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Migrane Headaches And Celiacs
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8 posts in this topic

I have had migranes for a while now and have gotton to the point that i am having 20 plus a month. I have been getting IV magnesium and ending up in the ER for IV meds. I was diagnosed on Friday with Celiacs disease. I was wondering if anyone has had migranes before they were diagnosed and did it get better after taking Gluten out of your diet. Thanks for the input.

Kathi from Overland Park KS

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I didn't have as many as you, but my are almost completely gone. They can be a hormonal thing, too.

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Yes, I used to suffer terribly from migraines on almost a daily basis; however, after going gluten free, I never had another one. Yay!

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Yes! I had migraines about half of the time and now they happen only a day or two a month! Yay!

My migraines did get worse before they got better though; I went through a withdrawl for a week or two and that migraine was a doozey... but it was also my last multi day one that I've had in 6+months. :)

I hope you find relief.

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Many migraines here. Much better after gluten free. Now when I do get a migraine, I can trace it to some hidden gluten.

Have you checked all your meds for gluten? Maybe other sources?

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Migraines here too. I ate something gluteny at a party last week and along with the digestive issues came the migraines. I am on day 3 of them. It's pretty common. Hopefully yours get better on the gluten free diet too.

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I also had chronic migraines and was on preventative meds for them. Gluten free didn't make much difference (they came on after I had been gluten and dairy free for a long time). For me, I needed to work with a chiropractor to resolve posture/alignment issues.

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Migraines too! Gone from losing several days a month in bed to maybe an afternoon around my period. Unless I get glutened, then hey presto, kicks in second day.

All sounds like good news on this front.

Remember you need to be eating gluten until all blood tests and biopsies are done.

Good luck, ask lots of questions as you get to grips with the diagnosis and diet.

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    • I havent used it, not much of a baker tbh, but this one looks good: http://alittleinsanity.com/gluten-free-pie-crust-recipe/
    • As you say, there's no test, it's diagnosed by exclusion, so there's no metrics to check to assess compliance other than anecdotal response to symptoms. Conversely, I've not seen anything that says that NCGI can resolved or be cured either.  This paper gives a good summation.  Basically, there's not much research period! That is changing though, I think there's research underway which could help give answers.
    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
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