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Random Patches Of Skin Pain

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I've had this issue for a very, very long time. I woke up this morning with it and I thought I should ask the celiacs out there if this is a symptoms you've had. I haven't told a doctor because it is so intermittent and well, pain is 1 or 2 out of 10, so not really a bother and I've, quite frankly, never thought about it when going to see one. Happens maybe half a dozen times a year, maybe more. Tend to come together, like I'll get a few of them in a couple weeks and not again for months.

So what happens is that I seemingly randomly get patches of skin, (not clearly defined), where even slight brushing or touching is painful. It's an odd sort of pain. It's definitely topical pain, and kind of burning. It's always uncomfortable, not sharp or throbbing. Visibly there's absolutely nothing wrong with the skin, ever, and since going gluten-free I've developed a couple mild rashes that seem to be gluten related. When I woke up today, the area was side of my wrist, a fairly small area, maybe an inch or 2. It's moved a little since this morning, moving up onto the base of my thumb joint. Again, it's not noticeable unless something touches it. And if it's light enough, it's not even painful, just feels...different. Touching it now when it's pretty mild, the usual sensation of feeling isn't the same either. Almost like the pain/burning/uncomfortable has taken over what I would usually feel.

I think the most common area I would get this are my thighs, and the area is usually larger, maybe 5 inches or so. And they can be more or less sensitive too.

I've had peripheral neuropathy for quite a few years now, and it's looking more and more like it's just, fully, another facet of celiac disease not B vitamin related. So it wouldn't surprise me too much if this were just another aspect of neural damage. But I've experienced this much, much longer (possible since a child) than my hurting hands and feet. And it feels quite a bit different.


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    • I have the same symptoms.  These symptoms have overlapped other issues that I have and have been left untreated for far too long. Now the pain has gotten worst. My GP believes it's my hiatal hernia.  I have pain below my breastbone, pressure pushing up my chest/throat, dizziness and nausea. 
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    • Hi Ironic Truth, Thanks for Replying. Wow I get bad joint pain too. So my opinion especially if he is eating gluten is to get him tested. I wish I had been tested when I was eating gluten 8 years ago .  I had tried 8 years ago initially to figure out what the heck was going on with me and my immune system. I started with a GP, went to Allergist/Immunologist etc. I gave up 4 doctors later when nothing seem to be found and you sense they start thinking lady you're a nut job . My cousin a diagnosed Celiac took over 2 years to be diagnosed and she is a nurse. My husband said for years "I think bread is bad for you" and in a desperate attempt to help myself -I gave up wheat after 2 weeks felt better 2 months later I went total gluten-free and felt very much better that was 4 years ago. So I have suspected NCGS or Celiac for a few years now. However getting someone to test you for it when you were classified IBS 20 years prior-well as is chronically heard on the forums here is perhaps the biggest challenge of all. One then just finally says ok I will just try this gluten-free thing myself. I was gluten-free for 3 1/2 years and improving. Then  I got gluten-ed in March of 2016 and I had worse symptoms then ever the joint pain arrived. I went to a new allergist who refereed me to another Allergist/Immunologist who deals with Celiacs and Food Intolerances. I did see a Rheumotologist in July 2016 since the muscle and joint pain was still lingering, who tested me and reported no antibodies. Back to the specialist who did more test and suggested the gluten challenge. It's likely me failing to complete 2 weeks caused it but the symptoms got real bad and I thought I'm going to have worse issues if I don't stop this.  Today my fingers are just starting to heal they were peeling during the gluten challenge among all the other symptoms I get, which I attribute to dehydration. The dry peeling fingers did not improve until I got the IV the day of the scope. Bizarrely I was looking forward to the scope hoping I'd get an IV with Meds and fluids becaus eI felt I needed it. I did see one abstract, I can't get my hands on the full article as you stated their is a link: Dig Dis Sci. 2005 Jan;50(1):126-9. Celiac disease and intestinal metaplasia of the esophagus (Barrett's esophagus). Maieron R1, Elli L, Marino M, Floriani I, Minerva F, Avellini C, Falconieri G, Pizzolitto S, Zilli M So I will pursue the path of monitoring the  Barrett's. Despite no official diagnosis for me, you are right Gluten is bad for me, I should avoid it, I will, and I'll stay on the forums. Good luck with you Boyfriend he is lucky to have you looking out for him.
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