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Second Day
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Never been on this diet before and this is the second day going into it. I've been so far eating nothing but udi's bread, with margarine, with an egg, tomatoes and dark chocolate. I have anxiety disorder and I believe it's from magnesium deficiency. All of this started last year when I kept drinking caffeine like crazy and using caffeine as a laxative to make me lose weight> Very big mistake. Since last year, I've had suicidal thoughts, thoughts of being scared of dying, doom feelings, paranoid, the whole nine. I am not depressed. I am highly anxious and it's for NO reason! Are the symptoms suppose to get worse before they get better?

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Hi Chip, and welcome to the board.

I am assuming you are diagnosed celiac since you are eating gluten free. Unexplained anxiety is one of the big symptoms of celiac that not too many doctors know about. Does your doctor know about it? Oftentimes they can give you something for it to get you over the hump, but you don't want to get reliant on those things either if you think you can manage without. Just know that it is a symptom and that it will get better :) Of course the coffee / caffeine was a pretty dumb way to try to lose weight because it messes up your whole metabolism, not just the weight part :blink: But then you know that now :) Drink plenty of pure clean water to flush your body and eat a really clean diet. Is your diet so restricted because you cannot handle other foods, or just what you have started out with? Can you try some meat or fish protein and some green vegetables, some rice, mashed potatoes? I think you need a little more bulk passing through your digestive tract and even though you may not be absorbing them well, a greater variety of nutrients. Speaking of which, did your doctor test you for vitamin and mineral deficiencies, because some of these deficiencies if you have them could really be affecting your mood also. However, if you have been eating a lot of gluten, you may be going through gluten withdrawal and your body may be craving it. This is not at all unusual - it can be almost as bad as nicotine (and coffee!! - you might be withdrawing from that too, if you haven't already.

Good luck with the gluten free way of life and ask for anything you need help with. That's what we are here for.

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I've been gluten free for 7 months and still suffer mental issues, albeit anxiety isn't really an issue for me, possibly because I avoid doing pretty much anything that gives me the slightest anxiety.

You're taking magnesium supplements, right? For how long? Has it helped? Why do you suspect magnesium deficiency? Have you considered that you may be deficient in other vitamins from your year of purging?

I think for you though, you're still consuming caffeine if you eat dark chocolate. If I eat a bar of dark chocolate, it's very similar to the effect a cup of coffee will have on me. I dunno if you were having coffee before either, but I find something particular about caffeine from coffee to have an extra kick, and an extra crash, than if I drink lots of tea. And chocolate is part of that same family of bean that has theobromine, which you might react poorly to. I would definitely nix ALL caffeine, even slight amounts from milk chocolate or a barely steeped green tea or a can of coke, for at least a month. Overdosing on caffeine can definitely cause anxiety. I was never under the impression that it could be permament, but you definitely did a number on your endocrine system.

I would strongly suggest you get tested for celiac disease properly, BEFORE you try a gluten free diet. If you do start to feel better, then you'll want to know if you actually have celiac disease, and going back to eating gluten might make you feel far worse (you can't get tested without eating gluten, results won't be accurate). If you don't feel better being gluten free, you may not be gluten free long enough to know. For me, it's been 7 months and I'm still waiting for that 'good' feeling, and I clearly have celiac disease. You probably wouldn't stay gluten free 7 months if you barely noticed a difference and didn't have a diagnosis.

No matter what the test results will be, you can try going gluten free after biopsy and bloodwork are taken. If you're not a celiac, you may still be intolerant which is still very serious, and going a gluten free is the only way you can (currently) know.

To finally answer your question, yes, you can feel worse before feeling better if you're sensitive or celiac once you start your gluten-free diet.

