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Migrane Headaches And Celiacs
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8 posts in this topic

I have had migranes for a while now and have gotton to the point that i am having 20 plus a month. I have been getting IV magnesium and ending up in the ER for IV meds. I was diagnosed on Friday with Celiacs disease. I was wondering if anyone has had migranes before they were diagnosed and did it get better after taking Gluten out of your diet. Thanks for the input.

Kathi from Overland Park KS

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I didn't have as many as you, but my are almost completely gone. They can be a hormonal thing, too.

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Yes, I used to suffer terribly from migraines on almost a daily basis; however, after going gluten free, I never had another one. Yay!

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Yes! I had migraines about half of the time and now they happen only a day or two a month! Yay!

My migraines did get worse before they got better though; I went through a withdrawl for a week or two and that migraine was a doozey... but it was also my last multi day one that I've had in 6+months. :)

I hope you find relief.

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Many migraines here. Much better after gluten free. Now when I do get a migraine, I can trace it to some hidden gluten.

Have you checked all your meds for gluten? Maybe other sources?

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Migraines here too. I ate something gluteny at a party last week and along with the digestive issues came the migraines. I am on day 3 of them. It's pretty common. Hopefully yours get better on the gluten free diet too.

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I also had chronic migraines and was on preventative meds for them. Gluten free didn't make much difference (they came on after I had been gluten and dairy free for a long time). For me, I needed to work with a chiropractor to resolve posture/alignment issues.

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Migraines too! Gone from losing several days a month in bed to maybe an afternoon around my period. Unless I get glutened, then hey presto, kicks in second day.

All sounds like good news on this front.

Remember you need to be eating gluten until all blood tests and biopsies are done.

Good luck, ask lots of questions as you get to grips with the diagnosis and diet.

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    • I would be very careful in giving this kind of advice, she is in an advanced stage. I was there and one additional symptom that I was getting was a strong urge to commit suicide so eating gluten for three months might not be the way to go for some people. If a gluten free diet stop the problems them gluten is the problem or a least part of it. I eliminated MSG from my diet because I notice that the common denominator for some products that affected my well being was MSG. I eliminated oats because I notice that I would get canker sores every time I ate it. Wheat is what affect my brain the most, irritability gets uncontrollable, my mental capacity greatly diminish, rash in my arms appear, can't sleep,etc. Barley makes my stomach groan, and constipated. Will try testing how Rye affect me some later time. 
    • Hi Aly and welcome You may want to repost this in a new thread, that way more people will see it and can advise you.  I think you would be much better off getting the celiac test now, if you stay off gluten you will need to go back on it and that can be much harder. That said, loads of your symptoms look like they could be gluten related.  I had a persistent 'trapped nerve' for instance under my eye which would twitch like crazy. Since I went gluten-free doesn't happen any more.  Best of luck! Matt
    • Your scalp sounds like seborrheic dermatitis. I have that and although its better after going gluten-free its very persistent. The dermatologist recommended Nizoral shampoo for it and it does help. I think dairy has a big part to play with skin problems, for me at least. 
    • I was diagnosed this year and I live on Oahu. I have yet to meet another celiac, so that tells you something about our limitations here. I work in Waikiki and do frequent Rouffage. It is nothing fancy, small place, but keeps me fed when I need something. I also like Greens and Vines. It is a vegan restaurant and worth every penny. Greens and vines sets up at the KCC farmers market on Saturdays too. Places in Waikiki that do offer a gluten-free menu include, PF Changs, Dennys, Big City Diner and California Pizza kitchen. I do not trust those places due to the risk, but they "offer" gluten-free options. I did try and order a beer at Yard House in Waikiki. They label clearly states that it contained wheat, so yeah sent that back with the waiter. I have also tied Doraku in Waikiki. I called ahead and spoke with management. That went well and they offer gluten free soy sauce. There is a deli at Down to Earth Grocery store in Honolulu that has gluten-free options, but the whole foods here do not offer hot food that is gluten free. They do have a hot food bar, but you have to stick to the whole plain salad and veggie options. It's good to hear the hotels here are getting better, beyond Waikiki hotels there is no one really interested in being gluten free.
    • Just found this site today. Did you ever find one? I was diagnosed this year and I live on Oahu.
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