungry. Talk about catch 22.

Anyway, after the first few months, the exhaustion and constant need for food abated; however, I also had to learn how much workout was too much. In the beginning, I really did overdo it.

It is very frustrating to feel so limited. But your stamina will improve.

Just eat on a regular schedule. Lots of veggies with protein. Minimal sugar. Workout and rest, find your fine line.

Exhaustion immediately after going gluten-free is normal, too. No one knows why, really. Just a part of healing? Sometimes it's a type of withdrawal. Personally, I think of it as a body taking a big sigh and resting. It passes.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,352
    • Total Posts
      920,503
  • Topics

  • Posts

    • I already did. Thats how i found the place. Its amazing to actually go to a restraunt again.
    • This is EXACTLY what happens to me. It has twice now and both times was after both glutening episodes but once it was the day after and the other time it was a week and a half. So I'm still not sure if it's related or strange bug bites...

      Did they stop happening when she stopped being glutened? Did you decide they were definitely related? I'm really confused by this and would love to know whether to insecticide my house or....
    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,417
    • Most Online
      1,763

    Newest Member
    Suzette Porter
    Joined