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    • Hi everyone, I've been reading this forum sporadically and have some questions of my own. I'm in my 40s and was diagnosed with celiac last December by biopsy and blood work after months of tests by my primary and then a gastro. My husband, around the same age as me, was dx'd with stage 4 cancer a month later, so admittedly it's took me longer than I'd have liked to learn about celiac. Now I feel pretty on top of my diet. I mostly make my own food - proteins and veggies, with some certified gluten-free snacks in the mix - and am pretty strict about what I will/won't eat at friend's houses or in restaurants (I prefer to go to dedicated gluten-free kitchens whenever possible). I'm doing okay on the diet, but still getting glutened every so often, usually when I let me guard down outside the home. I also periodically see my primary and a naturopath (who happens to have celiac!), but still, I have many questions if anyone would care to answer:

      -FATIGUE. I'm still so tired, fatigued so much of the time. My doctors blame this on the stress of my husband's diagnosis and my periodic trouble sleeping. But even during weeks where I'm sleeping enough (8-10 hrs a day), eating right, exercising as I can, trying to keep stress at bay, I'm still so bleeping tired. Maybe not when I wake up, but by late afternoon. Often my legs even feel weak/wooden. Has anyone else experienced greater fatigue early on after being diagnosed? This will pass, yes? I know I could cut out the sweets and that could help, but also, being a caregiver is hard and sometimes it's nice to eat your feelings between therapy sessions.  

      -SYMPTOMS CAUSED BY FATIGUE? Sometimes I'll have other "feels like I've been glutened" symptoms if I haven't gotten enough sleep, though I'm trying so hard to sleep at least 8 hours a night these days. Hasn't happened in a while thankfully, but there was a point this summer where my insomnia was bad and my arms were achy and I had some crazy flank/back pain I'd never experienced before. For weeks. Doctor ordered me to sleep sleep sleep, taking Benedryl if needed. I did, and the symptoms went away, but weird, yes? Has this happened to you? I ask because I want to make sure I'm getting all strange pains tested to the full extent if there's a chance it's something other than celiac. I do sometimes still feel that strange side stitch after a CC incident.

      -SKIN PROBLEMS. I have had a smidge of eczema since I was a teen and it - and the dermatitis herpetiformis I've acquired with my dx - are out of control right now. I recognize the connection with stress, but also, has anyone found any great natural remedies for DH to stop the itching? I've tried so many useless ointments and medicated creams, a number of them given to my by a dermo months ago. I see my naturopath this week, but thought I'd ask here too.

      -MOSTLY gluten-free KITCHEN GOOD ENOUGH? My husband is supportive of my diet and mostly eats gluten free meals with me, but we still keep a gluten-y toaster for him and the gluten-y dog food in a corner of the kitchen and he still makes the occasional meal with gluten for himself on his own cookware (ravioli, pizza, mac n cheese, etc). Or sometimes I make eggs/toast and the like for him when he's too sick to move. Otherwise, we're militant about how we cook, which cookware we use, etc. He even has a kitchen nook off our den where he makes sandwiches. But sometimes I wonder if having two separate sponges in our shared-ish main kitchen is enough and I should just banish all gluten whatsoever from the kitchen. I can't be the only one with a mixed kitchen, right? How do you do it if you have a mixed-eating family?

      Thank you so much!  
    • Hang in there!  Count your blessings.  Do something you like to do and relax. I know that is hard to do as a young mother (as I sit here in the kitchen sipping coffee quietly as my teenager is sleeping in after a late football game last night where she marched in 90 degree plus weather in full uniform).   But seriously, take a few minutes to relax!  
    • Meredith, this is very true. A colonoscopy is for diagnosis of the lower intestine, endoscopy for the upper intestine.  How did your doctor interpret the tests? I suggest you read the link Cycling Lady gave you because it contains a lot of good information. 
    • Sorry, but this product (supplement) is not even certified gluten free.   Seems odd that a product geared to Non-Celiac Gluten Intolerance would not take the extra step of getting certified.   I guess I am a Nervous Nellie, especially after the reports that several probiotics were contaminated with gluten.   https://celiac.org/blog/2015/06/probiotics-your-friend-or-foe/
    • Thank you for posting that. I've had a lot of that bloodwork done and everything is normal. At the peak of this belly bug I had blood work done and my white count was fine. I think it's just my health anxiety scaring me into thinking this is something scarier (to me) than celiac. Maybe the anxiety will subside once I go gluten-free. The anxiety is brutal.
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